RAF Centenary

Debate between Madeleine Moon and Jim Shannon
Monday 26th November 2018

(5 years, 5 months ago)

Commons Chamber
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Madeleine Moon Portrait Mrs Madeleine Moon (Bridgend) (Lab)
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It is an honour to follow the hon. Member for Aldershot (Leo Docherty), a fellow member of the Defence Committee, and the Chair of the Committee, the right hon. Member for New Forest East (Dr Lewis).

I speak as chair of the all-party group on the Royal Air Force, an alumnus of the armed forces parliamentary scheme with the RAF, chair of the all-party group on reserves and cadets forces, about which we have heard a lot, and, very proudly, co-chair, with former Air Chief Marshal Lord Stirrup, of the Royal Air Forces Association parliamentary branch here in Westminster.

We have heard a lot about this year being the 100th anniversary of the RAF, but we have also been celebrating the 100th anniversary of the first world war. It is coming to an end, but I urge people if they have time to pop down to Porthcawl and see the fantastic display both commemorating the events of the first world war and showing the connections of Porthcawl and south Wales to the RAF.

I have a poster in my office that was put out in the first world war encouraging people to join the new Air Force. It is a wonderful inducement to join, saying, “If you volunteer to join, you will not be forced against your will to join the Army or the Navy.” I can see people thronging to join up on that basis alone.

We heard early on about the RAF being formed on 1 April 1918, with the merging of the Royal Flying Corps and the Royal Naval Air Service. That partnership endures and is still important today, and those of us who are following events on the Queen Elizabeth aircraft carrier can see how vital that synergy continues to be through to today.

Right at the start, the RAF was a service that embraced new technology and techniques, and it has been that way ever since. The new air service fought all over and in every aspect of the battlefields of the first world war, providing invaluable intelligence, surveillance and reconnaissance capability, as well as carrying out what we all know in terms of its bombing missions, and that was vital to the eventual victory.

After the war, innovation moved into civilian life. A department of civil aviation was created within the Air Ministry to regulate aviation in the UK in 1919, the same year that two RAF officers, Captain John Alcock and Lieutenant Arthur Whitten Brown, made the first non-stop flight across the Atlantic ocean, a seemingly impossible task.

During the interwar years, the RAF began its long tradition of training apprentices in the skills of aircraft engineering and maintenance, setting them up for great careers both in the service and in the growing aircraft industry, which was vital for the regeneration of the UK economy. During those interwar years, the RAF became a true national institution. With the outbreak of the second world war, the RAF once again stepped up to defend the country; it fought valiantly, defending our skies and our shores from invasion.

I want to talk about two things. The first of them is the way the RAF has always been willing to absorb people from across the world. The RAF’s No. 145 Squadron consisted of men from Belgium, Australia, Argentina, Czechoslovakia, Trinidad, Poland, the US, Canada and South Africa. The fantastic Air Transport Auxiliary consisted of 166 women pilots who often flew a plane after getting just 15 minutes to read a manual. They had no navigation capability; they literally had maps on their laps and navigated themselves around the country. But it attracted pilots from Britain, Canada, Australia, New Zealand, South Africa, the US, Poland and the Netherlands, again coming to Britain to fight on our side, but coming to Britain also because of the chance to fly with the RAF.

Since I have been chair of the all-party group, we have taken to having a battle of Britain dinner. I want to tell Members about the first of them, because it was one of the most moving experiences I have had in this House. I asked those pilots and aircrew who were with us if they would each give us just three minutes of their memories. The first man said, “I want to thank the merchant navy. Without the merchant navy and their bravery, we couldn’t have flown. So that is my memory: the death of all those men in the merchant navy.” Everybody was rocked.

Then the second man stood, and he said, “I want to thank the French civilians. My plane came down and I walked for two days. I did not know where the heck I was, and eventually in desperation, I knocked at a door and a family took me in. They hid me; at risk to their own lives, they fed me, they dealt with my wounds, and then they moved me from family friend to family friend until I actually made it to Portugal. And I got back, and I had the chance to fly again.”

The whole history of the RAF is about amazing people. I cannot tell hon. Members how wonderful everyone from the RAF I have ever worked with has been and how willing and open to new ideas and innovation they are.

During the cold war, the RAF played a critical role in keeping us safe. We tend to dismiss the cold war now, but it was the deterrence represented by the RAF that kept us safe. Because people knew the risk of challenging the Royal Air Force, the cold war remained a cold war and never became a hot war. Even today, the RAF remains one of the world’s most capable and respected air forces. Its fighter capability and its intelligence gathering are huge.

