Puberty Suppressants Trial
Jim Shannon Excerpts(4 days, 13 hours ago)
Commons ChamberRead Full debate Read Hansard Text Watch Debate Read Debate Ministerial Extracts
Urgent Questions are proposed each morning by backbench MPs, and up to two may be selected each day by the Speaker. Chosen Urgent Questions are announced 30 minutes before Parliament sits each day.
Each Urgent Question requires a Government Minister to give a response on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
Madam Deputy Speaker (Ms Nusrat Ghani)
We need a short question. I call Jim Shannon.
Jim Shannon (Strangford) (DUP)
May I thank the Secretary of State for all that he does? He deserves credit. A mother from my constituency phoned me this morning and said:
“Why is money being spent on this pathway when my child has been waiting for clinical support for 3 years and the waiting list is so long she may be moved to adult treatment? Why is Government prioritising the tiny few over the many? With our children’s mental health services at breaking point and parents at their wits end trying to get their child diagnosed”,
how do the Government look in the eyes of the parents with rare diseases whose drugs are not funded by the NHS when they are funding this trial?
Wes Streeting
I say respectfully to the hon. Gentleman, whom I like very much, and to his constituent, that it is because I have also had to look into the eyes of people in this community who have not received the right care and seen the deleterious impact it has had on their mental health and wellbeing. I have had to deal with parents who have suffered loss and bereavement. We have to make sure that we are doing the right thing by everyone. This should not be an either/or choice.
Palliative Care: North Derbyshire
Jim Shannon Excerpts(4 days, 13 hours ago)
Westminster HallRead Full debate Read Hansard Text Read Debate Ministerial Extracts
Westminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
Mr Perkins
I absolutely agree with my hon. Friend. It is important to say that a half-hour debate is primarily an opportunity for a single Member to raise something with the Minister, and to get a ministerial response, but as my hon. Friends the Members for Derbyshire Dales (John Whitby) and for Bolsover (Natalie Fleet) made clear, it is an issue that is felt incredibly passionately right across the north Derbyshire community. My hon. Friend the Member for North East Derbyshire (Louise Sandher-Jones) would also have been here if she was not on Ministry of Defence duty in Gibraltar. It is an issue that many of us feel passionately about.
It is important to get across that, in those meetings, we wanted to establish what exactly the ICB’s current funding was paying for and how that benchmarked against the overall level of funding that hospices were receiving in other areas, and to get an agreement on an interim level of funding to enable the hospice to continue providing the current level of care while a more detailed investigation into the current cost of care was commissioned.
Jim Shannon (Strangford) (DUP)
I commend the hon. Gentleman for securing this debate. I spoke to him beforehand to suggest a helpful intervention. He rightly said that fundraising is important for the hospice, but NHS funding never covers more than a fraction of the cost. There are four distinct hospices in Northern Ireland that provide instrumental support in terms of end-of-life care for those who require it. Does the hon. Gentleman agree that there must be a national minimum NHS funding level for hospice care to ensure that services across this whole nation are not depleting as a result of lack of funding?
Mr Perkins
I absolutely agree. One of the frustrations that many of us in Derbyshire have felt is that there is no clarity on what a reasonable level of funding is and what the expectation is. There are rumours flying left, right and centre. In the middle of all this, the staff, the patients and the fundraisers are left wondering who to believe and what the situation is. I hope that, when we hear from the Minister, we will learn more about that.
In the summer, the ICB produced a comparison with NHS-funded care in the south of the county in an effort to show MPs that Ashgate hospice was too expensive, but has now disowned that comparison. After several months of pretty unsatisfactory discussions at which the two sides never reached a settled position even on what was currently being spent, the move from Derbyshire to a three-county ICB model saw a sudden withdrawal by the ICB of any suggestion of interim funding, forcing the hospice to go ahead with plans to make redundancies.
Our hospices receive an average of just a third of their funding from Government via the NHS and are reliant on fundraising for the rest. The Government contribution fell dramatically under the 14 years of the previous Government, leaving the gap for charitable hospices to make up even larger. Year on year, hospices such as Ashgate have expended any fat in reserve and are now faced with intolerable financial pressures. In today’s debate, I am seeking to make the case for a more equitable funding settlement for all hospices to gain greater clarity about the particular situation in Derbyshire and see whether anything can be done to stave off these terrible service closures and nurse redundancies in an institution that provides outstanding palliative care.
