(1 day, 11 hours ago)
Commons ChamberThe Chair of the Health and Social Care Committee is absolutely spot on. I am relieved to report that I was doing exactly what she mentions only last Friday; I was walking the corridors of Queen’s hospital in Romford. I was there in January as well, seeing the worst of the situation. I have been spending time on the frontline in the places that were under the most pressure, just as I did last winter. I went along, not to look down my nose at people, but to listen, and to see at first hand what was happening, why it was happening, and what we need to do differently. The team at Queen’s hospital can really take pride in what they have achieved, but we have to sustain that progress. Last week, there were no trollies on the corridor, and in February they saved 10,000 corridor hours. That is thanks to brilliant frontline staff and senior clinical leadership on the front door, and we will see that again during strikes.
There is a certain irony about the fact that during resident doctors’ strikes, urgent and emergency care improves, because we have more experienced, senior clinical decision makers in urgent and emergency care. There is something to learn from that. I do not say that to denigrate resident doctors for a moment—they are learning and building their experience, and we do not want to lose that—but we are seeing that improvements can be made, and have to be made everywhere. We have to see this as a priority, because corridor care can never be the safest care, and it is never dignified care.
One thing we have not yet heard is the Secretary of State’s assessment of the motivation of the BMA committee members who are so militantly rejecting a deal that he evidently regards as generous. As he says, they are refusing even to sit down and talk with him. What is behind that? Why are they behaving in what appears to be an unreasonable and extreme way? To what extent does he think they represent resident doctors?
If the committee had ever taken me up on my offer to meet the entire committee, I might be able to answer the question, but since it has never done so, I do not know. It is for resident doctors to decide, based on what I have set out, if the committee’s rejection of this offer is reasonable.
Given the material benefits that the offer would bring to resident doctors in a matter of days—an additional 1,000 jobs and significant pay uplifts—and what that would mean for the next few years, I have to be clear that this is our best and final offer. We cannot go any further. If I may say so, we are at a point where the public would judge that we have gone as far as we can; I think quite a lot of people in the country who are watching would say that we have gone further than we should. I do not take that lightly. Resident doctors should not look a gift horse in the mouth, and I hope that they will make those representations to their committee.
(4 days, 11 hours ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
I thank the hon. Member for his intervention, which was, I believe, made with as much sincerity as the previous intervention.
I believe many children were treated with puberty blockers, among other drugs, before the Gender Identity Development Service programme was closed down. Does the hon. Member know what has happened to all the data from those children who were previously treated, or why it should be necessary to treat any more children with these drugs until enough time has elapsed to enable that data, and the treatment’s consequences, to be verified?
(1 week, 3 days ago)
Commons ChamberI thank my hon. Friend for the excellent work he does as a member of the Select Committee, and reassure him that we are taking the Committee’s letter and advice very seriously. I think he is right to ask us to look again at the 2023 strategy.
I also reassure my hon. Friend that to price gouge or profiteer in this situation would be a totally immoral and irresponsible thing to do. More generally, we are not advising the public to pay for a vaccine. If it is decided that any vaccination is required, that will be offered on the NHS. The menB vaccine is already offered to infants, and the menACWY vaccine, for adolescents and young adults, is free on the NHS. That is the advice. I understand that people may wish to make individual choices, but the advice stands, and I would urge people not to allow themselves to be ripped off by those trying to exploit understandable public anxiety.
I have heard a suggestion that this type of meningitis is more widespread in some countries than in others. Is there any truth in that, and if there is, would there be wisdom in suggesting to young people travelling to the countries concerned that they ought to add the vaccination as a prophylactic against that possibility?
I am not sure about the point of prevalence, but we will look carefully at the genesis of this outbreak. Of course, in common with the point raised by my hon. Friend the Member for West Ham and Beckton (James Asser), we will think about what advice ought to be offered. As ever when it comes to travel advice, we rely on the evidence available, and with our partners at the Foreign, Commonwealth and Development Office, we regularly offer good travel advice to British citizens travelling abroad where there may be exposure to greater health risks.
(3 weeks, 1 day ago)
Commons ChamberI begin by congratulating the hon. Member for York Central (Rachael Maskell) most warmly on her exemplary record in campaigning for better palliative care. I will address just one segment of her panoramic presentation, namely the work done by the charity that she briefly mentioned, Together for Short Lives. It provided me with a detailed briefing and I apologise in advance if I make some points that others, who may have received the same briefing, anticipate making.