During its first 100 years, the RAF has shown the spirit and invaluable service that our air force provides to this country, not only in defending our skies but in innovating, adapting and improving and in making use of new technology in combination with the skill and professionalism of its servicemen and women to create a national institution that we are all rightly proud of. That challenge continues and faces us every day.

The Secretary of State talked about Carbonite-2, the satellite capability launched recently by the RAF, along with its range of sensors and ground stations. Carbonite-2 is huge by comparison with some satellites that we see nowadays. It is about the size of a washing machine, but its telescope and high-definition video recording will provide critical information for intelligence, surveillance and reconnaissance—ISR—purposes. That information will be sent into the cockpits of our fighter jets before we know it.

In 2017, I presented a report to the NATO Parliamentary Assembly on “The Space Domain and Allied Defence”, in which I said:

“NATO needs a whole-of-alliance approach to protect its interests in space to enhance resilience and deter any threat to its space-based capabilities.”

I am very proud that the RAF takes on that challenge.

Jim Shannon Portrait Jim Shannon
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It would be remiss of us here in the House not to record our congratulations to the hon. Lady on becoming President of the NATO Parliamentary Assembly. We are all greatly encouraged by her elevation to that position, and we wish her well.

Madeleine Moon Portrait Mrs Moon
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I thank the hon. Gentleman for his comments.

We have a problem within the NATO alliance, however. At the moment, there are just six postings in NATO, in six different departments, that are designated as space operational positions. That is not good enough. We must all welcome the development of the bi-strategic command space working group, which has recommended the creation of a NATO space operational centre of excellence to offer expertise and experience that will benefit nations across the alliance. We are fortunate here in the UK, because we have a very capable space technology community. Not everyone is so advanced in that field, and we need to spread that expertise.

NATO’s joint air power strategy is dependent on national space-based capabilities to support air, maritime, land and cyber domains, and for early warning, ISR, communications, positioning, navigation and timing information. We are at a time when the treaties and regulatory and legal frameworks relating to space will have to change. We have always argued that space should not be weaponised, but the threats that are coming our way indicate that other countries will not abide by the existing rules, and we need to be ready to face those threats.

The Secretary of State talked about the RAF already being engaged in 15 missions across 22 countries, the majority of which are alliance missions. We all have a responsibility to ensure that they have the money, the personnel, the training and the best technology to ensure that the RAF’s edge is maintained and that its ability to command the air environment continues.

One of the most amazing things about being a member of the Defence Committee is that we have the capacity to drill down into areas that other people do not always understand. An example would be the RAF rules of engagement. When I was doing a report on behalf of the Committee on remotely piloted air systems—known as drones to the rest of the world—it was fascinating to see the rigorous nature of the rules of engagement and of the tests that everyone going in to pilot a drone in Afghanistan or anywhere else in the world is required to go through before they can go on duty. It was fascinating to see the checks and balances involved, and the requirement to ensure the safety of civilians, which was central to everyone’s thinking. I do not think that we speak enough about that. We do not tell our public how high the level of integrity is of the people who serve this country, how that manifests itself day after day and how respected it is around the world.

I want briefly to mention the importance of the defence industry. The combat air sector has contributed 80% of the total defence exports over the past 10 years. It has an annual turnover of £6 billion and supports 18,000 skilled jobs. That vast network is part of the RAF legacy and an offshoot of this national institution.

I cannot finish without speaking about the people of the RAF. The hon. Member for Wycombe (Mr Baker) and I share a great friend. When I became the chair of the RAF all-party parliamentary group, a liaison officer was appointed by the Ministry of Defence to ensure that I understood things and perhaps that I behaved myself—he did not do very well at that—as well as to ensure that I was accurate in the things that I said and did. That man was Wing Commander Philip Lamb. After being a parliamentary liaison officer, he went on to be the station commander at St Mawgan and then to become our defence attaché in Sweden. It was there that he became ill. On the day—in fact, at the very minute—that I was told I was to be the next President of the NATO Parliamentary Assembly, a text appeared on my phone. I opened it, and it told me that Philip had died. Philip was a man who, like so many in the RAF, served his country with distinction, commitment and integrity. Like so many others, he was a man who let the world know that the RAF still attracted the best people. They are people who really do go through adversity to the stars in protecting this country.

Anti-Corruption Strategy: Illegal Wildlife Trade

Debate between Madeleine Moon and Jim Shannon
Wednesday 28th February 2018

(6 years, 2 months ago)

Westminster Hall
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Madeleine Moon Portrait Mrs Madeleine Moon (in the Chair)
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Order. The hon. Gentleman has made a number of long interventions and there is one more speech to go.