Let me touch on the national context. Hospice UK published research last month showing that 57% of hospices ended the last financial year in deficit, with 20% recording a deficit of over £1 million. That is actually a slight improvement on the staggering 62% of hospices that recorded a deficit a year before, thanks to the emergency £100 million of additional funding provided by this Government. A health system that relies on a sector so chronically underfunded that 57% of hospices are in deficit to provide care is simply not functioning. The Government are right to make it a priority to assist hospices such as Ashgate to get back on their feet.
Although it is true that this crisis evolved under the previous Government and sat there on the ballooning list of things to do when this Government came to power, many hospices like Ashgate had spent year after year dipping into their reserves and had no fat left to cut when the Government’s welcome increase in funding was accompanied by the rising employer’s national insurance, the minimum wage increases and the NHS pay increase, which is obviously relevant to the wider health community. Many hospices are on the brink. I join the call of many other MPs from across the country for a more generous funding settlement that recognises the crucial role that hospices play in our health system.
Turning to the local situation, it is immensely frustrating to all the Derbyshire MPs, to staff, to unions and to local fundraisers that even at this stage there seems to be a lack of clarity about the current cost of care and how that benchmarks against hospices nationally. A letter I received yesterday from the ICB repeats the suggestion that it has offered to commission an independent review and provide some financial mitigation linked to specific and agreed service mitigations, funded up to £100,000. Indeed, the ICB repeats its view that those financial investigations will be necessary if sustainable solutions are to be found to funding palliative care. Ashgate’s view is that there is no lack of clarity about what money is being spent on, and that it demonstrated that to the ICB’s director of finance at a recent visit.
The situation seems largely unchanged since late October, but many staff face the threat of redundancy, and in the run-up to Christmas some have reluctantly and heartbreakingly chosen to leave the hospice. For any member of staff in any profession, a job being under threat before Christmas would be deeply worrying, but it is important to stress that nurses in the in-patient wards at Ashgate hospice are not just any members of staff. As we have heard from my hon. Friends the Members for Bolsover and for Derbyshire Dales, they provide support for patients and families at their very darkest hour, when all else is lost and all that remains is the comfort provided by the knowledge that a dying loved one is comfortable and cared for in a beautiful, high-quality and caring environment. The emotional strain on those nurses is huge, and the public empathy and affection for them is widely felt. Their professionalism and compassion is renowned, and the effect of the threatened job cuts on them has been devastating.
Although in-patient wards deal with far fewer patients than out-patient and at-home services, many see them as the front door of Ashgate hospice, but they face the biggest cuts: there is a plan to reduce palliative care beds from 15 to six. In response, there has been an outpouring of support for Ashgate hospice from the community. Nearly £250,000 was raised in just two weeks, including an incredible £50,000 from the owner of a Chesterfield-based business, Peter Kelsey. Those funds will allow the hospice to keep open two additional beds for another six months, and care for perhaps another 25 patients near the end of their lives.
Hundreds of my constituents have contacted me and my colleagues to voice their concerns about the situation at Ashgate hospice, and many have also written directly to the ICB to make the case. Despite the claims and counter-claims, there is now widespread distrust that urgently needs clearing up. The ICB continues to imply that Ashgate services are too expensive, although there has been no formal update following the director of finance’s visit to the hospice on 1 December. Staff and unions have been left confused and concerned about the implication that the finances are not straightforward, and remain frustrated about the process. They have questions about whether every step has been taken to reduce costs.
Staff at Ashgate have been alarmed at communications coming out of the ICB, which they believe undermine their reputation for professionalism and financial prudence. If trust in Ashgate’s ability to run its operations is diminished, it will have grave consequences for future fundraising.
What is not in question is that the care that Ashgate provides is outstanding and that, as of this new year, dozens of north Derbyshire’s most gravely ill patients, who would previously have been able to obtain a bed at Ashgate, will die either at home in less comfort, with family members put in intolerable situations, or in an acute bed in the local hospital sector, possibly at greater cost and in less comfort than was the case last year. I want all my constituents to receive the best end-of-life care possible, so it is hugely disappointing that palliative care patients in north Derbyshire will lose access to those beds, and that nurses at the hospices will be worrying about whether they still have a job.
