Asked by: Laura Kyrke-Smith (Labour - Aylesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to put in place a long term funding strategy for research into Myalgic Encephalomyelitis.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
As set out in the Government’s final delivery plan for myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS) that was published in July 2025, the Department has taken action to strengthen research capacity and capability for ME/CFS to support the long-term future of the research field.
These actions include hosting a research showcase event, a new development award to evaluate repurposed pharmaceutical interventions, and announcing newly funded studies in health and care services, research infrastructure, and capacity-building.
We are determined to accelerate progress in the treatment and management of ME/CFS and will continue working with the community to identify and address barriers to research.
The Department funded National Institute for Health and Care Research welcomes funding applications for research into any aspect of human health and care, including ME/CFS.
Asked by: Laura Kyrke-Smith (Labour - Aylesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure consistent application of NICE guidelines across Integrated Care Boards for the diagnosis and access to specialist care for the treatment of ME/Chronic Fatigue Syndrome.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
National Institute for Health and Care Excellence (NICE) guidelines are evidence-based, informed by clinical expertise, and represent best practice. Healthcare professionals and integrated care board (ICB) commissioners are expected to take NICE guidelines fully into account when designing and delivering services, including for the diagnosis and treatment of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). NHS England ensures that ICBs follow NICE guidance through a combination of statutory oversight frameworks, annual performance assessments, and local clinical governance requirements.
We published the final ME/CFS delivery plan in July 2025, which is available at the following link:
https://www.gov.uk/government/publications/mecfs-the-final-delivery-plan
The plan focuses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease. It also sets out a series of actions, which will help address the key challenges and drive forward improvements to outcomes and quality of life for people living with ME/CFS in England.
Asked by: Laura Kyrke-Smith (Labour - Aylesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the adequacy of palliative care services in Aylesbury constituency.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
Palliative care services are included in the list of services an integrated care board (ICB) must commission. To support ICBs in this duty, NHS England has published statutory guidance and service specifications. The statutory guidance states that ICBs, including the Buckinghamshire, Oxfordshire and Berkshire West ICB, must work to ensure that there is sufficient provision of care services to meet the needs of their local populations. NHS England has also developed a palliative care and end of life care dashboard, which brings together all relevant local data in one place. The dashboard helps commissioners understand the palliative care and end of life care needs of their local population.
The Department and NHS England are currently looking at how to improve the access, quality, and sustainability of all-age palliative care and end of life care in line with the 10-Year Health Plan.
We will closely monitor the shift towards the strategic commissioning of palliative and end of life care services to ensure that services reduce variation in access and quality, although some variation may be appropriate to reflect both innovation and the needs of local populations.
Officials will present further proposals to ministers over the coming months, outlining the drivers and incentives that are required in palliative care and end of life care to enable the shift from hospital to community, including as part of neighbourhood health teams.
We are supporting the hospice sector with a £100 million capital funding boost for eligible adult and children’s hospices in England to ensure they have the best physical environment for care. The Hospice of the St Francis and Rennie Grove Peace Hospice Care, which both serve people in the Aylesbury constituency, are receiving £486,476 and £1,114,316 from this funding respectively.
Asked by: Laura Kyrke-Smith (Labour - Aylesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether he will take steps to extend the eligibility criteria for the covid-19 booster vaccination for winter to include those who are clinically vulnerable in winter 2025-26.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government is committed to protecting those most vulnerable to COVID-19 through vaccination, as guided by the independent Joint Committee on Vaccination and Immunisation (JCVI). The primary aim of the national COVID-19 vaccination programme remains the prevention of serious illness, involving hospitalisations and deaths, arising from COVID-19. Population immunity to COVID-19 has been increasing due to a combination of naturally acquired immunity following recovery from infection and vaccine-derived immunity. COVID-19 is now a relatively mild disease for most people, though it can still be unpleasant, with rates of hospitalisation and death from COVID-19 having reduced significantly since COVID-19 first emerged.
