Coronavirus

Jessica Morden Excerpts

Tuesday 7th July 2020 Commons Chamber

[Matt Hancock]

I would love to get swimming pools open as soon as safely possible. As my hon. Friend knows, the emphasis has to be on safety. Alongside gyms, we are working with swimming pools. Of course, there is also some beautiful open water swimming in Derbyshire. Swimming in all its forms—in the sea, in open water and in swimming pools—is very good for your health, and we should try to get it all open as soon as we possibly can, but the nature of swimming and changing rooms means that there are risks, and we have to ensure that those risks are properly taken into account.

[Jessica Morden (Newport East) (Lab) [V]]

Given the Secretary of State’s earlier comments, will the Government back the campaign by Macmillan Cancer Support and commit to urgently publishing a national cancer recovery plan, to ensure that cancer does not become the forgotten “C” in this pandemic? Will he meet Macmillan to discuss that?

[Matt Hancock]

I would be very happy to meet Macmillan. The Under-Secretary of State for Health and Social Care, my hon. Friend the Member for Bury St Edmunds (Jo Churchill), who is the Minister responsible for cancer, has been working on exactly this subject, but I would of course be happy to meet Macmillan and other cancer charities, because this is such an important thing to get right.

NHS 70th Anniversary

Jessica Morden Excerpts

Wednesday 16th May 2018 Westminster Hall

[Nick Smith]

My hon. Friend has written a terrific biography of Aneurin Bevan. He absolutely captured what Nye did for us all.

On 5 July it will not be good enough just to celebrate the past, the history of this brilliant institution and its architect; we must also look to its future and the challenges it now faces. Many of those challenges have been created by eight years of Tory austerity, which has left our national health service underfunded, understaffed and underprepared. Labour would provide more doctors and nurses and provide a funding level to support the service for years to come. Other challenges cannot be put down to politics. The epidemics of old—diseases once fatal that we have almost eradicated—are being replaced with new health problems that are putting massive strains on our NHS. It is wonderful that people are now living longer, but that also means our population is an ageing one that needs support. As our society gets to grips with caring for our mental health, more people need access to these services than ever before.

Today I want to concentrate on another big challenge: rising levels of obesity, particularly among children. In this case, it is a challenge where an ounce of prevention can be better than a pound of cure. Back in Blaenau Gwent, surveys estimate that 70% of adults are overweight or obese and 11% are being treated for diabetes. Most troublingly, the latest figures from the child measurement programme reveal that last year 15% of four and five-year-olds in my constituency were classed as obese. We should all be worried by that trend, which is being replicated across our country.

[Jessica Morden (Newport East) (Lab)]

My hon. Friend is making some important points. Does he agree that we should urge Ministers to take more of a lead in restricting junk food advertising and to provide extra money and the consequentials to the Welsh health service for such things as earlier intervention by GPs and practice nurses?

[Nick Smith]

My hon. Friend makes an important point. As always, she is ahead of the game—I will come on to that point shortly.

Obesity is the second biggest preventable cause of cancer. Diabetes leads to significant complications, including, in extreme cases, amputation. The consequences for our society are massive. NHS England has said that around £16 billion a year is spent on the direct medical costs of diabetes and conditions related to being overweight or obese. That is more than the cost of delivering all our countries’ police and fire services combined. The Government cannot shirk their responsibility to tackle the issue head on. When the next chapter of their childhood obesity plan comes into effect, it needs an effective UK-wide public health drive. It needs to do more to deal with that priority. The 2015 Conservative manifesto pledge to clamp down on advertising unhealthy brands vanished into thin air by the time of the first childhood obesity plan.

It now looks like junk food ads may be banned from programmes where three quarters of the viewers are children. That is to be applauded. It is a good thing, but it fails to tackle the big primetime shows that families gather around the sofa for: shows such as “The X Factors” and the aptly named “Saturday Night Takeaway”. That is without mentioning, with the World cup on the horizon, the premium advertising space around sport. There is a real contradiction when fantastic displays of athletic prowess are bookended by burgers and packaged with pizzas.

Alongside others, Cancer Research UK is pushing for a 9 o’clock watershed for junk food adverts, and the Government must consider that proposal seriously. It is not only me who thinks that; the head of the NHS, Simon Stevens, thinks it would be a good way to tackle this scourge. He believes that even the likes of Facebook must be roped into any plans that limit junk food advertising. The Jamie Oliver Food Foundation suggests having mandatory training for GPs and health professionals to talk about weight in a helpful way and to refer patients to nutritional experts. Whatever the Government decide, they will need to be bold in the face of pressure from the industry heavyweights and their lobbying teams. When plans emerge from this Government, every organisation should be doing their bit.