Jim Shannon Portrait Jim Shannon
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It is my belief that we need to introduce legislation quickly to play our part in reducing the number of animals killed by poachers, and ensuring that narwhal, walrus and hippopotamus ivory will not be used as replacements so that those animals become next in the firing line. We must end the trade. We can up our game and do a better job of playing our part. That can begin today, with this debate. Let us set the scene. I ask the Minister and her Department to take heed and urgently implement the steps to legislation.

Incontinence

Debate between Madeleine Moon and Jim Shannon
Tuesday 5th September 2017

(6 years, 7 months ago)

Commons Chamber
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Madeleine Moon Portrait Mrs Moon
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I thank my hon. Friend for her work in this area. That most certainly would help, and it is so simple; it is not a huge thing to do. Another example is simply having a shelf in toilets where someone with a colostomy or ileostomy can place the clean bag, so it is readily available while they remove the full bag. That would make things so much easier and healthier, by ensuring there is no cross-infection. Instead, people often have to scrabble on dirty toilet floors, trying to access what they need.

All the figures I have to hand today are estimates—as one patient group pointed out to me, the collection of statistics in this field is patchy at best, and putting a true figure on the scale of the problem is very difficult—but we will not tackle taboos until we start talking about them: we must destigmatise the subject so that no one faces humiliation if they admit to a problem. We need to bring this issue out into the open once and for all, so that people no longer suffer in silence and we can reduce the long-term health implications and additional costs for the NHS.

An analysis of calls to the Bladder and Bowel Foundation’s helpline in 2015 suggested that half the people with a continence problem had never spoken to a healthcare professional. Another study found that only one in three families seek help for children and young people with a continence problem. Imagine the long-term impact on a child’s health of having to try to manage such a problem at school, with all the stigma of being the smelly kid and all the fear of having an accident during a lesson.

Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
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I congratulate the hon. Lady on bringing this subject forward; it needs to be aired and she is doing that very well today. I thank her for that. Does she agree that young people suffering from ulcerative colitis, Crohn’s disease and other inflammatory bowel diseases need more help and support to deal with the lifestyle changes that these illnesses can bring? The latest statistics show that 75% of those young people say that they cannot have an active social life because of their condition, and I believe that restaurants, shops and councils have a responsibility to do more to help them to lead as normal a life as possible.

Madeleine Moon Portrait Mrs Moon
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I would ask every Member to consider the impact on their life of suddenly having a desperate, urgent need to access a toilet while at work or walking down the street, and there not being one available. Of course we must do more; no one can assume that incontinence is not coming their way or coming to a member of their family. As a society, we have to take responsibility for ensuring that people can access toilet facilities wherever they are and whenever they need them.

--- Later in debate ---
Madeleine Moon Portrait Mrs Moon
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We need to reconsider the issue of VAT on a whole range of sanitary and continence products. As a society, we need to take responsibility for the facts of our daily life. For a person on any sort of restricted income, such as those on benefits, the costs even of simple laundry are huge when dealing with incontinence.

Some families are spending up to £100 a week buying incontinence products. It is ludicrous if they are not able to access those products through the health service or joint stores with local authorities. It is a postcode lottery whether or not a person can access the help and support they need, which is shocking. Think of the savings in sickness pay, in hours of work lost and in mental health and wellbeing if we started to tackle this problem.

It is time to raise a number of issues, including what happens when things go wrong.

Jim Shannon Portrait Jim Shannon
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The hon. Lady has referred to people being caught short and, from my knowledge of people who have come to me with their problems, there is a lack of understanding from employers towards employees who have these problems, with people losing their jobs. Does she agree with me and other Members that there has to be a better understanding from employers of employees who have this problem?

Madeleine Moon Portrait Mrs Moon
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I recently had a meeting with employers in Bridgend, and the chief executive of CGI was present. That company is proactive in asking its employees what problems they have so that it can support, rather than punish, when those problems affect people’s working situation. People with incontinence should feel confident that they will not lose their job if they say, “Actually, I have this problem. I am going to have to go to the toilet.” Shockingly, I found another employer in my constituency that was making deductions from employees’ wages every time they left the floor to go to the toilet because it was time away from their telephone response service. Yes, we need to consider the whole issue of employment practice in relation to incontinence.

Between 2007 and 2015, 92,000 women in England are thought to have had vaginal mesh implants as a treatment for incontinence. As many as one in 15 women have gone on to have those removed because of complications. The individual testimonies of those affected are dreadful, and while dealing with the wider issue of incontinence we must not forget their plight. I commend the work of my hon. Friend the Member for Pontypridd (Owen Smith), who has brought this issue to the attention of the House, but it is also important that the Government carry out a full audit, establish a registry to determine how many women have been affected, suspend this treatment and look at how we can make sure that the damage and destruction of people’s lives does not continue.