I want to shed light on the distressing and unacceptable situation of service cuts and redundancies at Ashgate hospice, and I seek further clarity and transparency about the funding situation for palliative care in Derbyshire to see whether anything can be done to hold at bay cuts to services at Ashgate.
Although charitable income will always play a vital role in hospice care, allowing hospices to deliver holistic care that goes way beyond NHS provision, hospices need fair and consistent Government funding, which needs to be transparent and clearly linked to contracts. Crucially, it must reflect local need. Whether a person lives in Chesterfield, across wider north Derbyshire or elsewhere in the country, they and their family should have access to quality palliative care when they need it most. I would therefore appreciate hearing the Minister’s response on several points.
First, will he join me in lamenting the devastating cuts at Ashgate hospice? Does he agree that this situation, whereby in-patient palliative care services in north Derbyshire are being reduced, is unacceptable? Will he or his office intervene to ensure that Ashgate hospice and the local ICB reach a transparent and agreed position on the current funding situation, and examine how that position compares with national expectations about funding of palliative care?
More broadly, will the Minister set out the Government’s plans to ensure sufficient and sustainable funding for hospices in the future? Can he confirm whether he has any concerns about the cost of care at Ashgate hospice? If he cannot, will he get this matter on the public record, so that people across north Derbyshire can be confident that the money they have raised through fundraising—hard-earned money—is being prudently spent?
Does the Minister agree that, six months after the beginning of discussions locally, it is completely unacceptable that there is still a lack of agreement about exactly how much is being spent on care by the ICB and how much commissioned care the ICB is funding? Can he do anything to provide clarity about this situation?
Since 1988, Ashgate hospice has provided exemplary care to thousands of dying patients in north Derbyshire. It must go on. Its nurses deserve better than to lose their jobs and to worry about whether something else could have been done. I implore the Minister to ensure that the hospice sector is given the support it needs to play its crucial role, and that locally in north Derbyshire every avenue is explored to save jobs and beds at this wonderful institution.
Transgender People: Provision of Healthcare
Jim Shannon Excerpts(5 days, 13 hours ago)
Westminster HallRead Full debate Read Hansard Text Read Debate Ministerial Extracts
Westminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
Rachel Taylor
I will make some progress, if I may. I am part-way through something that a trans person said, so it is not an appropriate time to intervene. They went on to say:
“I have personally used alcohol, cannabis, cocaine and self-harm to survive the last year and a half since referral and I have now been told I will have to wait several more months because of the backlog.”
Jim Shannon
I am reminded of last year when a mother came to me back home. Her son wanted to transition. The mother was under real pressure, as was the young boy. We tried to help as much as we could through the health system back in Northern Ireland. Does the hon. Lady agree that there is a journey not only for the young person who wants to transition, but for their parents? Everyone needs support to get them through that difficult transition.
Rachel Taylor
I thank the hon. Gentleman for his helpful contribution. Of course, parents need help and support through this process.
In 2022, a coroner ruled that a 20-year-old trans woman had died in part because of delays in accessing gender-affirming care after two and a half years on a waiting list. Trans people also struggle disproportionately with general healthcare. A third of trans and non-binary people, rising to almost half among people of colour, received no NHS or private support during pregnancy, compared with just 2.4% of cis women. Nearly one in three trans and non-binary birthing parents said that they were not treated with dignity and respect in labour, compared with just 2% of cis women.
According to TransActual, 60% of trans people surveyed had been refused care because they were trans. Hundreds reported that their GP refused to prescribe hormones, even when they had been recommended by NHS gender clinics. Participation in cervical screening is also significantly lower, with trans and non-binary people estimated to be up to 37% less likely to be up to date with appointments. This Labour Government are the right Government at the right time to tackle these issues.
I congratulate the Minister and the Secretary of State on the HIV action plan that was announced this month. I remember vividly the stigma and shame of an HIV diagnosis in the ’80s and ’90s, which often led to suicide, as the alternative was a death sentence and a life spent facing discrimination and abuse. This HIV strategy is groundbreaking and sets us on the right path to end new HIV transmissions. I applaud its commitment to ensuring that all prevention efforts target underserved populations, including trans people.