I was pleased to see the Mayor of London, Sadiq Khan, take real steps to address junk food advertising last week with his announcement that such adverts are to be banned from the tube and bus networks. Almost 40% of London’s 10 and 11-year-olds are obese or overweight. The Mayor is taking a positive step to tackle what he has rightly called “a ticking time bomb”, and that must be supported. However, it is up to all public bodies, including devolved Administrations, councils and housing associations, to weigh in. Primary schools should promote walking every day to their pupils. It is about using soft power and nudge, as well as improved regulation to make legislative and cultural change.

Fortified Flour

Jessica Morden Excerpts

Wednesday 16th May 2018 Westminster Hall

[Jessica Morden (Newport East) (Lab)]

I congratulate my hon. Friend the Member for Pontypridd (Owen Smith) on securing this important debate and, as always, making an excellent case in favour of the fortification of flour and the science behind it. I also thank him and the right hon. Member for Belfast North (Nigel Dodds) for organising the recent event in Parliament with the charity Shine, among others. Shine has worked for many years alongside my constituents, the Walbyoffs, on whose behalf I speak.

I will use my short contribution to give a voice to Paul and Liz, whose eldest daughter, Sara, lives with spina bifida. My hon. Friend for Pontypridd explained comprehensively how the conditions caused by a low level of folic acid during a mother’s pregnancy cause neural tube defects in an unborn child. Sara was diagnosed with the condition weeks before the birth of the family’s second child, Alis. Paul and Liz tell me that, had they known that earlier, Liz would have increased her dosage of folic acid during her pregnancy. Indeed, mums such as Liz would have benefited from the extra folic acid boost that would have come from the fortification of flour. The evidence suggests that, in as many as three out of four cases, that could be the difference between a baby being born with a neural tube defect and not.

Like many families across the country with a personal connection to the debate, Paul and Liz cannot understand why the UK has not introduced mandatory fortification of flour. Other food products, such as cereal, are fortified with folic acid; the rationale for excluding flour from fortification is unclear. There is clearly strong support for that among members of the medical profession. David Bailey, the chair of the BMA council in Wales, described mandatory fortification to prevent spina bifida as

“an important and cost effective public health measure.”

On behalf of Paul and Liz, I urge the Government to look at this sensible proposal carefully and to act. As the right hon. Member for Belfast North said, all the evidence is there; all that is needed is action. I hope that the Government listen to this debate.

Oral Answers to Questions

Jessica Morden Excerpts

Tuesday 19th December 2017 Commons Chamber

[Mr Dunne]

I pay tribute to my right hon. Friend for her role in helping to support the victims, many of whom, as she said, are constituents of hers. We are pleased that Bishop James has agreed to take on this inquiry. Bishops provide the ability to empathise with victims and their families, which might not always be the case with judge-led inquiries. As she rightly points out, the Hillsborough inquiry was led by a bishop, but so too is the current Gosport inquiry, while the Morecombe Bay inquiry was led by Bill Kirkup, rather than a judge.

[Jessica Morden (Newport East) (Lab)]

Those with erythropoietic protoporphyria cannot be exposed to sunlight or even some artificial light without extremely painful and violent skin reactions. Trials of the drug Scenesse have proved life-changing for constituents such as James Rawnsley, who, for the first time, can now take his kids to school and go on holiday. The decision to make it available on the NHS will be taken soon. Please will the Minister look at it?

[Steve Brine]

EPP has a devastating impact on a person’s health and quality of life, and is something that the hon. Lady has discussed with me before. We will of course take the matter seriously, and I am very happy to talk to her more about it.

Contaminated Blood

Jessica Morden Excerpts

Tuesday 11th July 2017 Commons Chamber

[Jessica Morden (Newport East) (Lab)]

I want to speak in this debate on behalf of my constituents Lin Ashcroft and the Smith family, victims of the contaminated blood scandal.

I congratulate my hon. Friend the Member for Oxford East (Anneliese Dodds) on an excellent maiden speech. She rightly highlighted the importance of the campaign and her local campaigners, and we look forward to hearing many more speeches from her. I also add to the tributes to my hon. Friend the Member for Kingston upon Hull North (Diana Johnson). We are having this debate because of her, and she has worked tirelessly on the issue with other hon. Members. She has a parliamentary life well spent on the issue, let alone all the other matters that she has campaigned on. But she has done this for the victims, and, in welcoming the Government’s announcement of a public inquiry today, I agree with her that it is so important that the families are at the heart of it. The inquiry has been a very long time coming; we failed this community many, many times, and they need to be at the heart of it and have confidence in it.

