ME: Treatment and Research

Jim Cunningham Excerpts
Thursday 21st June 2018

(5 years, 10 months ago)

Westminster Hall
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Carol Monaghan Portrait Carol Monaghan (Glasgow North West) (SNP)
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I beg to move,

That this House has considered myalgic encephalomyelitis treatment and research.

It is a pleasure to serve under your chairmanship, Mr Rosindell. I thank the Backbench Business Committee for giving Members the opportunity to hold this debate.

It is estimated that around a quarter of a million people in the UK suffer from myalgic encephalomyelitis—ME. It costs the UK around £3.3 billion per annum. Although the exact cause of the disease is unknown, numerous patients report that their ME developed following a viral infection. ME is characterised by flu-like symptoms that can vary in severity from headaches and muscle aches to debilitating pain, extreme sensitivity to light and sound, and memory and concentration problems. For some, even touch is intolerable and they require tube feeding. Despite the number of people affected and the devastating effect of the disease on sufferers and their families, it is very much a hidden illness, which is characterised by some as yuppie flu and misunderstood by doctors, the public and politicians alike.

Jim Cunningham Portrait Mr Jim Cunningham (Coventry South) (Lab)
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The hon. Lady is quite right that doctors do not research this enough and do not have adequate training to suss it out, for want of a better term. More importantly, less than 1% of children are badly affected. Does she agree that, very often, employers do not understand the illness?

Carol Monaghan Portrait Carol Monaghan
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I agree entirely with the hon. Gentleman. It is a tragic situation when children are not able to attend school and social services become involved because they consider there to be a problem with those children’s care.