Thursday 12th June 2025

(2 days, 21 hours ago)

Grand Committee
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Asked by
Lord Booth Portrait Lord Booth
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To ask His Majesty’s Government what plans they have to improve the detection, prevention and treatment of cardiovascular illness.

Lord Booth Portrait Lord Booth (Con)
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My Lords, the idea for this debate came about at the end of January, when I was lying in a hospital bed, where I had been for nearly four weeks receiving treatment for my heart. Those were the later stages of what had been a long journey for me since 2011. One surgeon described me as an interesting case, so I intend, with the indulgence of the Committee, to tell you about my heart history, as it is important.

When I came into House last year, I was told that our individual expertise and experiences should form part of what we do here. It is an area that I intend to pursue further. Since I initiated this debate, I have received lots of representations from different groups; before then, I did not appreciate the significance of cardiovascular disease and its causes, which are considerable.

It is very difficult to talk about your own health; it is a very un-British thing to do. I saw on Facebook earlier this week when someone asked, “What do we do as the British?” an answer was that we say, “I’m fine, thank you”. That is how we tend to react to things. I find coming out to Peers and telling them about my heart and health issues far more difficult than I did the more traditional way of coming out, which I did many years ago.

My heart issues began in 2011, when I was at the peak of my business career. I was fit and healthy; I went to the gym three times a week. I was floored by an illness called endocarditis, an infection that goes around the heart valve. Its detection was very difficult, as were the subsequent detections of the other heart-related illnesses that I have had. I intend to talk about the good, the bad and the ugly, because there have been some very good and very bad responses from clinicians, and I have seen some very ugly things in hospitals in the United Kingdom.

In 2011, I suffered a flu-like illness, getting fevers and sweats at night. I went to my GP, who basically told me that I probably had the flu and that I should go away, rest and take a couple of paracetamols. Unfortunately, that persisted over a number of days, and I presented myself to accident and emergency. There, I was again told that I probably had flu and that I should go away.

It was not until a week later, when my partner insisted that I go back to accident and emergency, that we began to have some results. If I had not seen a young African lady doctor, who was brought up and trained in Africa, the endocarditis would not have been recognised, because it is not very common in this country. It is increasingly common; in Africa, malnutrition causes endocarditis, and in this country, it is more common for people on drugs because, as they progress with serious drug taking, they become malnourished too.

That was my first episode, in 2011. As a result of that, I had angiograms and all sorts of heart checks. They decided that I had had a bicuspid valve from birth. I do not know whether noble Lords know this, but valves in the heart are tricuspid—they have three chambers. However, it is not uncommon for people to have bicuspid valves; 10% to 15% of people do. It is not recognised when you are younger, because you are fit and healthy, but it becomes prevalent as we get older and everything begins to clog up inside. That necessitated a valve replacement. In May 2012, I had a tissue valve fitted—I chose that rather than a metal valve because the thought of something ticking in my chest horrified me, and still does.

That was a life-changing event. I was at the peak of my business career, but major open-heart surgery—I am a member of the “zipper club”—makes you think about everything you are doing in your life. I retired, and we decided to move from where we lived in Brighton to Cornwall. The finances worked out, as in those days it was much cheaper to live there, and the treatment with the valve was at the time very successful.

I then entered what I call the fallow years for my heart, which lasted until much more recently. The only medical interventions I had were in 2015, when I had my left hip replaced, and 2017, when I had my right hip replaced. That is part of the reason why medical people say that I have an interesting history.

In 2022, one Monday morning, I woke up and literally could not move. I was in utter agony. If I tried to move my leg one inch, all the muscles in my leg spasmed. A lady doctor later told me that I had discitis, which she described as like being permanently in birth for six weeks—the pain was that bad. It was at the tail end of lockdown; I managed to get the local hospital to acknowledge my illness, which was again a difficult process, over about 10 days, and I went in. Yet again, the discitis may also have been endocarditis, because the treatment for the two is the same—six weeks of intravenous antibiotics four times a day. The hospital was in lockdown, so they were not prepared to move me around the hospital to find out whether I did have endocarditis.

At the end of that, in 2023, I had a TAVI valve fitted, which is a sleeve that fits inside another valve, because the discitis, and possible endocarditis, was caused by my artificial heart valve leaking. The TAVI valve goes inside. They hoped that the sleeve inside the valve would solve the problem, which it did, so I was very lucky to come out in one piece again.

That was the cardio side of it. The vascular side started in 2023 when I went to my GP complaining of pains in my legs—in my calves—which were sometimes really bad and made it virtually impossible to walk. They did various tests, but did not find anything at that stage. They sent me for scans, which showed that I had a narrowing of the arteries in the leg, which was causing the pain. It is known as intermittent claudication, which is named after the Emperor Claudius, who limped.

I beg your Lordships’ indulgence for a slight amount more; I know that I am coming to the end of my time. As part of the treatment, I was fitted with a heart monitor at the beginning of this year. I was called two days later and told that I had to go into hospital to have a pacemaker fitted. The long and the short of it is I went into hospital and they did the tests for the pacemaker. It was found that I needed two stents. I then acquired a massive hospital infection. I collapsed at home the day after, which is why I was in hospital for nearly four weeks, after which time I had the pacemaker fitted.

That is the history. It is quite complicated. I had intended to go on and talk about all the other people who have sent me information, but I see that I have reached my 10 minutes, so I will cease shortly. My questions to the noble Baroness are on whether we could look more at prevention and diagnosis. I was failed in diagnosis in primary care, so can we look more at diagnosis? The treatment that I had—the surgeries—was excellent, but I found a failure in the aftercare in all the processes that I went through. I am a minute over time, so I will finish now. I appreciate your Lordships’ indulgence.