Asked by: Luke Charters (Labour - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what plans he has to commission services for adults with young onset dementia.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The provision of dementia health care services is the responsibility of local integrated care boards (ICBs). NHS England would expect ICBs to commission services based on local population needs, taking account of the National Institute for Health and Care Excellence’s guidelines. It is the responsibility of ICBs to work within their geographical area to offer services that meet the needs of their population.
Local authorities are required to provide or arrange services that meet the social care needs of the local population under the Care Act 2014.
NHS England is committed to delivering high quality care and support for every person with dementia, and central to this is the provision of personalised care and support planning for post diagnostic support.
Asked by: Luke Charters (Labour - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve access to pancreatic enzyme replacement therapy.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The Department has continued to work hard with industry and NHS England to help resolve supply issues with some attention deficit hyperactivity disorder (ADHD) medicines, which are affecting the United Kingdom and other countries around the world. As a result of intensive work, some issues have been resolved. All strengths of lisdexamfetamine, atomoxetine capsules, atomoxetine oral solution, and guanfacine prolonged-release tablets are now available.
We are continuing to work to resolve medicine supply issues, where they remain, for some strengths of methylphenidate prolonged-release tablets. We are engaging with all suppliers of methylphenidate prolonged-release tablets to assess the challenges faced and their actions to address them. We are also directing suppliers to secure additional stocks, expedite deliveries where possible, and review plans to further build capacity to support continued growth in demand for the short and long-term.
In parallel, the Department has worked with specialist clinicians, including those within the National Health Service, to develop management advice for NHS clinicians to consider prescribing available alternative brands of methylphenidate prolonged release tablets or available alternative ADHD medicines. We would expect ADHD service providers and specialists to follow our guidance, which includes offering rapid response to primary care teams seeking urgent advice or opinions for the management of patients, including those known to be at a higher risk of adverse impact because of these shortages.
The Department is also continuing to engage with suppliers of Creon and other pancreatic enzyme replacement therapies (PERT) to boost production to mitigate the supply issue. The supplier of Creon expects to receive increased quantities for 2025. Suppliers of alternative PERT and specialist importers of unlicensed medicines continue to supply increased volumes to assist in covering the gap in the market. In December, the Department issued further management advice to healthcare professionals. This directs clinicians to unlicensed imports when licensed stock is unavailable, and includes actions for integrated care boards to ensure local mitigation plans are implemented. The Department, in collaboration with NHS England, has created a public facing page to include the latest update on PERT availability and easily accessible prescribing advice, including advice on preserving the available stock of alternative PERT for certain patient cohorts.
Asked by: Luke Charters (Labour - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to review the adequacy of levels of access to ADHD medication; and if a Minister will meet with the hon. Member for York Outer to discuss ADHD medication shortages in that constituency.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The Department has been working hard with industry and NHS England to help resolve supply issues with some attention deficit hyperactivity disorder (ADHD) medicines, which are affecting the United Kingdom and other countries around the world. As a result of intensive work, some issues have been resolved and all strengths of lisdexamfetamine, atomoxetine capsules and guanfacine prolonged-release tablets are now available.
We continue to work to resolve remaining supply issues for methylphenidate prolonged-release tablets. We are engaging with all suppliers of methylphenidate prolonged-release tablets to assess the challenges faced and their actions to address them. We are also directing all current suppliers to secure additional stocks, expedite deliveries where possible, and review plans to further build capacity to support continued growth in demand for the short and long-term. To further improve supply and resiliency, we are also working with prospective new suppliers of methylphenidate prolonged-release tablets to expand the UK supplier base.
However, we anticipate that supply for certain strengths of methylphenidate will remain limited until March 2025. We are actively working with all suppliers to resolve the remaining issues as quickly as possible.
To minimise the impact of the shortages on patients, the Department has worked with specialist clinicians, including those within the National Health Service, to develop management advice for NHS clinicians to consider prescribing available alternative brands of methylphenidate prolonged release tablets generically or available alternative ADHD medicines. To support ADHD patients throughout the NHS, we would expect all ADHD service providers and specialists to follow our guidance. To aid healthcare professionals further we have widely disseminated our communications and continually update a list of currently available and unavailable ADHD products on the Specialist Pharmacy Service website, helping ensure that those involved in the prescribing and dispensing of ADHD medications can make informed decisions with patients.
We are supporting a cross-sector taskforce that NHS England has established to look at ADHD service provision bringing together expertise from across a broad range of sectors, including the NHS, education, and justice, to better understand the challenges affecting people with ADHD including timely access to services and support.
The Department monitors and manages medicine supply at a national level so that stocks remain available to meet regional and local demand. Information on stock levels within individual pharmacies is not held centrally.
I am very sorry that I cannot meet at this time but I hope the information I have provided in this answer helps to address the issues raised and assures the hon. Member of the Department’s focused work in this area.
Asked by: Luke Charters (Labour - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent discussions he has had with stakeholders on intermittent shortages of (a) Olanzapine and (b) other anti-psychosis medicines in the UK.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
Department officials regularly meet with manufacturers and suppliers to discuss shortages of olanzapine and other anti-psychosis medicines, and how to manage them.
We have been notified of some issues for olanzapine tablets and orodispersible tablets, however we understand there is sufficient stock available for all olanzapine strengths to meet market demand.