The Government pledged in their manifesto to ensure that trans people receive the healthcare and support they need. I welcome the review being led by Dr David Levy into adult gender services, and I hope it will bring forward strong recommendations to cut waiting lists, expand access and deliver timely, appropriate and sensitive care. I know that trans people and LGBT organisations have been awaiting its publication, so I ask the Minister: when can we expect Dr Levy’s review to be published?
In April 2025, the Secretary of State also commissioned NHS England to undertake an LGBT+ health evidence review. That review seeks to identify the barriers to healthcare for all LGBT+ people, from examining the poor treatment of lesbian couples seeking IVF treatment to looking at insufficient mental health support for LGBT+ people. The review is highly anticipated by the whole community. Therefore, I ask the Minister: is Dr Brady’s review still due to conclude in January 2026, and when can the public and parliamentarians expect to see it?
Although I applaud the Government’s work to improve healthcare for transgender adults, I know that reviews alone will not fix the problem. We need to know that these reviews will be followed by action. I know that getting this right matters to the Government, so I ask the Minister: what steps will the Government take to reduce discrimination and transphobia in healthcare settings?
Will the Minister commit to mandatory training for clinicians on the respectful and appropriate treatment of trans patients? Will the Government commit to significant sustained investment in trans healthcare, with reducing waiting lists and expanding local provision as urgent priorities? We must build a healthcare system rooted in science, not stigma, and in compassion, not fear. We must decide whether we want to be a society that listens to people, supports them and gives them the tools to thrive.
There is one final point I would like to make. Those who know me will know that I first got involved in politics in the 1980s when Thatcher was introducing section 28. That policy was intended to make people like me feel shame about who we were, and to reverse the progress that previous generations had fought for. I got into politics to fight that cruel law and everything that it represented.
I am a gay woman who grew up in the ’80s, so I know what it feels like to be told, “It’s just a phase. Maybe you’ll grow out of it. Maybe it’s not really who you are. Maybe there’s just something wrong with you,” so believe me when I say that I have heard it all before. LGBT people have heard this all before. We know what bigotry is when we see it, and we know that bigotry is back. Let us make no mistake: the people who are organising against trans people now are no different from the people who campaigned for section 28. They want to present parts of our movement as a danger to society and push them to the margins. I will never let that happen.
To all those in this room and in this House who are totally convinced that trans people are not real, that they are making it up, that it is TikTok, Reddit or foreign TV that has turned them trans, that somehow this is some kind of new phenomenon, let me assure you all that I have had trans friends for as long as I have been out. Trans people have always and will always exist.
To all those in this room who used to say warm things about trans people back when it was popular to do so but who decided when the wind changed that they would blow in the other direction, and to the Conservatives who in 2018 introduced an LGBT action plan promising trans equality but who now are quite happy to laugh along with cruel mocking jokes about trans people in front of the mother of a murdered trans teenager, we see you, and much like history condemns section 28, history will condemn you too. Meet trans people, talk to them, understand what they are going through and believe them, then we can all stop fighting our toxic culture wars and get back to doing what we as lawmakers are elected to do: make things better for every single one of our constituents—not some of them, all of them.
NHS: Winter Preparedness
Jim Shannon Excerpts(6 days, 13 hours ago)
Commons ChamberRead Full debate Read Hansard Text Watch Debate Read Debate Ministerial Extracts
Urgent Questions are proposed each morning by backbench MPs, and up to two may be selected each day by the Speaker. Chosen Urgent Questions are announced 30 minutes before Parliament sits each day.
Each Urgent Question requires a Government Minister to give a response on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
Wes Streeting
There are many examples of great community-based vaccination initiatives. Many of those initiatives are supported by faith-based organisations, which is really important given the vaccine hesitancy in some of those groups. I do not believe that people are hard to reach; I believe that public services often do not try hard enough, and our approach is to do so. We will reflect on our success this year and seek to build on it for future years.
Jim Shannon (Strangford) (DUP)
I thank the Secretary of State very much for his answers—the BMA is losing public support, and clearly the Secretary of State is gaining it. I wish him well in his role.
Official figures show that flu cases in Northern Ireland nearly doubled to 954 in recent weeks, and flu-related admissions also doubled, with hundreds being treated in hospitals. There are issues with the supply of the flu vaccine, to the extent that people are unable to get their jabs in pharmacies and GPs are only offering them to select groups. I know that the Secretary of State is in regular contact with the Minister in Northern Ireland, Mike Nesbitt. What discussions have taken place to increase the supply of the flu vaccine and ensure it is accessible to those who need it?
