PACE Trial: People with ME

Luke Graham Excerpts
Tuesday 20th February 2018

(6 years, 1 month ago)

Westminster Hall
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Carol Monaghan Portrait Carol Monaghan
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I give way to my hon. Friend.

Carol Monaghan Portrait Carol Monaghan
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I think that when the full details of the trial become known, it will be considered one of the biggest medical scandals of the 21st century.

Luke Graham Portrait Luke Graham
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Will the hon. Lady give way?

Carol Monaghan Portrait Carol Monaghan
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I am just going to finish off. I am pleased that NICE is reviewing its guidelines on ME and has removed the recommendations to embark on harmful exercise, but I was contacted only last week by a lady who had been told recently by her GP to exercise her way to health. That highlights the huge need for education and for raising awareness among both the public and medical practitioners.

I ask the Minister: can the next set of guidelines be drawn up through listening to those living with ME? What plans does she have to introduce compulsory training for medical practitioners on ME care and treatment? Can she assure me that specialist ME treatment centres are not advertising graded exercise therapy as a method of recovery? Will she support proper funding for ME research? Lastly, will she work with DWP colleagues to ensure that new guidelines are drawn up for dealing with people with ME?

Finally, I thank the Countess of Mar and the ME Association for helping me to prepare for today. I also thank those living with ME, whose voices are not being heard.