We are aware of intermittent disruptions in the supply of olanzapine (Zypadhera) 210 milligram prolonged-release suspension for injections. This is due to a global manufacturing capacity constraint faced by the supplier. We are actively working with the supplier to address these manufacturing issues as quickly as possible, to ensure that patients in the United Kingdom have access to this medication, and have issued communications to healthcare professionals.
Olanzapine (Zypadhera) 300 milligram and 405 milligram prolonged-release suspension for injections remain available.
Asked by: Luke Charters (Labour - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to (a) raise awareness of Postural orthostatic tachycardia syndrome (POTS), and (b) support children with this condition in York Outer constituency.
Answered by Andrew Gwynne
To improve awareness of postural orthostatic tachycardia syndrome (PoTS) amongst healthcare professionals, and specifically general practitioners (GPs), the Royal College of General Practitioners provides training on PoTS as part of its Syncope toolkit, which is available at the following link:
https://elearning.rcgp.org.uk/course/view.php?id=500
In addition, the National Institute for Health and Care Excellence has produced a clinical knowledge summary on blackouts and syncope, last updated in November 2023, which outlines how clinicians should assess and diagnosis PoTS. It is available at the following link:
https://cks.nice.org.uk/topics/blackouts-syncope/diagnosis/assessment/
GPs are asked to investigate symptoms to ensure that it is not misdiagnosed. Following referral, patients are treated within National Health Service cardiology and neurology services. Where more specialist advice is required, a referral will be made to an appropriate clinician.
Services for children with PoTS are locally commissioned and, as such, it is the responsibility integrated care boards (ICBs), including Humber and North Yorkshire ICB, which serves the York Outer constituency, to ensure that they commission services meet the needs of their local population.
Asked by: Luke Charters (Labour - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to (a) raise awareness of and (b) support adults with autism in York Outer constituency.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including support services for autistic people, in line with National Institute for Health and Care Excellence (NICE) guidelines. The NICE guideline, Autism spectrum disorder in adults: diagnosis and management, aims to improve access and engagement with interventions and services, and the experience of care, for autistic adults.
On 5 April 2023, NHS England published a national framework and operational guidance to improve outcomes in all-age autism assessment pathways. This guidance will help ICBs and the National Health Service to improve outcomes for children, young people, and adults referred to an autism assessment service. The guidance sets out what support should be available before an assessment, and what support should follow a recent diagnosis of autism based on the available evidence. This includes setting out specific considerations for developing post-diagnostic support.
Asked by: Luke Charters (Labour - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if he will take steps to improve the frequency of cancer statistics releases.
Answered by Andrew Gwynne
Cancer waiting times data is published on a monthly basis on the NHS.UK website. There are no plans at present to change the frequency of publication.
Asked by: Luke Charters (Labour - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to reduce waiting lists for elective procedures.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
Patients are waiting too long to access the care they need, with the total waiting list standing at over 7.5 million. Last week we saw the welcome news that waiting lists have fallen. Since we ended the strikes, we have been ramping up delivery of the 2 million additional appointments that we committed to deliver (which is equivalent to 40,000 per week). The investment delivered by the Chancellor in last month’s Budget will be matched with the reform our NHS needs, to get patients treated faster.Asked by: Luke Charters (Labour - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve (a) the dementia diagnosis rate and (b) the provision of specialist care services for those living with dementia in York Outer constituency.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The Humber and North Yorkshire Integrated Care Board (HNY ICB) is in the process of setting up a pilot with the York West Outer Primary Care Network, as one of the lowest recorded diagnosis rates, to trial a primary care diagnosis pathway to improve dementia diagnosis rates.
This would mean that a general practitioner with special interest in dementia, together with already commissioned Dementia Coordinators and with support from nurses in the memory assessment service in the Tees, Esk and Wear Valleys NHS Foundation Trust, can work through a caseload of individuals on the current waiting list for assessment, and provide a more timely diagnosis without the need for specialist secondary care intervention. The intention is that this will help reduce the current waiting times for assessment in the core specialist service, and increase the diagnosis rates in those practices.
In addition to this, the HNY ICB is working with City of York Council and a number of local voluntary, community and social enterprise partners to offer a more comprehensive and collaborative approach to pre and post diagnostic support for people living with dementia and their carers, through a Dementia Community Support Model.
Asked by: Luke Charters (Labour - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support rural GP practices.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
We recognise that patients are struggling to access general practice (GP), and more must be done to improve the sustainability of the National Health Service both nationally and in rural areas. The Government is committed to fixing the front door to the NHS, which is crucial for its long-term sustainability.
We acknowledge the urgent challenge of ensuring rural areas have the resources to continue serving their patients. To address this, we will increase funding for GPs and primary care and shift the focus of the NHS from hospitals to community-based care.
We will also ensure rural areas have the necessary workforce to provide integrated, patient-centered services. We are committed to training thousands more GPs across the country, including in rural areas, starting with the training places outlined in the NHS’s Long-Term Workforce Plan. We have also committed to recruiting over 1,000 newly qualified GPs through an £82 million boost to the Additional Roles Reimbursement Scheme which will increase the number of appointments delivered in general practice.
This will increase capacity, secure the future pipeline of GPs, and alleviate the pressure on those currently working in the system.