Wes Streeting
I thank the hon. Gentleman for his question. Given that politicians are somewhere below traffic wardens and estate agents in terms of public popularity at the moment, it is quite an achievement for the BMA to have found itself even less popular with the public, but I think it has made very clear through its actions and rhetoric this week that it does not care about public opinion. In fact, the BMA does not seem to care much about the public at all.
The hon. Gentleman is quite right that we need to make sure we have a good supply of vaccine available across the whole of the United Kingdom. We work closely with the devolved Administrations, and I speak regularly with my Northern Ireland counterpart. Should the Northern Ireland Executive ever need support or assistance, we are always willing to provide it wherever we can.
Sudden Cardiac Death in Young People
Jim Shannon Excerpts(6 days, 13 hours ago)
Commons ChamberRead Full debate Read Hansard Text Read Debate Ministerial Extracts
Chris Vince
I do agree with my hon. Friend. Clarissa was a young girl who was very involved in sport. There is no reason why young people with these conditions cannot continue to take part in sport, as long as they are aware of their condition and able to take the necessary precautions.
Hilary said that her daughter
“put everything into her studies, the friends she made here and the staff that supported her along the way including while she was on her year abroad. We are grateful for the happy times she clearly took away with her to the next life.”
When I applied for and secured this Adjournment debate, what really struck me was the number of people who came up to me and shared their personal experiences. In fact, only this morning, two Doorkeepers shared their experiences of this condition. I pay tribute to one of those Doorkeepers, Kieron, whose son Connor—who was born on 13 January 1994—died in 1995 at only 14 months old. When the post-mortem was conducted, it was found that he died of sudden cardiac death through a thickening of a heart muscle. That was over 30 years ago, but I know from talking to Kieron the huge impact it has had on his life; he will always carry that loss with him. It is important that we recognise how long we have been aware of these issues, and that it is time to talk about what action we can take.
This morning, I was in my constituency of Harlow, talking to one of our headteachers, Vic Goddard, who is the head of the Passmores co-operative learning community. He spoke about a young boy dying of cardiac arrest during his time as a PE teacher, and feeling so strongly that every school he works in should have a defibrillator. Again, having spoken to some of the staff in this place, I want to emphasise the huge difference that access to a defib can make to survival chances.
Jim Shannon (Strangford) (DUP)
I commend the hon. Gentleman for securing this debate. In the time he has been in this House, he has proven himself to be assiduous, committed and a hard-working constituency MP; I think every one of us is impressed by his efforts in this Chamber and in Westminster Hall, and we thank him for that. Today, he has done his constituents proud, and his constituents should be proud of him, including for how he has presented his case. Well done him.
The British Heart Foundation in Northern Ireland and similar groups have noted that undetected and inherited heart conditions can lead to sudden deaths in young people. That charity has estimated that one person aged under 35 dies every month in Northern Ireland from an undiagnosed heart condition. Does the hon. Member agree that there must be early intervention through screening for heart conditions that could be inherited genetically, to ensure they can be detected and treated earlier? The reason I am supporting the hon. Gentleman is that a young constituent of mine died in the same way he has described. For them and for Strangford, I put forward their case.
Chris Vince
I thank the hon. Gentleman for his intervention and his kind words. He has intervened at the perfect time, because I was just going to go through some of the statistics. Twelve people aged between 14 and 35 die each week in the UK—which obviously includes Northern Ireland—from an undiagnosed heart condition, and as my hon. Friend the Member for Putney (Fleur Anderson) mentioned, 80% of those people show no symptoms, meaning that the first sign is often sudden cardiac arrest. Elite athletes are screened by mandate, but amateur and grassroots athletes are not, despite their facing some of the same exercise-related risks. The NHS currently screens families only after a sudden cardiac death, so Hilary and her family were screened for the condition that took away her daughter’s life, but obviously that is too late for prevention.
Amanda Hack
I thank my hon. Friend for that important intervention. Defibs talk to you; there is no need to be mystified by their use. They are clever bits of kit, and a 999 emergency responder will talk people through the process. I ask everyone please to go and be trained, because this is really important stuff.