It is absolutely shameful that 45 years have passed since the first people were infected with HIV and hepatitis from NHS-supplied contaminated blood and blood products, yet we have still not got to the truth for the members of the community who are affected. They have been let down so often, but they still come here relentlessly, all these years later, to see Ministers and lobby MPs to fight for justice. I pay tribute to them for their strength. I remember a family telling me, not so long ago, that in the end they had to stop going to the funerals of the friends whom they had made as part of this campaign, because it had become too heartbreaking: there were just too many funerals to go to. I think that is really sad.

As the former Member of Parliament for Leigh said in his last speech in this place, there is plenty of new evidence that backs up what campaigners have known and felt in their bones for many years: that the risks posed by contaminated blood were known by the authorities and pharmaceutical companies at the time but it was still used; that people were used for testing and as guinea pigs; and that efforts were made to suppress that truth. Let us remember that these were people who went to the NHS for treatment and were infected by blood provided by the NHS—provided by the state. They have had to fight for years for that to be acknowledged, and no fault has ever been admitted by either the Government or the pharmaceutical companies that supplied the contaminated blood products. It was said that that was because no one could have known about the problem at the time but, as a result of the work of campaigners, Members and the media, we now have that new evidence that risks were known. The inquiry must start now, so that we can get to the truth once and for all.

As we heard from my hon. Friend the Member for Kingston upon Hull North, more than 2,400 people have died and the lives of thousands more have been wrecked. I want to talk about just one of those people, Colin Smith from Newport in my constituency. He was one of the youngest victims of the contaminated blood scandal, and what happened to him illustrates just why the inquiry cannot come quickly enough.

Colin went into hospital in 1983 when he was eight months old with a minor ear condition. As a haemophiliac he received factor VIII, which the family learned, following a freedom of information request, had come from a batch from a prison in Arkansas. He spent his short life fighting illness. He died, aged seven, of AIDS and hepatitis C in 1990. The family did not know he had hepatitis C until three years after his death: it had been kept secret, as so much was kept hidden. I hope that that will be examined in the inquiry, because people like Haydn Lewis, who was mentioned earlier by my hon. Friend the Member for Cardiff Central (Jo Stevens), had to battle and battle to obtain such information.

Colin died aged seven in his mum’s arms, weighing about the same as a baby. I have told his story before in the Chamber. It is a heartbreaking story, but telling such stories is an important reminder of why we are here today. It is also an important reason for having a public inquiry. We now know something that Colin’s family knew in their hearts, I think, for many years, but have since outlined on “Panorama” and in Private Eye. One of the recently unearthed letters written by Colin’s haemophilia specialist in 1983 recorded that, following his minor incident,

“without any evidence of intracranial bleeding the child was still given factor 8”.

The specialist added that

“all these materials carry the risk of hepatitis but this is something haemophiliacs have to accept”.

He said that he would keep Colin under

“close observation as months go by”.

Six years later, after Colin had died, the same specialist wrote to pharmaceutical companies saying that he could not supply any more “samples” because Colin was no longer at his facility. Colin’s family were not aware of that until much later. That and other evidence needs to be put before the public inquiry so that witnesses can be called under oath and all documents can be disclosed, because it indicates that the risks of using this blood—supplied by profit-making American companies—were known in 1980 or earlier, three years before it was given to Colin.

Colin’s tribute on the Tainted Blood website says:

“Thousands of people, like Colin… didn’t make it this far. He never had the chance to join the cubs, play football for his school, have a girlfriend, go travelling or get married…Instead, his short life was filled with hospitals, doctors and illness. He was just a little boy, but a very special one who we, at TB, always keep in mind as we campaign.”

He is in my mind every day, because when at home in my constituency I often drive past the Smith’s house, with my eight-year-old son sat in the car next to me, and I imagine how I would feel if this had happened to me. So I just say this to the Minister: would I have been happy if there was a public apology and would I have been happy with the limited financial support that people felt they had to beg for, or would I want to finally get to the truth? Nothing can bring back Colin and others, but we can at least have a public inquiry that gets this right. We need to get it right this time, because Colin’s family and others have been through so much over the years that we cannot let them down again.

Young-onset Parkinson’s Disease

Jessica Morden Excerpts

Monday 6th March 2017 Commons Chamber

[Nick Thomas-Symonds]

Precisely. A work capability assessment might not be the best way to assess people with a fluctuating condition. Additionally, on the personal independence payment, there are far too many people at my surgeries who end up having to go all the way to a tribunal to be awarded what they should have been given in the first place.