Children’s palliative care enables babies, children and young people with life-limiting conditions, life-shortening conditions or severe medical complexity to live as well as possible until they die. Palliative care for children and young people is defined by the charity as
“an active and total approach to care, from the point of diagnosis throughout the child’s life, death and beyond.”
By embracing physical, emotional, social and spiritual elements, children’s palliative care helps to achieve the best possible quality of life and care for every child with a life-limiting or life-threatening condition and their family.
Giving families an opportunity to set out what they need and want is key to this approach. Children’s palliative care is holistic and is provided by a network of services in hospitals, homes and children’s hospices by the NHS and the voluntary sector, including children’s hospices. These services should be planned, funded and provided in a way that enables children and families to access them when and where they need them.
The key problem is the one that I am about to set out:
“In England, integrated care boards have a legal duty to commission palliative care for children, young people and adults that it considers necessary.
Across England and the wider UK, there is huge variance in the extent to which palliative and end of life care for seriously ill children and young people is being formally planned, funded and provided in ways that meet national and regional standards.
Of particular concern is children and families’ access to end of life care at home”—
we heard this from the hon. Member for Taunton and Wellington (Gideon Amos)—
“24 hours a day, seven days a week, provided by nurses and supported by advice from consultant paediatricians who have completed sub-specialty training in paediatric palliative medicine (also known as GRID training).
Despite some improvements, freedom of information…requests published in March 2025 have revealed that less than a fifth…of ICBs currently commission these services on a formal basis. Meanwhile, over a third…are still failing to meet this established national standard.
As a result, many families feel abandoned by a complex system which should support them to provide care once their child is diagnosed.”
I have been asked by the charity to raise a rather large number of questions, which I am going to cut down to just six, if I can manage to squeeze them in. The charity stresses the fact that the Government’s decision to allocate up to £80 million in ringfenced NHS funding for children’s hospices in England over the next three years is very welcome, but many challenges remain.
These are the six questions that I have picked out of more than a dozen and a half that I was presented with. First, will the Minister confirm that the modern service framework for palliative and end-of-life care, which we heard about from the hon. Member for York Central, will explicitly acknowledge the difference between adult and children’s palliative care and ensure that the needs of seriously ill children are not overlooked?
Secondly, can the Minister confirm that the framework will take a holistic approach and address the wide-ranging needs of seriously ill children and their families, including medical, emotional, social, psychological and practical needs?
Thirdly, will the Minister commit to using the upcoming 10-year workforce plan to examine how the existing children’s palliative care workforce can be used as equitably as possible, organising services into NHS-commissioned children’s palliative care operational delivery networks, such as I gather are used in neonatal care services, in order to help to achieve that?
Fourthly, can the Minister commit to increasing investment in specialist paediatric palliative medicine training by £2.4 million annually to address the funding gap identified by the charity Together for Short Lives?
Fifthly, do the Government support the call of the Royal College of Nursing for nurse-to-patient ratios in all health and care settings? Will they commit to tackling the shortage in NHS community children’s nurses?
Finally, with ICB funding for children’s hospices varying significantly across England, how is the Minister ensuring that every seriously ill child and their family, regardless of where they live, has equitable access to palliative care?
(1 month ago)
Commons Chamber
Dr Ahmed
I am grateful for my hon. Friend’s invitation. She is right: we need to think of innovative ways of attacking the mental health issues that face our country, and particularly our young people. Those include digital and face-to-face therapies, both of which we are expanding at a rapid pace. I am delighted to pass on her invitation to the Minister for Mental Health.
Has the Minister had any opportunity to form conclusions about whether excessive involvement with social media and other online potential harms has contributed to an apparent significant increase in the levels of mental health disorders?
Dr Ahmed
The right hon. Gentleman is right to highlight this very live issue. As a doctor, a parent and a Minister, it is live in my mind, as it is in the minds of hon. Members across the House. It is important that we follow the evidence, and act safely and proportionately in response to that evidence. The right hon. Gentleman will know this Government’s ambition, and the direction that we want to set to ensure that young people are kept safe online.