Jim Shannon
I thank the hon. Lady for making that point, and I thank the hon. Member for Leeds South West and Morley (Mark Sewards) for his intervention. Throughout my constituency and indeed Northern Ireland, defibrillators have been supplied to every school and community centre. The communities in Ards, Ballynahinch and the Ards peninsula have defibrillators in their city and village centres. We have an organisation called Ards Peninsula First Responders, which provides speedy training every month for those who want to learn how to use a defibrillator. On our defibrillators in Newtownards and elsewhere is a small diagram—an ABC for how to use them. I have not had to do this, but I have been told by First Responders, “If you follow these three directions, you will be able to use a defibrillator as well as anyone else.” Does the hon. Lady have the same opinion?
Resident Doctors: Industrial Action
Jim Shannon Excerpts(1 week, 4 days ago)
Commons ChamberRead Full debate Read Hansard Text Watch Debate Read Debate Ministerial Extracts
Wes Streeting
My hon. Friend has so much expertise on health and on employment rights and trade union law, and he is right. That is why this Government have chosen a different approach. We want to work with all our trade unions, we want to work with the BMA, and we can still do so if we hit the reset button and each of us commits to building a more constructive relationship.
Jim Shannon (Strangford) (DUP)
I congratulate the Secretary of State and I fully support his stance on the resident doctors’ strike action. “Stand firm” is the message that I send to him, and I ask that God bless him and his team.
This will be the 14th strike since March 2023 and it is expected to cause major disruption. With the recent influx of flu, some wards have 70% occupancy. That could put the healthcare system under extreme pressure. Accident and emergency in the Ulster hospital, Belfast city hospital and the Royal Victoria hospital are under intense pressure. If they did not have the doctors from India and Africa, we would be under real pressure. What discussions has the Secretary of State had with the BMA about the impact this strike will have on emergency care and, ultimately, on getting patients back home before Christmas?
Wes Streeting
I am grateful to the hon. Gentleman for his support. He is right to raise concerns about the impact on urgent emergency care. We will do our best to keep the show on the road, but I cannot make guarantees in the way that I would want to about the quality or timeliness of care. I place on record my thanks to my counterpart in Northern Ireland, Mike Nesbitt, as well as to my counterparts in Wales and Scotland, for the constructive approach that they have taken in making this possible.
Mental Health Bill [Lords]
Jim Shannon ExcerptsMonday 8th December 2025
(1 week, 6 days ago)
Commons ChamberRead Full debate Mental Health Act 2025 View all Mental Health Act 2025 Debates Read Hansard Text Watch Debate Read Debate Ministerial Extracts Amendment Paper: Commons Consideration of Lords Message as at 8 December 2025 - (8 Dec 2025)
The Minister for Care (Stephen Kinnock)
I beg to move, That this House agrees with Lords amendments 19B and 19C.
It is a privilege to return to the Mental Health Bill in this House for what I hope will be the final time in its passage. Thanks to the constructive and collaborative approach from Members across this House and noble Lords in the other place, we have been able to reach an amended and improved version of the Bill so that we can begin our vital work on the code of practice. In particular, I pay tribute to my ministerial colleague, Baroness Merron, for her outstanding work on this Bill.
The Bill sits alongside the 10-year plan, which sets out our ambitious reform agenda to transform the NHS and make it fit for the future. We know that there is much more to do to improve outcomes, to tackle unacceptable waiting times for care and to fully meet the needs of the population in a tailored, personalised and timely way. We will overhaul how mental health support is delivered in England to drive down waits and improve the quality of care, backed by a whole-of-society approach to preventing mental illness and to intervening early.
Last week, we announced the launch of an independent review into prevalence and support for mental health conditions, attention deficit hyperactivity disorder and autism. We are launching this review to understand the rises in prevalence and demand on services, to ensure that people receive the right support at the right time and in the right place. People who need it will access high-quality and compassionate mental health support at an earlier stage, and more people will recover or live well with mental illness.
We will go further to improve the quality and transparency of care, working with experts and people with lived experience. We will publish a new modern service framework for severe mental illness, setting consistency in clinical standards across the country so that patients and families get the best-quality, evidence-based treatment and support.
Jim Shannon (Strangford) (DUP)
First, I welcome what is coming forward. I ask for clarification on something that has been brought to my attention. I seek the Minister’s advice and support. Lords amendment 19B relates to the appointment of a nominated person where no local authority holds parental responsibility for the patient. Does the Minister agree that there must be more emphasis on the voice of the child in the legislation, and that the child should have some preference when it comes to representation?
