Type 1 Diabetes: Infant Testing Debate
Full Debate: Read Full DebateDepartment: Department of Health and Social Care
Helen Maguire
Main Page: Helen Maguire (Liberal Democrat - Epsom and Ewell)Department Debates - View all Helen Maguire's debates with the Department of Health and Social Care
(1 day, 10 hours ago)
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Helen Maguire (Epsom and Ewell) (LD)
It is an absolute pleasure to serve under your chairship, Sir Alec, and to have the opportunity to debate this incredibly important issue.
As a mum, I cannot begin to imagine the pain of Lyla Story’s family after she died last May from undiagnosed type 1 diabetes, less than 24 hours after a doctor diagnosed her with acute tonsillitis. It is an absolute tragedy that Lyla’s life was cut so short, and it is clear that change must happen. Every child must get the care that they need, when and where they need it. Every child should expect the best possible opportunities to grow up healthy and to exercise, play and eat well.
Charities such as Diabetes UK have been instrumental in raising awareness of the common symptoms known as the four Ts, to which many hon. Members have alluded today: “toilet”, “thirsty”, “tired” and “thinner”. However, children are too often rushed into intensive care and hours later face a diagnosis of type 1 diabetes and diabetic ketoacidosis. DKA can mean a coma, organ failure and a traumatic hospital stay. If it is not treated quickly, it can be fatal.
No child or parent should have to face that terrifying reality when the tools are at our fingertips. NICE guidance is clear: health professionals should know the signs and symptoms of type 1 diabetes, and any child suspected to have the condition should be referred on the same day to a multidisciplinary paediatric diabetes team to confirm the diagnosis and provide immediate care.
The Liberal Democrats believe that early diagnosis of long-term health conditions is essential, offering the best opportunity for those suffering from type 1 diabetes to live healthy, long and fulfilling lives. I welcome the Minister to her place; will she confirm what steps have been taken to ensure that medical professionals are confident in identifying type 1 diabetes in children to avoid a traumatic late diagnosis? Research shows that patients who see the same clinician for most of their care have fewer hospital admissions and lower mortality rates. I therefore implore the Minister to take forward the Liberal Democrat proposal to guarantee a named GP to all those with type 1 diabetes to help improve their long-term care once a diagnosis is achieved.
Another key issue with type 1 diabetes is that we do not know the exact cause of the disease. It is essential that the Government drive research so that we can establish the evidence needed for a viable and effective national screening programme. I urge the National Screening Committee to take on board all new evidence as it emerges, not least from the ongoing study of screening children aged three to 13, which is funded by the National Institute for Health and Care Research.
The Government must also take steps to facilitate medical research in the UK to make progress on paediatric type 1 diabetes testing and other conditions. Will the Minister consult the Chancellor about whether she will consider reversing the employer national insurance contributions hike to support the life sciences sector and boost research and development funding to end this information desert?
The Liberal Democrats are clear that no child should die because of a missed or late diagnosis. The UK needs to be a world leader on research, diagnostics and patient experience. I think of Lyla and the many other children whose lives could have been saved, and I ask the Minister to pay attention to the many calls in this debate to ensure that no family spends a lifetime grieving.