[Jessica Morden (Newport East) (Lab)]

My hon. Friend is making an excellent case. The Minister for Disabled People, Health and Work recently said during a debate that she would be talking to the Treasury and Motability about letting PIP claimants keep their vehicle while they appeal decisions that have gone against them. The removal of Motability vehicles has affected people with young-onset Parkinson’s. Does my hon. Friend agree that we deserve to hear what progress has been made on that issue?

[Nick Thomas-Symonds]

I agree entirely with my hon. Friend. That point is particularly pertinent because of the number of people who are succeeding on appeal.

I have an email from Phil from Kent, who was diagnosed with Parkinson’s at the age of 45. He says:

“In…2015 I was awarded 17 points (the Higher Rate) for the Daily Living Component and 10 points…for the Mobility Component of Personal Independence Payment.”

He felt that that was accurate, but the assessment was downgraded when he was seen a year later. He has an appeal ongoing, but he simply says this:

“I want the DWP to understand that Parkinson’s disease is a degenerative condition…It does not get better!”

That is precisely right.

The Government have the laudable aim of halving the disability employment gap.

Contaminated Blood

Jessica Morden Excerpts

Tuesday 12th April 2016 Commons Chamber

[Jessica Morden (Newport East) (Lab)]

I will do my very best to keep my speech within seven minutes, Madam Deputy Speaker.

I pay tribute to my hon. Friend the Member for Kingston upon Hull North (Diana Johnson) and the all-party group for securing the debate, and to the Backbench Business Committee for granting it. I also pay tribute to those members of the campaign who have travelled to be in the Gallery today. I know that many were unable to stay because of the important urgent debate on steel, but many have stayed and I thank them for their patience.

I am speaking today on behalf of my constituents the Smith family and Lin Ashcroft. Janet and Colin Smith lost their son Colin in 1990, when he was just seven. Just a few months earlier, Lin lost her husband Bill Dumbellton. I have spoken about Colin before in these debates, which many hon. Members have called to consider what has been described as the greatest treatment disaster in the NHS.

Colin went to hospital when he was eight months old for a minor ear infection. As a haemophiliac, he received factor VIII, which, following a freedom of information request, the family later learned had come from a batch from an Arkansas prison. He spent his short life fighting illness and died aged seven of AIDS and hepatitis C, although the family did not find out that it was hepatitis C until three years after his death. No parent should have to go through what the Smiths have gone through. As they have said, they want justice so that their son can rest in peace and they want justice for those who remain.

[Stephen Doughty (Cardiff South and Penarth) (Lab/Co-op)]

That story is just one of the many we have heard from constituents. I heard from a constituent, David, who similarly spoke passionately about his circumstances. He will not even be affected by the consultation that is going on. Clearly, this is a UK legacy issue and a UK historical injustice. We have heard about the difference in Scotland and elsewhere. Does my hon. Friend agree that we need to make sure the UK Government lead on working with the devolved Administrations—in Wales, that means the Wales Office—to ensure that we do not end up with a postcode lottery, with some people potentially in worse situations and some not getting the same justice as others?

[Jessica Morden]

My hon. Friend makes an incredibly valuable point, which I hope the Minister will listen to—I know it will be heard by the large contingent of Welsh campaigners who have come here today to listen to the debate.

Bill, the husband of another constituent, Lin Ashcroft, was one of the first haemophiliacs to treat himself at home with cryoprecipitate. He contracted HIV and hepatitis C from blood, and he lost his job with BT in the 1980s, after telling the occupational health department about his HIV status. Bill had no life cover, as no one would insure “people like him”, as it was put at the time. Following his death, Lin had to grieve and cope with the financial commitment she was left with. She eventually received some support from the Skipton Fund, but she found the process involved absolutely brutal—she felt she was jumping through hoops to get the money.

We have to keep telling these stories, because we have to remember what many people went through. We have to remember that they need a proper settlement because that can help to draw a line under this period, in so far as we ever can. These people have lost their loved ones, and they have lost great friends they have made during the campaign. As they have told me, it just becomes too difficult in the end to attend the constant funerals, as members of the community pass away. These people want proper support for those who are still with us.

[Conor McGinn (St Helens North) (Lab)]

The Prime Minister’s apology gave my constituent Sandra Molyneaux hope that the wrong done to her and her family would finally be righted. Does my hon. Friend agree, though, that subsequent developments fly in the face of that? Sandra and thousands of others are telling the Government through us today, “Don’t tell us you’re sorry. Show us you’re sorry.”

[Jessica Morden]

My hon. Friend makes a fantastic point [Interruption.] And it is very well received. He anticipates the point I am coming to.

There was some hope last year when the Prime Minister made the much-needed apology for the contaminated blood disaster. He promised then to improve the financial support for the victims and their families. As he said, we are a “wealthy and successful country” and we should be helping these people more. There was some hope, and the consultation was launched into what the support should look like.

