Oral Answers to Questions

Josh Dean Excerpts

Tuesday 22nd July 2025 Commons Chamber

[Ashley Dalton]

We are already delivering. The hon. Lady is absolutely right to identify that a number of plans are being brought forward. We take this matter very seriously, and we want to ensure that we get it right. We plan: we plan so that we perform effectively, and we plan for success. The national cancer plan will be coming later this year, and I am sure that we will be able to outline a timetable for all other plans. I assure her that planning is not doing nothing; planning is making sure that we get this right and that we deliver.

[Josh Dean (Hertford and Stortford) (Lab)]

9. What steps he is taking to increase metachromatic leukodystrophy screening provision for infants.

[The Parliamentary Under-Secretary of State for Health and Social Care (Ashley Dalton)]

I thank my hon. Friend for raising this issue and congratulate his constituent David Kiddie on the 190-mile walk he completed earlier this year to raise awareness and funds for those with MLD and their families. The Government are committed to listening to those with MLD and their families and acting with compassion and care to support them. The UK National Screening Committee, which advises the Government on all screening matters, is consulting on the outcomes of an evidence review looking at whether to screen for MLD.

[Josh Dean]

In 2024, two-year-old Lily Stock was diagnosed with metachromatic leukodystrophy, a rare and progressive disease that will, in her family’s words, “slowly take Lily away”. Libmeldy, a lifesaving gene therapy, is available through the NHS, but I understand that it must be administered before symptoms develop. Sadly, that means it is too late for Lily to benefit from the treatment. Emily and Sean, Lily’s parents, are campaigning for MLD screening to be added to the heel-prick test on newborns, so that MLD can be identified early and treated effectively and no family will have to go through this devastating experience. Will the Minister and her officials look into adding MLD screening to the heel-prick test, and will she and the Secretary of State join me to meet Lily’s family and hear their story at first hand?

[Ashley Dalton]

I thank my hon. Friend for raising this matter. Lily’s story really lays bare the heartbreak that rare diseases can bring and the vital role that early diagnosis can play. I am happy to meet my hon. Friend and Lily’s family. May I suggest that we meet when the UK National Screening Committee has completed its review, so that the Government have received advice on this important matter? We can then discuss that advice together.

--- Later in debate ---

[Wes Streeting]

I can certainly give the right hon. Gentleman the assurance that we are looking right across NHS estates to make sure we are making best use of them, particularly in the context of neighbourhood health. I have heard the case he has made about how neighbourhood health services could be provided on that site. I hope commissioners have heard the case, but if not I will make sure that they do and that he gets the relevant meetings he needs.

[Josh Dean (Hertford and Stortford) (Lab)]

T4. My ADHD—attention deficit hyperactivity disorder—diagnosis in May this year helped to answer questions about my life and to put support in place to improve it, but we know that over 300,000 children are waiting for an assessment and that untreated ADHD affects educational attainment, employment prospects and health outcomes. Will the Secretary of State set out the Department’s plans to improve access to assessments and treatment for ADHD? Will he work across Government to develop a long-term, joined-up approach to ADHD care?

[The Minister for Care (Stephen Kinnock)]

I commend my hon. Friend for bringing his personal experience to bear on this important matter. NHS England’s independent ADHD taskforce is looking at how to provide support for people with ADHD and how to improve it. We are considering the taskforce’s interim report and look forward to the final report later this year. The taskforce is joined up with expert groups established across Government to provide advice on meeting the needs of neurodivergent children and young people in education, and on boosting neurodiversity inclusion at work.