Terminal Illness: Mental Health Support
Jim Shannon Excerpts(2 weeks, 4 days ago)
Westminster HallRead Full debate Read Hansard Text Read Debate Ministerial Extracts
Westminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
Jim Shannon (Strangford) (DUP)
It is always a pleasure to serve under your chairship, Sir Jeremy. I want to say a big thank you to the hon. Member for Altrincham and Sale West (Mr Rand) for setting the scene so very well. He obviously has the necessary compassion and understanding. We recognise the pain that he referred to, which is suffered by many across the whole of the United Kingdom.
I am my party’s health spokesperson, so these issues are important to me. The lasting mental impact of a diagnosis of a terminal illness must never be underestimated. Definitions can differ, but have more or less the same meaning. Terminal illness is defined as a progressive, incurable disease not expected to be cured, where medical opinion is that death can reasonably be expected within roughly a year. I know there are exceptions. Some people live for six weeks and some for six years after getting a diagnosis. When someone is given a terminal illness diagnosis, they right away look at their whole life and those around them. I cannot imagine the feeling of being told that news and where the mind must go to. The reality is much more frightening than the thought.
A study by Marie Curie found that nine in 10 frontline staff supporting dying patients reported that patients were lonely—I think that was referred to earlier. A similarly high proportion report loneliness among end-of-life carers. The same report shows that loneliness at the end of life is strongly linked to worse physical health and mental ill health.
I remember a couple of occasions when I had to go and see people I knew who had been given a terminal illness diagnosis. One lady came back from holiday and was not feeling her best, so she went to see the doctor. The doctor told her she had liver cancer, and that lady did not last six weeks. I pay tribute to all the charities that do great work, Marie Curie in particular. The people are so compassionate, understanding and loving, and are always there when people need them most.
Queen’s University Belfast in Northern Ireland stated that there are high levels of death illiteracy in Northern Ireland, meaning that those diagnosed with a terminal illness often have a true lack of understanding about how to access end-of-life and bereavement support, because they are so consumed—I am speaking in a generic way—by what is happening in their life and around them. This can be deeply worrying in terms of the mental turmoil of individuals and the people caring for them in their darkest times. There is a belief in taking the pressure off and knowing what the next steps are. More work must be undertaken to ensure there are no barriers to accessing care and to ensure people are aware of their options for end-of-life and palliative care.
There is no doubt whatsoever that restricting such information will worsen mental health symptoms. That is the nature of life. A person of faith will realise they are only here for a short time and they are going to a better place. For those who do not have faith, perhaps the Minister could suggest that people with a terminal diagnosis could talk to faith ministers for advice and succour.
We must also, I believe, do everything to empower patients and their families. It is not just the person who has been diagnosed with the terminal illness who is travelling on that path; the whole family is travelling with them, and they suffer, because their lives focus on what is happening as well. We must ensure that they receive the best care and access all available support, not only from our wider healthcare trusts, but from the communities in which they live.
I will conclude, as I am conscious of the time and of others wanting to speak. If we are serious about compassion and genuine care, we must be serious about better mental health support for those living with terminal illnesses. Whether someone has faced advanced cancer, motor neurone disease, heart failure or chronic respiratory illness, they deserve more than medication and medical charts; they deserve the highest emotional support and compassion and a reassurance that they are not alone. I look forward to seeing what more we can do to be better. I look forward very much to the response, from a Minister who understands the issues and who can give us the succour and support that we need.
Sir Jeremy Wright (in the Chair)
Order. I am afraid that we will now need to suspend as the Division is active. I will suspend the sitting for 15 minutes for the first Division and for 10 minutes for any subsequent Divisions. I gather that there may be several Divisions, so I apologise to the Minister and all other Members who will have to wait.
Jim Shannon
On a point of order, Sir Jeremy. We have 15 minutes to go and vote for the first Division. I am not telling you what to do, but if we need only two minutes, can we conclude the debate? There will be four votes; the first will take 15 minutes, and the other three will take 10 minutes each, which means it will be 45 minutes before we can come back.
Sir Jeremy Wright (in the Chair)
I do not want to compress the debate, as I appreciate it is a very sensitive subject. If the Minister can complete what he has to say in less than a minute, I will allow him to do so. If he needs longer, I will allow that after the Divisions.