A year on, however, the victims have been let down again. Despite the headline announcement about the additional budget of up to £125 million in support, not a penny has been spent, as has been said. The majority of people currently receiving financial support will be worse off under the new scheme. Removing discretionary payments may mean that many lose to the tune of thousands of pounds a year. They will be significantly worse off than those affected in Scotland. Individual assessment could reduce financial security. Widows, partners and dependent children who have been bereaved will receive limited or no support. Lastly, the proposed reforms would just not deliver the sustainability and security the affected community so desperately needs. This is not the package that is needed. It is also not clear whether payments under the new proposals will be exempt from tax and benefit assessment.

What has been proposed is very different from what will be offered by the Scottish Government. For widows who have lost their loved ones, the difference is not just stark—the proposals are poles apart. I will leave it to SNP Members to elaborate on that, but the difference is very pointed.

[Mr Alistair Carmichael (Orkney and Shetland) (LD)]

Does the hon. Lady not accept that this is one occasion when there should be close working across the Administrations? I offer her the example of a constituent who was infected 35 years ago in Staffordshire. Although he has lived in Scotland for all that time, he will get compensation under the scheme devised by the Department of Health in England. Where is the sense in that?

[Jessica Morden]

I thank the right hon. Gentleman for his intervention. He is absolutely right and I am sure he will get the chance to elaborate on that point later. For parents and families who have gone through the trauma of losing a child like Colin, there is nothing at all.

Nigel Mills is here from Wales today and he is now receiving a new treatment for hep C. He has been able to access that treatment, although, mercifully, his condition has not resulted in cirrhosis of the liver. All those in Wales who developed hep C and could benefit from those new drugs are now receiving them. The Haemophilia Society is very anxious that all those in England who could benefit should have access to them and that funding for new treatment should not be diverted to cover existing treatments.

How many times do we keep having to tell these very personal stories, and how many times do we keep having to call these debates and table questions? How many times do victims have to come to London to lobby MPs? The Haemophilia Society has responded fully, highlighting the weaknesses in what is being proposed and saying that the consultation should be withdrawn.

I ask the Minister please to reflect deeply on this, because what is proposed does not meet the needs of widows, partners, parents, children and those affected. But she should not reflect on it for too long: this has been an ongoing nightmare since the 1970s for thousands of families. The Government cannot bring back the dead or restore health, but they can award a package that will ensure that survivors and families are secure. The apology was a step forward, but let us not prolong the agony further for those who have suffered for far too long. Please listen to this campaign and give the campaigners what they deserve. Please right the wrong.

Local Suicide Prevention Plans

Jessica Morden Excerpts

Wednesday 4th March 2015 Westminster Hall

[Mrs Madeleine Moon (Bridgend) (Lab)]

It is a pleasure to serve under your chairmanship, Mr Gray.

This debate comes after a report by the all-party group on suicide and self-harm prevention, as well as the publication of the most recent suicide statistics two weeks ago. I want to start with a quote from someone who gave evidence to the all-party group. It was the most powerful statement that we received. Speaking on behalf of one of the London authorities, the person said:

“People don’t want to talk about sad subjects…I could get dozens of people in a room for mental health but not suicide…I had maybe four or five people in the room for a suicide meeting, out of an invitation list of dozens who had attended similar events on the subject of mental health.”

There is the problem. People do not want to talk about sad subjects. They do not want to look at suicide. It is too painful and too difficult. They avoid tackling a problem that blights the lives of far too many people in this country.

The all-party group requested information from all 152 local authorities in England. Eventually, after some poking with a sharp stick and freedom of information requests, all but two replied. The data revealed a shocking lack of understanding of the basic difference between suicide and mental health. Some people think that if someone is suicidal, surely they have a mental health problem, but it depends on the definition of mental health. They almost certainly will not have a classified mental illness. It is generally acknowledged that three quarters of people who take their own life have never been near mental health services. It would be wrong to assume a close working correlation—that if someone is working to prevent mental health problems, they are helping to prevent suicide.

The most worrying finding of all was that a third of local authorities in England had no suicide prevention action plan whatever. A third did not undertake suicide audit work, and 40% had no multi-agency suicide prevention group. That is totally unacceptable. Mr Gray, you and I have spent some time over the past couple of months looking at the importance of having a strategic plan and knowing what one is trying to achieve and the required outcomes. Across England, a third of local authorities have no strategy—nothing at all. They are doing nothing to prevent preventable deaths, and 40% have no multi-agency suicide prevention group.