(1 month, 2 weeks ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
I will try to add something new to the excellent start to the debate by both the previous speakers, who showed a great command of the overall situation, by quoting my constituent Emma, who got in touch with me yesterday after learning that the debate would take place. I will briefly summarise her concerns, which she set out in the following way:
“In the main, the point is that so many have been injured, left on NHS waiting lists, paying for prescriptions and transport to and from appointments. Not being able to work—or restricted working hours. Limited access to PIP…Very little support for those who had mortgages due to the benefit system not supporting mortgage costs”
and
“loss of pension contributions, as none of us is getting any younger.”
This lady is exceptionally strong. Despite the injuries she suffered personally, she has been a rock and a leader for other mesh-injured women in or near my constituency. I hold her in the highest esteem; in fact, I salute her courage. What she has to say is, in a sense, an argument that has already been won. The Cumberlege report won that argument, and the Hughes report wanted to recommend what should happen next. I am delighted to see Henrietta Hughes in the Gallery—and seemingly acknowledging that I am right about that difference between the two reports.
Let me briefly quote from Henrietta Hughes’s admirably concise list of 10 recommendations. Recommendation 1 was:
“The government has a responsibility to create an ex-gratia redress scheme providing financial and non-financial redress for those harmed by valproate and pelvic mesh. This scheme should be based on the principles of restorative practice and be co-designed with harmed patients.”
Recommendation 3 was:
“The government should create a two-stage financial redress scheme comprising an Interim Scheme and a Main Scheme.”
Recommendation 4 was:
“The Interim Scheme should award directly harmed patients a fixed sum by way of financial redress. These payments should start during 2025.”
Recommendation 8 was:
“Both the Interim Scheme and the Main Scheme should be administered by an independent body which commands the confidence of patients.”
What is the point of an interim scheme? It is to recognise that there will be tremendous complexity in individual cases, but at least these mesh-injured ladies would get a minimum of help—I think £25,000 has been suggested—straightaway, while the more complex calculations can be done later. Yet despite that being the very point of an interim scheme—that we can do this quickly and work on the harder parts subsequently—we have seen no progress.
What does that remind us of? It reminds me of the Post Office. It reminds me of the infected blood scandal. What do all those things have in common? A large number of people who have been injured in some way or another—either physically, or with their character or freedom damaged, often beyond repair—and who are owed very large sums of money by way of redress or compensation. We know what happens in the end: there is enough public protest to ensure that there is action. I hope that the level of public awareness is no less for this cause than it is for other, similar scandals because all the victims were women. That would be even more disgraceful than that this all happened in the first place.
I want to address the main concerns and, as I said, the Under-Secretary of State is very keen to talk with Members and campaigners.
We remain committed to working alongside Dr Hughes and her team to better support patients and ensure that steps are taken to prevent similar harm in the future, both in this area and across the wider patient safety landscape. That is obviously crucial. Many Members mentioned the importance of women’s voices being heard in this area, and many of us were involved in the campaign in the previous Parliament. We must make sure that women’s voices are better heard in the health system. As my hon. Friend the Member for Morecambe and Lunesdale (Lizzi Collinge) said, the campaigners are doing that, and I pay tribute, as she did, to In-FACT, as well as Sling the Mesh and the very many other patient groups that have raised this on behalf of women. They should not have to, but I commend their work.
I assure Members and people listening to the debate that we remain committed to advancing this work across Government and to looking at lessons from any cases in which patient safety has been affected. I fully understand why colleagues are asking for an official response to the Hughes report here and now. It is important that we get it right, and we need to carefully consider all options and the associated costs before coming to a decision on the report’s specific recommendations. I am sure that many Members have seen the letter that my hon. Friend the Under-Secretary of State wrote to the Patient Safety Commissioner in November, and I reconfirm, as he wrote, that that work includes looking at the costs.
We must take forward the lessons learned from this work—including, as the right hon. Member for New Forest East (Sir Julian Lewis) and my hon. Friend the Member for Ellesmere Port and Bromborough (Justin Madders) highlighted, work on similar areas—and the Government are doing that. We must ensure that our approach provides meaningful, often ongoing support to those who have been so profoundly affected.
The Government have to consider options for financial redress collectively, with input from a number of Departments, and we started that work immediately. As was mentioned, the previous Government did not respond to the report when it was published, but we have picked up that work. Initially, Baroness Merron was the lead Minister, and it is now the Under-Secretary of State, my hon. Friend the Member for Glasgow South West.
I assure the hon. Members for Strangford (Jim Shannon) and for Aberdeenshire North and Moray East (Seamus Logan) that my hon. Friend recently met the devolved Government Health Ministers to discuss their respective positions further. He will continue to do so across all devolved Government areas; as Members have said, patients there are affected too. We have to proceed with care to ensure the correct approach. We are committed to providing updates at the earliest opportunity, once all relevant advice and implications are considered.