Pandemics: Support for People with Autism
Jim Shannon Excerpts(2 weeks, 5 days ago)
Westminster HallRead Full debate Read Hansard Text Read Debate Ministerial Extracts
Westminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
Jim Shannon (Strangford) (DUP)
I commend the hon. Gentleman for bringing this issue forward. I always try to be helpful by mentioning some of the things we have done in Northern Ireland, and the Minister may find it helpful to know that many universities, including Queen’s University Belfast and Ulster University, offer work-based support for students with autism to help them navigate placements and internships in a way that assists them in preparing for future employment. It is really important that there is face-to-face activity. Does the hon. Member agree that, should we experience another pandemic-like event, there must be more focus on ensuring that support is still available and that the employment opportunities and health of people with autism are not hindered because they cannot access the support they need? Queen’s University and Ulster University did that, and they did it well.
Jack Abbott
The hon. Gentleman is absolutely right, and I will come to some of that in a moment. I pay huge tribute to those who were working in Northern Ireland at the time. The pandemic was worldwide and the response hit all parts of our communities.
The years of the pandemic were very difficult for many people, but for people like Ivan they were deeply and profoundly traumatic. Ivan still bears the scars of that time. He lives with post-traumatic stress disorder and continues to experience flashbacks. He has not left the house at all in four years, and to this day the TV stays off. I will be really blunt: Ivan and those like him were betrayed by the previous Conservative Government. They utterly failed him, along with so many other autistic and neurodivergent people.
Children of Alcoholics
Jim Shannon Excerpts(3 weeks, 4 days ago)
Westminster HallRead Full debate Read Hansard Text Read Debate Ministerial Extracts
Westminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
George Freeman (Mid Norfolk) (Con)
I beg to move,
That this House has considered the children of alcoholics.
It is a great pleasure to serve under your chairmanship, Mrs Harris, particularly on this day, when there are other events going on in Parliament. I am grateful to colleagues from all parties who have come to support this debate, and to the Minister on what I know is a very busy day for his Department.
Today is a chance to speak on behalf of the children of alcoholics. They are the children who suffer in silence around our country, and sadly there are now many of them; nearly 2.5 million children live with one or both parents suffering from serious alcohol dependency or abuse. It is my great privilege, standing here today as chairman-elect of the all-party parliamentary group on children of alcoholics, to introduce this debate and formally launch our campaign across both Houses and all parties for this Parliament to take forward the work of the National Association for Children of Alcoholics.
The APPG has been brilliantly and ably led by my colleagues Jon Ashworth and the right hon. Member for Birmingham Hodge Hill and Solihull North (Liam Byrne), who have passed the baton to me now that I am no longer in government. As a freelancer, and the deputy chair of the Science, Innovation and Technology Committee, I am free to speak without fear or favour. [Interruption.] I can hear the hon. Member for Strangford (Jim Shannon) saying that I have always spoken without fear or favour.
I start by saying that there are many children of alcohol in this great Parliament. For many children, it is a terrible trauma of silent suffering from which they never really escape. It also drives into many children an extraordinary ability to take on responsibilities too young, as well as tasks and duties that should really fall only to adults, and it often engenders a drive to make a difference. We see 11, 10, nine or eight-year-olds face things that nobody should have to cope with, let alone a lonely child carer. It is perhaps not surprising that much of the drive that lies behind many people in this Parliament comes from some of those experiences, whether of alcohol or other addictions.
Jim Shannon (Strangford) (DUP)
I commend the hon. Gentleman; we spoke about people who have lived with this before the debate, which he might refer to, and I was very moved by what he told me. Across Northern Ireland, there are some 40,000 children living with parental alcoholism, and there has been a rise specifically in alcohol deaths. Does the hon. Gentleman agree that there must be more focus, and that antenatal and health visitors should routinely screen parents who are dependent on alcohol to not only support the parents but ensure that the children are protected in the home? I have a friend who grew up with this, and I always remember their story—it has stuck in my mind all my life.
George Freeman
I agree with the hon. Gentleman. I want to reassure the Minister that I am not here to hit him with 20 demands—that will come in due course. Today is really a chance to raise the flag of the all-party parliamentary group. The hon. Gentleman has mentioned one of the things in our manifesto for change, and I am grateful to him for raising it.