This does not require big money. It is not about expensive drugs. It is about putting time and effort into looking at what the problem is locally and how it can be tackled, and then pulling together the agencies that can work together to deliver a plan. That does not seem too big an ask to prevent an avoidable death, yet for a third of local authorities in England it is too big an ask. That is shocking. I hope that the Minister will approach those local authorities and say, “Things need to be better”. All Members whose local authorities do not have such a plan and action group ought to be proactively telling them that they are wrong.

[Jessica Morden (Newport East) (Lab)]

I commend my hon. Friend and the all-party group for their work on this issue. She speaks with great authority about the data for England, but what is her understanding of the situation in Wales?

Contaminated Blood

Jessica Morden Excerpts

Thursday 15th January 2015 Commons Chamber

[Jessica Morden (Newport East) (Lab)]

I went to the launch of the report by the all-party group yesterday. On behalf of my constituents who are affected, may I say a very big thank you to hon. Members and former hon. Members who have pursued this issue over the years, in particular my hon. Friend the Member for Kingston upon Hull North (Diana Johnson) and the hon. Member for Colne Valley (Jason McCartney)? It is hard to believe that, after all these years, this is the first survey of those affected by this scandalous tragedy. I support wholeheartedly the efforts of the right hon. Member for North East Bedfordshire (Alistair Burt) to secure this debate and all the work he has done. Even though the Penrose report has been delayed, we cannot delay talking about this matter—it has taken far too long already.

I support the recommendations in the report that deal with the experiences that constituents such as Lynn Ashcroft have had. I spoke to her last night on the phone. She had been reading the report and described it as “very comprehensive and moving”. Lynn’s late husband, Bill Dumbelton, was a haemophiliac. Bill was one of the first haemophiliacs to treat himself at home with cryoprecipitate. He contracted HIV and hepatitis C from the blood he was given. He lost his job with BT in the 1980s after he told the occupational health department about his HIV status.

Sadly, Bill died at the age of 49 and Lynn was widowed at 35. Bill had no life cover. As Lynn explained, because of his haemophilia no one would insure “people like him”. As well as having to come to terms with the loss of her beloved husband, Lynn was left with the mortgage and other financial challenges. Lynn did receive money through the Skipton Fund, although she feels she had to jump through many hoops to get it. It took her two years to get to stage one, during which vital medical records were lost. In her words, the Skipton Fund process was “brutal”. Several appeals in three to four monthly intervals over two years made her grieve all over again. It took a huge toll on her personally. As Lynn says, the Government cannot bring back the dead or restore their health, but they can award a financial package that will ensure survivors and their families are financially secure for life. In her words, she wants to see no more charities, no more funds and no more begging. Lynn has been helping other widows to get through the overly complicated system. I hope that, as a consequence of the report, the Government will act on its recommendations.

Bill died in the same year as Colin Smith. Colin’s parents, Janet and Colin, live in my constituency. Colin’s tragic story is on the “Tainted Blood” website, as is Bill’s, and the story of his extremely short life illustrates why we need a public apology, which is long overdue. Colin went into hospital at eight months of age for a minor ear condition. As a haemophiliac, he received factor VIII, which the family learnt following a freedom of information request came from a batch from a prison in Arkansas. He spent his short life fighting illness. He died, aged seven, of AIDS and hepatitis C. The family did not know he had hepatitis C until three years after his death. That was kept secret, as so much has been kept hidden. It was a real battle to discover that.

On behalf of the family, may I say they are angry that there was never a public inquiry and that the full findings of Archer were not accepted? They passionately believe that more should be done to help those still living with the consequences of what Lord Winston described as the worst treatment disaster in the NHS. They have taken comfort in the friends they have made through the “Tainted Blood” campaign, but say they have not felt strong enough to attend the constant funerals, as their friends pass away. The Smith family and others need and deserve closure.

Two days ago, it was the 25th anniversary since Colin’s death. This was the tribute on the “Tainted Blood” Facebook page:

“Today marks the 25th anniversary of the death of Colin Smith. He was a haemophiliac, but despite that lived a normal fun-filled life, along with his two brothers and his mum and dad. Then, in the middle of the AIDS crisis, he was given a non-emergency operation, during which he was given a batch of blood product. Colin died of AIDS, aged seven, in Janet’s arms, weighing around the same as a baby. His family have never recovered from it, and never will.

Please, as you read tomorrow’s APPG report and as you watch the debate…remember Colin and all of those who, like him can’t be there with us. Please remember all of those who might not see the end of this year…Thousands of people, like Colin, simply didn’t make it this far. He never had the chance to join the cubs, play football for his school, have a girlfriend, go travelling or get married…Instead, his short life was filled with hospitals, doctors and illness. He was just a little boy, but a very special one who we, at TB, always keep in mind as we campaign.”

