Lizzi Collinge
Main Page: Lizzi Collinge (Labour - Morecambe and Lunesdale)Department Debates - View all Lizzi Collinge's debates with the Cabinet Office
(1 day, 17 hours ago)
Commons Chamber
Lizzi Collinge (Morecambe and Lunesdale) (Lab)
The Hillsborough law we debate today is not an historical problem; it is something that my constituents need right now. I have already spoken in this place about baby Ida Lock, who died after failings in her care, and the incompetent investigation and lack of transparency that followed.
Today I want to talk about another constituent of mine. Vicki had autoimmune diseases, and she had regular treatment for them, often needing steroids. In 2021, Vicki fell pregnant and had a flare-up, which was treated with steroids. Not long after she tragically suffered a miscarriage. Days later she was admitted to hospital with severe abdominal pain and an increased heart rate, and she began to deteriorate.
The differential diagnosis was either an infection or a flare-up of her autoimmune disease.
Vicki kept getting more poorly. She was treated with antibiotics but not given any steroids. Her care was fraught with errors: her lipids were scored incorrectly; the right tests were eventually requested but not carried out in a timely way; and a pharmacist spotted that she had missed crucial medication, but nothing was done. According to her family, the doctors got caught in a loop of circular thinking—they focused on sepsis and covid—even when there was another possibility, particularly with her history of autoimmune problems.
There is a rare but known complication of autoimmune disease called hemophagocytic lymphohistiocytosis, which is a massive overreaction of the immune system that causes hyperinflammation, damaging vital organs. If the hospital had listened to Vicki and done a bone marrow test earlier, that HLH could have been identified, and it is possible that it could have been treated successfully. But once the decision to do the test—it gives results in only 10 minutes—was finally made, it took 18 hours for it to be done. The bone marrow test confirmed that Vicki had HLH. Twenty-four hours later, she died.
Vicki knew that she was having a flare-up, and she said so, but she was not listened to. From her hospital bed, she had written a letter of complaint to the patient advice and liaison service; then, just a week later, she was dead. Her family just want the truth to be recognised, because, in their experience, it has not been. Their experience echoes that of Ida’s parents. The pain is compounded because the family had felt that she was in the right place to be cared for. They trusted the hospital to get it right.
We know that no one goes to work in healthcare to do harm, but doctors and nurses are humans; they will make mistakes, and it is difficult for them to admit that they have harmed someone, so we need to create institutional cultures in which people feel able to speak up and raise concerns. Mistakes are often one-offs, but what is not is the institutional response to these tragedies. The institutional response of cover-up is part of a wider, long-standing pattern of poor culture and weak accountability. What harmed families tell me in the wake of these tragedies is that it is not necessarily the mistake itself that causes so much harm to them but the cover-up and the denial. Families, instead of grieving their loss, are forced to fight for the truth.
My hope is that the Bill will protect victims and their families—like Vicki’s, like Ryan and Sarah Lock and those who lost loved ones at Hillsborough—from this prolonged trauma. They deserve honesty, accountability and humanity from the very start, because that is how we rebuild trust.