I will continue, if I may.
On non-financial redress, the Department is committed to meeting the needs of current patients with clinical requirements via three principal avenues. The first is improving clinical services and treatment to patients, and the second is commissioning further research and development programmes on sodium valproate and pelvic mesh to address the remaining knowledge gaps. I commend my hon. Friend the Member for Bexleyheath and Crayford (Daniel Francis) for sharing again his personal experiences and for laying bare the deep complexity and the need for more research and development, to which my hon. Friend the Under-Secretary of State is committed. The hon. Member for Leicester South (Shockat Adam), with his clinical knowledge, also added useful experience to the debate. That is absolutely what my hon. Friend will be taking forward. The third avenue is initiating longer-term preventive measures that will help ensure that the system can pick up on adverse trends in patient care and act more quickly in the future.
I will take each avenue in turn. On improvement of clinical services, although the number of women up to the age of 54 who have been prescribed sodium valproate has nearly halved since 2018, there is a significant group of patients already affected who have complex and varied needs, and the health system has to ensure that that cohort receives high-quality and tailored care. NHS England has committed to a pilot project on foetal exposure to medicine in the north of England, involving multiple clinical specialties and a wide range of clinical experts, that will undertake a comprehensive review of the service. Eighty patients have been seen as part of the pilot, representing 560 appointments and 650 clinical hours. We have received feedback from patients on the value for their quality of life of being seen by clinical experts and wider multidisciplinary teams. We are considering options to commission this service further nationwide.
NHS England has also completed an internal review of mesh centres across England. Mesh centres undoubtedly offer a valuable and impactful service, with nearly 3,000 patients now seen since their introduction. However, as a relatively new service, distinct areas for improvement remain, and we will look closely at the results of the internal review and promptly deliver the necessary improvements.
With regard to further research and development, the National Institute for Health and Care Research has been commissioned for a £1.56 million study to develop patient-reported outcome measures for prolapse, incontinence and mesh-complication surgery. In the longer term, those measures will be integrated into the pelvic floor registry, which monitors and improves the safety of mesh patients. Further research is also taking place in this area, and we will ensure that future work takes into account the recommendations of the pilot project and of the mesh centre audit.
On longer-term prevention work, recent discussions with NHS England and the Medicines and Healthcare products Regulatory Agency indicate that longer-term improvements in digitisation will help position the UK as a world leader in reducing valproate-exposed births and applying the insights to other teratogenic medicines. The Department will explore increasing centralisation and visibility of the annual risk acknowledgment form across care settings, as highlighted in the Hughes report, and may consider expanding the medicines and pregnancy registry to better link data with research outcomes.
I am happy to answer that at the end of my comments, but first I will take the intervention from the right hon. Member for New Forest East.
I appreciate that the Minister does not have primary responsibility for this area, but it worries me that we are hearing an awful lot about process. What I fear is really going on is that Ministers have been told at the highest possible level, by the Chancellor or a Treasury Minister, that the money for redress will not be made available and they have to take that as their starting point. She may not be able to confirm this now, but I would like an answer as to whether a conversation of that sort has taken place.
I thank both Members for their comments. Experienced parliamentarians will know what I will be able to say. As my hon. Friend the Under-Secretary of State, the hon. Member for Glasgow South West, outlined in his letter, costs—I think that is what the hon. Member for Aberdeenshire North and Moray East was alluding to—are part of the overall consideration, along with the complexity, in the work that he is leading on behalf of the Department across all Government Departments.
(3 months, 1 week ago)
Commons ChamberUrgent Questions are proposed each morning by backbench MPs, and up to two may be selected each day by the Speaker. Chosen Urgent Questions are announced 30 minutes before Parliament sits each day.
Each Urgent Question requires a Government Minister to give a response on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
I will try to do that, Madam Deputy Speaker.
We will ensure that young people get good access to wider evidence-led support. I have had to wrestle with the fact that some trans people enter adulthood without ever receiving any sort of healthcare, and I have been heavily criticised by those people in particular for some of the decisions that I have taken. We are working to reduce waiting times, as I have described.
My hon. Friend says that puberty blockers are reversible. We hear contrary views about that from Members across the House, some of whom say that puberty blockers are irreversible. The truth is that the evidence in this area is mixed, which is why we need to build a stronger evidence base.
