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Written Question
Carbon Monoxide: Alarms
Tuesday 28th November 2023

Asked by: Liz Twist (Labour - Blaydon)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if her Department will make an assessment of the potential merits of mandating the use of carbon monoxide alarms in all health settings.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

There are no plans to make an assessment. Guidance on ventilation and air filtration systems in National Health Service facilities is provided in Health Technical Memorandum (HTM) 03-01: Specialised Ventilation for Healthcare Premises. As with all guidance provided on the NHS estate, it is reviewed on an ongoing basis and will be updated to reflect changes in approach to relevant areas. The memorandum is available at the following link:

https://www.england.nhs.uk/wp-content/uploads/2021/05/HTM0301-PartA-accessible-F6.pdf

There is a range of national resources available to promote carbon monoxide safety. This includes guidance on GOV.UK, the NHS website and from the Health and Safety Executive. The UK Health Safety Agency also has a programme of work, much of it delivered in partnership with other organisations, to increase awareness of carbon monoxide exposure risks and help to prevent them.


Written Question
Carbon Monoxide: Alarms
Thursday 26th October 2023

Asked by: Liz Twist (Labour - Blaydon)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if his Department will make an assessment of the potential merits of mandating the use of carbon monoxide alarms in all health settings.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

It has not proved possible to respond to the hon. Member in the time available before Prorogation.


Written Question
Health Services: Carbon Monoxide
Tuesday 24th October 2023

Asked by: Liz Twist (Labour - Blaydon)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, with reference to findings in the All-Party Parliamentary Carbon Monoxide Group's report entitled Prepare, Practice, Protect: Improving Carbon Monoxide Safety in Health and Care Services, published July 2023, what recent assessment he has made of the adequacy of funding for national resources on carbon monoxide funding.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

No recent assessment has been made.

There is a range of national resources available to promote carbon monoxide safety. This includes guidance on GOV.UK, the National Health Service website and from the Health and Safety Executive. The UK Health Security Agency also has a programme of work, much of it delivered in partnership with other organisations, to increase awareness of carbon monoxide exposure risks and help to prevent them.


Written Question
Carbon Monoxide: Poisoning
Tuesday 24th October 2023

Asked by: Liz Twist (Labour - Blaydon)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether he is taking steps with Cabinet colleagues to help (a) prevent and (b) diagnose carbon monoxide poisoning in (i) healthcare settings and (ii) the homes of vulnerable people.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

The UK Health Security Agency (UKHSA) works with national and local stakeholders, public health partners and Government Departments to develop advice and actions which can be taken to improve diagnosis and prevent accidental exposure to carbon monoxide (CO) in healthcare settings and homes, including the homes of vulnerable people.

It has a programme of work to increase awareness and prevent exposure to CO. This includes participating in the cross-Government group on gas safety and carbon monoxide awareness and providing updated and consistent evidence, for example, for medical professionals diagnosing and managing CO poisoning in patients, and during antenatal checks.

UKHSA produces advice for the public on the risks from CO and regularly issues national press releases to raise public awareness of the dangers. In addition, UKHSA has published research quantifying CO exposure in the population, identifying risk factors for exposure and interventions to reduce the risk to the public.


Written Question
Rare Diseases: Medical Treatments
Tuesday 17th October 2023

Asked by: Liz Twist (Labour - Blaydon)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether he has considered the potential merits of taking steps to help prevent the withdrawal of medical (a) products and (b) treatments for rare conditions from the UK market where that withdrawal would leave patients without access to such a product or treatment.

Answered by Will Quince

Companies may decide to stop manufacturing a medicine for several reasons including commercial decisions, manufacturing capacity restraint and production problems. Companies are free to review their portfolios as they think necessary, and the Department has no powers to insist that a company continues to keep a product on the market.

There is a team within the Department that deals specifically with medicine supply problems. It has well-established procedures to deal with medicine shortages and discontinuations, whatever the cause, and works closely with the Medicines and Healthcare products Regulatory Agency, the pharmaceutical industry, NHS England, and others operating in the supply chain to help prevent shortages and to ensure that the risks to patients are minimised when shortages do arise. The team will also communicate management advice to the National Health Service advising clinicians on how to manage medicine supply issues.