While long overdue, it is time for a public apology and a final settlement. Anything less will just continue to hurt the innocent victims and their families who, through absolutely no fault of their own, have had their lives torn apart by this national scandal.

--- Later in debate ---

[Huw Irranca-Davies (Ogmore) (Lab)]

I pay tribute to the right hon. Member for North East Bedfordshire (Alistair Burt) and others who have worked on this issue for some time, as well as those whose names are on the Order Paper today, those who contributed to the report of the all-party parliamentary group and all hon. Members who have spoken today.

I will not name any names in my speech—my constituents have asked me not to do so because of their continuing fear of stigmatisation. I shall use their words, however, because, frankly, I have nothing more powerful to say.

[Jessica Morden]

I thank my hon. Friend for giving way so early in his speech. He, like me, is the Member for a Welsh constituency. Does he agree that it is important that as we move forward the Government work closely with the Welsh Government, particularly on things such as treatments, so that there is help for those Welsh constituents now that health is devolved?

[Huw Irranca-Davies]

I agree very much with my hon. Friend. We need a UK solution because this is a UK problem, so work must be done in concert with the devolved Administrations and Governments.

My constituent says that in 1982:

“We were called into consultant’s office, at the…Hospital…My future wife was pregnant and we were strongly advised to have a termination. However, he was not specific about reasons why, other than the possibility of our child either having or carrying haemophilia, so we refused.

1983—Our son was born and they wanted to take a blood test from him. It was after this they told us of my…HIV infection, at this early stage they had no idea what it entailed. We were advised not to mention to other patients at the hospital and to refrain from sexual intercourse until they knew more. Thankfully our son did not have the virus. Feeling uncertain about the future, it was awful to be told we had to keep this to ourselves. At this time it was very much publicised in the media and friends of ours, who knew of my Haemophilia began questioning us on whether or not I had been affected. Suffice to say I felt I was on borrowed time and on my own admittance, went off the rails and neglected my son and new wife.

1985—My wife fell pregnant again and convinced I was going to die sometime soon, the fear and uncertainty about the future made us feel we had no option but to have a termination.”

He goes on to say that a support group was set up and:

“We began attending meetings with the group and felt better for the support but sadly the participants began dying at an alarming rate and it just made the situation worse.

1991—My brother, who also had Haemophilia and HIV passed away. Prior to this we had undergone clinical trials at the hospital and because we were brothers, he was given the placebo. The guilt I felt because I was taking the actual product and had survived was indescribable. The following year my second brother was tragically killed.

1993—In short I had given up, I knew I was going to die and felt I could fight no longer. I ended up in hospital with PCP pneumonia and my wife was told I had a matter of weeks. Even though I had given up on myself thankfully my family and the hospital staff hadn’t…and I eventually pulled through.”

He goes on to describe their three-and-a-half-year fight from 1995 to become the first couple with HIV status in the UK to adopt despite being told no, no and no again. He continues:

“2001—We were asked to consider adopting two more children”,

in addition to the one they had adopted during that period,

“a boy and a girl aged five and seven. We agreed and my wife finally had the family she had been craving. It was just after this, I was told I had also contracted Hepatitis C and possibly vCJD. Obviously we were devastated and all the old uncertainties we had pushed to the back of our minds pushed forward with force. However, all was not lost I was assured a treatment was available.

2002—Late in the year, I began treatment for Hepatitis C. We had been warned prior to this, I wasn’t going to be easy to live with but looking back now I feel this was an understatement. The two children we had living with us, had severe psychological problems and their behaviour just served to exacerbate the situation and subsequently the placement broke down.

2003—The two children went back into care and I found myself unable to cope with my grieving wife and my two existing children. I wasn’t in a very good place at this time and my wife and I came very close to separation. It was only because we had been together since we were sixteen and married at seventeen, we worked to stay together. The treatment reacted with my HIV drugs and I ended up in High Dependency with Pancreatitis. Following this, my wife had to sell her business as I was ill and unable to cope at home without significant help.”

Hepatitis C (Haemophiliacs)

Jessica Morden Excerpts

Tuesday 29th October 2013 Westminster Hall

[Mr Andy Slaughter (Hammersmith) (Lab)]

Thank you, Mr Dobbin, for calling me to speak. It is a pleasure to be here in Westminster Hall under your chairmanship.

