Endometriosis Services Debate
Full Debate: Read Full DebateHelen Morgan
Main Page: Helen Morgan (Liberal Democrat - North Shropshire)Department Debates - View all Helen Morgan's debates with the Department of Health and Social Care
(1 day, 11 hours ago)
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It is a pleasure to serve under your chairship, Mr Dowd. I thank the hon. Member for Ipswich (Jack Abbott) for securing this debate—the opportunity to raise the importance of this debilitating condition with the Minister today is extremely welcome. I welcome her to her place; I must say that the contributions today have all been excellent, and she has been given a significant to-do list, which I am sure she is equal to.
Endometriosis is estimated to affect 10% of women. It is a condition that brings chronic pain and worsening physical health and can pose a threat to fertility. It devastates lives and leaves many women excluded from education and employment.
Thanks to the tireless campaigning of groups such as Endometriosis UK, and of the women in the Public Gallery today—whom I welcome—many of us are increasingly aware of the condition. Despite those efforts, however, the average diagnosis time has steadily increased since 2020. As we have heard, it now takes an astounding nine years and four months on average for women just to get a diagnosis. That is unacceptable.
That shocking amount of time to get recognition of the condition is indicative of the wider issue of institutional misogyny and the dismissal of women’s pain. On average, endometriosis patients also wait three and a half years from first noticing symptoms before seeking medical help, largely due to the normalisation of severe period pain.
Awareness of endometriosis among the public and healthcare professionals is still too low. Some 82% of patients have reported being told by their healthcare practitioners, prior to diagnosis, that they were making a fuss, or that their symptoms were normal. That is a recurring theme in women’s health. When I was involved in the all-party parliamentary group on birth trauma in the previous Parliament, we heard appalling testimony from women who had suffered serious injury giving birth only to be told, when they went to their GP afterwards, “What do you expect? You have just had a baby.” Many of them were in fact seriously injured. That institutionalised acceptance that women should suffer is something we need to address. I hope the Government are going to take that seriously—I am sure they are.
The nationwide tales are echoed by cases that I have heard from my own constituents. Lucy first got in touch with me in 2024, having already experienced years of debilitating pain that was dismissed and left undiagnosed. It was eventually confirmed to be endometriosis, but she struggled to get appropriate support on the NHS. She has told me of the grave impact that the pain has had on her quality of life, including missing out on education. Following an exhausting journey of many healthcare appointments, she is still suffering and is instead learning to manage the pain herself—yet, inspiringly, although she still lives with debilitating problems, she has now returned to the university studies that were broken off six years ago due to the pain.
I want to mention the different but related condition of polycystic ovary syndrome. Another constituent, Bethany, was left waiting months for an appointment after being diagnosed with polycystic ovary syndrome at 18. Following scores of appointment cancellations and administrative errors, Bethany decided to take action herself, setting up the Cysters Circle, a group that regularly meets around the constituency to support women and girls with conditions such as endometriosis and polycystic ovary syndrome.
I commend the hard work and fortitude of women such as Bethany and Lucy in campaigning for awareness of these conditions and providing the space where women can support each other—but they have to do so because of the barriers and woeful lack of support they experienced from the healthcare system. We must do more to raise awareness of these conditions and transform the quality of women’s healthcare across the country.
The failure of endometriosis diagnoses in primary care settings is adding even more pressure to our hospitals and forcing women to suffer for longer than necessary. Women often have to present multiple times to NHS services before getting the help they need. Prior to diagnosis, more than half of women are forced to go to A&E due to their symptoms.
As well as investing in tackling NHS waiting times for gynaecological services, we urge the Government to implement public health messaging, awareness campaigns and greater training for primary healthcare professionals. They should work with regulators and professional bodies to strengthen expectations on endometriosis education and awareness. Existing NICE guidelines must be fully implemented to establish clear, standardised referral pathways when women arrive at their GP appointment.
The experience of women trying to access endometriosis services reflects how our NHS suffered under the Conservatives, leading to some appalling outcomes in women’s health. Most maternity units are not deemed sufficiently safe; thousands of women have suffered a miscarriage without referral to the appropriate NHS services; waits for breast, ovarian and other genealogical cancers are unacceptably high; and, as we have seen with endometriosis, millions of women continue to suffer in appalling pain as they languish on waiting lists.
It is alarming that, in the face of those issues, the Government have discarded the target of having a women’s health hub in every part of the country. That decision undermines the effectiveness of the women’s health strategy. I hope the Minister will recommit to implementing those health hubs. Women’s health services are often too fragmented and difficult to access; removing the requirement for those hubs could lead to closures that would hurt access for women in need of care, and shows the wrong priorities.
The Liberal Democrats would give everyone the right to see a GP within seven days, including access to a named GP for patients with long-term conditions to ensure continuity of care. That would ensure that women suffering from long-term gynaecological conditions were listened to and got the support that they need.
The normalisation of women’s pain must stop. We must ensure that our health system fully supports those suffering with long-term gynaecological conditions so that women such as Lucy and Bethany, and the women in the Public Gallery today, are not left to battle through pain alone.