The focus of the JCVI’s advised programme has therefore moved towards targeted vaccination of the two groups who continue to be at higher risk of serious disease, including mortality. These are the oldest adults and individuals who are immunosuppressed.
On 13 November 2024, JCVI published advice on who should be offered vaccination in autumn 2025. On 26 June 2025, the Government accepted the JCVI’s advice, and in line with that advice, in autumn 2025, a COVID-19 vaccination is being offered to the following groups:
The Government has no plans to change eligibility for autumn 2025. It has accepted the JCVI’s advice for this campaign in full. As for all vaccines, the JCVI keeps the evidence under regular review.
Asked by: Laura Kyrke-Smith (Labour - Aylesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the effectiveness of the national spinal cord injury database.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The effectiveness of the National Spinal Cord Injury Database (NSCID) is kept under review and is subject to small incremental improvements to reflect changes to spinal cord injury services, and to maintain compliance with legislation. NHS England has been working with spinal cord injury charities to provide them with data within the parameters of information governance, UK General Data Protection Regulation (GDPR), data security, and data protection legislation, and data sharing agreements are in place.
Plans to enable patients to connect with charities are in development, which will require working in close collaboration with clinicians who will discuss the option of connecting the patient with a charity at the appropriate moment in their treatment pathway. NHS England has processes in place which enable stakeholders to request access to data held in the NSCID. These processes are compliant with existing information governance, UK GDPR, data protection, and data security legislation and policies. Each request for access to data is assessed in accordance with legislation and accompanying policies.
Asked by: Laura Kyrke-Smith (Labour - Aylesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether he has made an assessment of the potential merits of providing access to the national spinal cord injury database to (a) charities and (b) other stakeholders.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The effectiveness of the National Spinal Cord Injury Database (NSCID) is kept under review and is subject to small incremental improvements to reflect changes to spinal cord injury services, and to maintain compliance with legislation. NHS England has been working with spinal cord injury charities to provide them with data within the parameters of information governance, UK General Data Protection Regulation (GDPR), data security, and data protection legislation, and data sharing agreements are in place.
Plans to enable patients to connect with charities are in development, which will require working in close collaboration with clinicians who will discuss the option of connecting the patient with a charity at the appropriate moment in their treatment pathway. NHS England has processes in place which enable stakeholders to request access to data held in the NSCID. These processes are compliant with existing information governance, UK GDPR, data protection, and data security legislation and policies. Each request for access to data is assessed in accordance with legislation and accompanying policies.
Asked by: Laura Kyrke-Smith (Labour - Aylesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential implications for his policies of his Department's consultation on The licensing of non-surgical cosmetic procedures in England, published on 2 September 2023.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The Government is committed to taking action to address longstanding concerns about the safety of the cosmetics sector and is exploring options for further regulation in this area. This includes considering the proposals that the Department previously consulted on for the introduction of a licensing scheme for non-surgical cosmetic procedures in England. We will set out the details of our approach at the earliest opportunity.
Asked by: Laura Kyrke-Smith (Labour - Aylesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve dementia care in Aylesbury constituency.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
Buckinghamshire Council have stood up a new Dementia Strategic Oversight Board to deliver on local priorities that span across the Well Pathway for Dementia. These priorities include raising awareness of dementia, building up the support available in the community and encouraging timely diagnoses.
Buckinghamshire was selected as one of NHS England’s Diagnosing Advanced Dementia Mandate pilot sites. This pilot was delivered over a 12-month period starting in May 2023. The aim was to reduce the waiting list for assessment and restore the dementia diagnosis rate to pre-Covid levels. Over the course of this project, the Dementia Diagnosis Rate (DDR) has increased by 3.1% (from 56.2% in May 2023 to 59.5% in July 2024).
Buckinghamshire Council are re-commissioning the Dementia Support Service with the new provision due to start on 1st April 2025. This service offers advice, information, care and support for both those with memory concerns and a dementia diagnosis. It is being expanded to enable more residents to access the service and will provide an outreach service to engage clients that don’t usually access dementia support.