The Secretary of State deserves our sympathy for having to negotiate such an ethical minefield. Will he tell us whether the data exists from all the people who had puberty blockers under the old regime? He mentioned having met one person for whom they had worked well and one person for whom they were a disaster. Surely it should be possible to do a systematic survey of the dozens, if not hundreds, of people who went through that. Might that be a more constructive and less dangerous way forward?
The right hon. Member is right that we need that data linkage study. That will happen, but it will not produce the same evidence base as a clinical trial, and that is the distinction between the two. It is frankly a disgrace that people have sought to withhold that kind of data and it is really important that we get this right.
I appreciate the right hon. Member’s sympathy. I have wrestled with this issue probably more than any other ethical decision that I have had to make in this office. I do not seek any pity or sympathy for doing so—it is the job that I signed up to and a job that I love doing. I have taken great care and sensitivity in this area because of the particular vulnerability of this group of children and young people.
(3 months, 1 week ago)
Commons ChamberUrgent Questions are proposed each morning by backbench MPs, and up to two may be selected each day by the Speaker. Chosen Urgent Questions are announced 30 minutes before Parliament sits each day.
Each Urgent Question requires a Government Minister to give a response on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
I hope that the Secretary of State will give a little more consideration to the rather important point raised by the hon. Member for Walthamstow (Ms Creasy) about 16 and 17-year-olds not being able to be vaccinated.
If any junior doctor—whether or not a member of the BMA, but particularly if a member of the BMA—decides on ethical grounds to go into work during the period of the strike, and then faces sanctions from the BMA, will the Government protect them?
Two things: first, we will certainly give serious consideration to the point made by my hon. Friend the Member for Walthamstow (Ms Creasy)—the JCVI will do that in the usual way, and we follow its advice —and secondly, resident doctors have been to work in previous rounds of strikes, and I have not been made aware of bullying or intimidation of them. Of course, that should not be happening, and if it does, my priority will be protecting doctors who are doing the right thing. My expectation is that no one will be intimidated for making the moral and ethical judgment that going to work is the right thing to do by patients, by their colleagues and by the NHS this Christmas.
(3 months, 2 weeks ago)
Commons ChamberMy hon. Friend is absolutely right. I do wish the BMA would take yes for an answer sometimes; I would like it even more if the BMA gave yes as an answer to me once a while, but that has not happened in a little while. He is right to talk about the need for workforce planning. The workforce plan, which is in production, is all about making sure we have the right people in the right place at the right time. He mentioned mental health specifically. Our manifesto committed to 8,500 extra mental health workers over the course of this Parliament, and I am happy to report that we have already delivered well over 6,500. There is lots done, but more to do.
I find it rather shocking that when the Secretary of State for Health has offered the BMA leadership an opportunity to strike a few weeks later, they have turned it down, presumably because they prefer to strike at Christmas, when, frankly, lives will be lost as a result. Am I missing something here? Why is it, according to the Secretary of State, that the BMA leaders seem to be so determinedly militant? Does he think that in reality, they simply do not represent the views of their own membership?
I will say to the right hon. Gentleman that we are doing everything we can to mitigate against harm during the proposed strike dates, but I cannot in all honesty and integrity assure him that no patient will come to harm next week should the strikes go ahead, because the situation is so dire. I really urge the BMA to reflect on that overnight and into tomorrow and to ask themselves—perhaps their members will also ask this of their reps—whether it is really necessary to strike next week, given the offer of an extension to mandate.
To the right hon. Gentleman’s final point, when I was the president of the National Union of Students, I was once asked by a Labour member of a Select Committee that I was appearing before whether I was speaking for my members or for my activists. There is sometimes a difference between the two. I know that lots of people have campaigned hard for pay restoration and that many people are involved in the Doctors Vote campaign in pursuit of that aim. I think there are many doctors, however, who recognise that there has been real progress on pay and that what we are putting forward now is meaningful progress on jobs, too. I say to all members of the BMA: do not let the perfect be the enemy of good, especially when the stakes are so high.
(4 months, 3 weeks ago)
Commons ChamberI beg to move,
That this House has considered the ageing community and end of life care.
I thank the Backbench Business Committee for selecting this subject for debate. I declare an interest as the son of Mona Shannon, who is 94 years young and resides in a nursing home near Killyleagh in my constituency. Along with most other middle-aged sons or daughters—in my case, maybe a wee bit more than middle-aged—I am acutely aware that time is marching on and so are my mum’s needs.