Written Question
Rare Diseases: Health Services
Monday 16th October 2023

Asked by: Liz Twist (Labour - Blaydon)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 15 May 2023 to Question 183537 on Rare Diseases, for what reason the proposal to provide patients with alert cards was not included in the England Rare Diseases Action Plan 2023; and how his Department plans to ensure adequate co-ordination of care for people with rare conditions in emergency settings.

Answered by Will Quince

There are currently no plans to include a proposal to provide alert cards to patients with rare diseases in the England Rare Diseases Action Plan in the next five years.

In the Second Progress Report from the Rare Disease Policy Board (2018), NHS England proposed to give every patient with a rare disease an ‘alert card’, which would include information about the patient’s rare disease. This proposal to develop ‘alert cards’ was not progressed at the time due to capacity constraints.

This proposal has not featured in the subsequent England Rare Diseases Action Plans (2022 and 2023), and NHS England is now focussing on delivering against the actions identified in these new plans. Progress is being made on existing actions to improve coordination of care and awareness of rare diseases amongst all health care professionals, including those who work in emergency settings.


Written Question
Rare Diseases: Health Services
Monday 16th October 2023

Asked by: Liz Twist (Labour - Blaydon)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 15 May 2023 to Question 183537 on Rare Diseases, whether he plans to include the proposal to provide alert cards to patients with rare diseases in the England Rare Diseases Action Plan in the next five years.

Answered by Will Quince

There are currently no plans to include a proposal to provide alert cards to patients with rare diseases in the England Rare Diseases Action Plan in the next five years.

In the Second Progress Report from the Rare Disease Policy Board (2018), NHS England proposed to give every patient with a rare disease an ‘alert card’, which would include information about the patient’s rare disease. This proposal to develop ‘alert cards’ was not progressed at the time due to capacity constraints.

This proposal has not featured in the subsequent England Rare Diseases Action Plans (2022 and 2023), and NHS England is now focussing on delivering against the actions identified in these new plans. Progress is being made on existing actions to improve coordination of care and awareness of rare diseases amongst all health care professionals, including those who work in emergency settings.


Written Question
Rare Diseases: Health Services
Monday 16th October 2023

Asked by: Liz Twist (Labour - Blaydon)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether the needs of people affected by rare conditions will be considered in the development of the Major Conditions Strategy; and what steps his Department is taking to ensure that the overlapping needs of individuals with (a) rare conditions and (b) major conditions covered in the strategy will be adequately met.

Answered by Will Quince

The Major Conditions Strategy will set out a vision for how systems can be better organised around patients, rather than in silos around single diseases. Support and management for people with multiple conditions will increasingly require the management of complexity and moving from a single condition approach. The National Health Service will need to adapt to manage the complexity of multiple conditions with the consequent need to co-ordinate clinical support across primary, community and secondary care.


Written Question
Adrenoleukodystrophy and Thalassaemia: Gene Therapies
Monday 16th October 2023

Asked by: Liz Twist (Labour - Blaydon)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of the withdrawal of Bluebird Bio from the (a) UK and (b) European market on access to gene therapy treatment for people with (i) beta thalassemia and (ii) cerebral adrenoleukodystrophy.

Answered by Will Quince

No assessment has been made of the potential impact of the withdrawal of Bluebird Bio from the United Kingdom and European markets on access to gene therapy treatment for people with beta thalassemia and cerebral adrenoleukodystrophy. NHS England continues to make cost-effective treatments available to patients in England as determined by NICE’s technology appraisal and highly specialised technologies programmes.


Written Question
Health Services and Social Services: Inspections
Friday 14th July 2023

Asked by: Liz Twist (Labour - Blaydon)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, how many inspections of (a) adult social care providers, (b) primary medical services, (c) hospitals and (d) mental health services were carried out by the Care Quality Commission in the (i) London and (ii) East of England network in each of the last 24 months.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

A table showing how many inspections of (a) adult social care providers, (b) primary medical services, (c) hospitals and (d) mental health services were carried out by the Care Quality Commission in (i) London (ii) East of England network (iii) the South East and (iv) the South West, in each of the last 24 months, is attached.