I, too, thank my right hon. Friend the Member for Wythenshawe and Sale East (Paul Goggins) for securing this debate and for his speech. I welcome the Minister, the hon. Member for Battersea (Jane Ellison), to her post. This is the second Westminster Hall debate in two weeks that I have taken part in and she has responded to, so she has a very full in-tray. Nevertheless, I urge her to study her brief on this issue and, as my hon. Friend the Member for Kingston upon Hull North (Diana Johnson) said, to meet the victims of the contaminated blood scandal and their MPs.

Most importantly, the Minister should come up with a proposal for resolving the remaining injustices on this issue. I am sure that she will; she has a reputation for being thoughtful and open-minded on such subjects, but she will have heard from right hon. and hon. Members today that this problem becomes more pressing with every year that passes.

I am afraid that, as my hon. Friend the Member for Kingston upon Hull North said, the cause was somewhat set back by the meeting that the previous Minister, the hon. Member for Broxtowe (Anna Soubry), had with the all-party group on haemophilia and contaminated blood earlier this year. It is no exaggeration to say that it is the worst meeting I can remember in eight years of going to such meetings. The previous Minister was completely unprepared in her brief; she shared the all-party group’s concerns but had no solutions whatever to address them. That meeting was attended by 20 MPs and peers, with 20 others giving their apologies. The number of Members who take part in the frequent debates on this issue shows the level of concern among all parties about it.

This is a great injustice, which successive Governments have failed to address; in so far as they have attempted to address it, they have done so in a miserly and bureaucratic way. An inquiry has been refused, and responsibility has been refused, by Government, and those things are to be deplored.

In the very few minutes that I have to speak, I wish to introduce one additional topic. My right hon. Friend the Member for Wythenshawe and Sale East has rightly framed this debate in terms of contaminated blood and hepatitis C; understandably, the good briefing from the Haemophilia Society has done the same. However, the briefing also refers to co-infection with HIV.

When the Minister looks at these issues, I urge her not to forget those who have been infected, or co-infected, with HIV as a consequence of contaminated blood products. Of the 1,252 people who have been infected with HIV in this way, 932 have died so far. Among the 322 of those people who are still living, one of them is my constituent, Andrew March, who was contaminated at the age of nine. He is now 39, so his entire life has effectively been ruined. He has been a staunch campaigner. He was the applicant in the judicial review proceedings on this matter, and yet after 30 years he is still waiting for any proper redress.

I feel strongly that this issue is the responsibility of Government, and the hon. Member for North Devon (Sir Nick Harvey) was also clear on that. To some extent, the admission of liability is not the central question. The previous Minister wrongly said that the reason why proper payments were made in the Republic of Ireland was that there was an admission of liability. In fact, payments were being made there before the admission was made, as the hon. Member for Foyle (Mark Durkan) pointed out very clearly, having a clear knowledge of what happened; the hon. Gentleman is not here today, but he has done a lot of work on this issue.

We do not need to get tied up in those matters of liability, but personally I would like an admission of responsibility from the Government, because, for some of the reasons that have already been given, much more could have been done. In the 1970s and 1980s, there was a delay because of a failure to see what medical knowledge was showing about contamination. Even when that contamination was known, there was a failure to treat products so that they were no longer harmful.

My final point is about funding. Reference has already been made to the Skipton Fund in relation to hepatitis C, but there are similar problems with the Macfarlane Trust. I have been told that it is effectively falling apart; that the review of its probity, of its success, has been ignored; that there is very poor communication between it and sufferers; and that it is underfunded.

The result of all that is that people die. People die because they are not getting sufficient treatment or sufficient medication that they need to deal with their conditions. HIV is a treatable condition, but for those who have serious health problems it can still be fatal and that issue is not being addressed. In the short term, I ask the Minister to look at both the lump sum and ongoing support payments, but in the longer term what we need is a full and final settlement.

I suspect that many Ministers, particularly junior Ministers, wonder how much difference they have made on a lot of issues when they finally leave their posts. However, I also suspect that this is one discrete area, with a defined number of victims, where the Minister could make a difference if she chooses to put her mind to it, in a way that some of her predecessors have not.

[Jessica Morden (Newport East) (Lab)]

A Welsh member of the all-party group on haemophilia and contaminated blood recently told me that every meeting and correspondence that it has with the Government ends with the words, “The Minister will look into this.” Does my hon. Friend agree that a promise really to get to grips with this issue now would be incredibly important, not least for Colin—aged seven, from Newport—who died in my constituency from having contaminated blood? We must also remember the very young victims whom we are campaigning for.

[Mr Slaughter]

I am grateful to my hon. Friend. I know that those views are shared by many Members on both sides of the House.

We are probably not looking for answers today, although we will listen to what the Minister has to say. She has heard clearly that we can do more than just look into the issue: we can achieve results for the remaining victims of these terrible diseases and their families.