The wee five-foot-nothing lady who kept three six-foot sons under control is no longer to live alone, but she is as sharp as a tack and I am thankful for the wisdom she gives me when I visit her twice weekly. Indeed, I suspect that every Friday and every Sunday I get a wee bit of wisdom—and maybe a wee bit of a telling off. She always likes to know what happens in this House and I am able to tell her that, but she will also give me her opinion, which I never ignore—indeed, I probably keep to it as much as I can.
Those visits to the nursing home, coupled with the focus on assisted dying, have highlighted to me with greater effect the changes that are needed in how we handle our older generation and their needs. I have spoken with representatives of both Sue Ryder and Marie Curie not simply to highlight the difficulties that most of us will be aware of, but to offer some ways that we can improve.
I am pleased to see the Under-Secretary of State for Health and Social Care, the hon. Member for Glasgow South West (Dr Ahmed), in his place. He and I are becoming a bit of a tag team, because on three days this week he has been the Minister responding to the debates that I have been involved in. The shadow Minister, the hon. Member for Hinckley and Bosworth (Dr Evans), has been there as well, so he should not be left out.
According to Marie Curie, in the next 25 years in Northern Ireland—I know it is not the Minister’s responsibility, but I want to give the stats, because they are important— there will be 20,500 people requiring this type of care, which is a rise of 32%. That includes a doubling of need by those aged over 85. It is also projected that the number of deaths in the community in Northern Ireland could rise by 74% during that time. Approximately 60% of the cost of care delivered through the independent hospice sector in Northern Ireland is reliant on charity. That is unsustainable. A new palliative care strategy for Northern Ireland that takes account of demographic changes and associated requirements for service transformation and investment is urgently needed.
That is what is happening in Northern Ireland, and in the mainland, things are very similar. Marie Curie has highlighted that as the population ages, more people will be living with and dying with multiple complex conditions. Every week in my office, when it comes to assisting those of my mum’s generation—and perhaps some of my own—with benefits, I see people with multiple complex needs more than ever. It is not just one thing that people are suffering from, but a multitude of things.
By 2050, the number of people in need of palliative and end-of-life care in the UK will rise by 147,000 to over 745,000 every year, and that increase will be driven by a growth in the number of people dying over the age of 85. These are really important stats, and we cannot ignore them; indeed, I believe the Minister will be focusing on them. Around 90% of the people who die each year need palliative care, but one in four of them is missing out. Older people, and particularly those with a non-cancer diagnosis, are at risk of missing out on the palliative care they need at the end of life. Research indicates that most people want to receive care at the end of their life and die at home. Elderly people tell me that all the time—they want to be at home.
I am grateful to the hon. Member for giving way; I know he is pressed for time. The charity Together for Short Lives points out that where children’s palliative care is concerned, there is wide variation across different regions in the country. Is he afraid that this applies to the ageing population as well—that there is no consistency in the amount of palliative care available?
I thank the right hon. Member for his intervention and for the wisdom that he brings to all the debates he participates in. The Minister is listening, and he is a good Minister, so I know he will come back with the response we hope to have.
How often have we listened to family members who are past themselves with exhaustion and guilt about how they are caring for their loved one and who feel unprepared and yet unwilling to let them go into nursing care? With more support, their lives would be easier and their loved one’s life happier. This knowledge is why I was not surprised to learn that almost £12 billion of public funds was spent on healthcare for people in their last year of life, 81% of which was spent in hospital, with only 11% spent on primary and community care.
Access to a 24/7 palliative care advice and support telephone line has been recommended as a minimum service requirement for nearly two decades, but research shows that very little has happened, which underlines the issue that the right hon. Member for New Forest East (Sir Julian Lewis) raised. Only seven of the 42 integrated care boards in England said they have a dedicated 24/7 single point of access to palliative and end-of-life care advice, guidance and onward referral to other services, when needed—those are all important factors.
Despite the introduction of a new legal duty for ICBs to commission palliative care services in the Health and Care Act 2022, the urgency and importance of ensuring that everyone has the best possible care and support at the end of life has yet to be recognised as a national priority. I hope the Minister will be able to provide assurance on this, because that is what Marie Curie wants, it is what Sue Ryder wants, and it is what every mum, dad and family member wants as well.