I know you have been generous with our time, Madam Deputy Speaker, as the House has concluded its other business so early, but I hope that the need for action on this has become obvious. First and foremost, we need to work collectively to raise the profile of incontinence as a public health issue, not as a personal failing—that is how it is seen. If I have an incontinence problem, it is seen not as my having a medical problem but as there being something wrong with me. That view needs to be turned around. People need to be able to talk to their GP. If we go into any pharmacy, we see a sign saying. “If you’ve got a cough and it persists, see your GP.” There are signs saying, “If your mole is changing size, talk to your GP.” We need to have something that says, “Suffering incontinence? Well don’t suffer in silence, talk to your GP. You will be able to access help and support.” We need to stop assuming that this is something that affects older people and to engage schools in understanding how it affects young people. We need to educate young people on bowel and bladder health. Why on earth do we not talk about this? Are we really so hung up that we cannot talk to young people about the fact that at some point in their life they may have a problem, tell them what they do about it and say what sort of help they can get?

Will the Minister give us an idea of what his Department plans to do to tackle the huge hidden problem of incontinence in this country? Will he agree to talk to the devolved Administrations so that we do not just set something up for England, but we all take responsibility for this? I am sure that the hon. Member for Strangford (Jim Shannon) and my hon. Friend the Member for Newport East (Jessica Morden) would agree that we must get this sorted once and for all.

When people seek help they need to feel that health professionals will be equipped to help them. It is also important that doctors are trained in this; it needs to be part of the core training of all nurses and doctors. It should also be there for those who are training to be nursery nurses. We need to build that conversation and to do it soon. It is important that the General Medical Council takes responsibility for moving this forward. I am aware that in England the NHS published “Excellence in continence care” in November 2015, which sought to define what best practice should be and to make recommendations. The document was very welcome, but implementation has been slow. The executive summary even commented on that, saying:

“Over the years, some excellent research and guidelines have been produced for best practice continence care but this work has often stalled as it has not translated into a clear commissioning plan for a local continence pathway.”

Will the Minister ensure that every local authority and every health authority has a clear continence pathway? That is not a big ask; they should be doing it already. Can we make sure that such pathways are now in place?

Continence services in the UK vary in quantity and availability, with a report in 2010 concluding that patients were faced with a “life sentence” of suffering due to non-existent or poor diagnosis, a lack of treatment plans and poorly co-ordinated care. Earlier this year, a Paediatric Continence Forum audit established that only 41% of clinical commissioning groups and health boards provide all four main continence services and product provision. That is absolutely shocking.

I hope I have convinced the Minister that he should take the opportunity to make a change in the quality of life for far too many people in this country. This is a problem area that we have neglected for too long.

Whirlpool: Product Safety System

Debate between Madeleine Moon and Jim Shannon
Wednesday 26th April 2017

(7 years ago)

Westminster Hall
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Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
- Hansard - - - Excerpts

It is a pleasure to serve under your chairmanship, Ms Ryan. I commend the hon. Member for Hammersmith (Andy Slaughter) for bringing forward this issue, on which he has been a champion in debates in the House, including in a shorter Adjournment debate, when he fully put forward the issue and was supported by many of us here today and those from further afield. I thank him for bringing it forward today and am fully supportive of his purpose. He gave much detail on what has happened, and I will try to give my speech without repeating it.

I have had constituents in my office who are anxious and concerned about being told, “Just stay in the house,” when the machine is in use. Let me set the scene with an example of one constituent. My constituent and her husband work full-time jobs and also work some additional shifts to pay the mortgage. She leaves the house with her two-year-old and her one-year-old baby at 8.30 am. She returns at 6.30 pm, gives the children their dinner and bath and has them in bed for 8 pm, at which stage her 18-year-old babysitter takes over, to allow her to go to her evening meetings. She does not have the time to sit for the washing and drying cycle to complete, and cannot leave an 18-year-old in charge of a fire hazard with sleeping babies upstairs—that is unrealistic.

Her option is to sit and watch the washer-dryer cycle throughout the night. That is certainly ridiculous, but it is the reality of what the firm wants people to do, as the hon. Gentleman set out in his introduction. Is it a joke? No, it is not, and that is why in Westminster Hall today, with the Minister in her place—she has a very wide-ranging portfolio, given what she was here responding to yesterday and what she is doing today—we believe that legislation needs to be put in place that makes firms accountable and protects consumers, which it quite clearly does not at this moment in time.

I read the very succinct briefing provided by Which?—I am sure we have all had sight of that. Where a product could cause a risk to life or serious injury, Which? expects it to be promptly recalled by the manufacturers. What could be clearer or simpler than that? Yet we have firms who clearly disregard that and have a blasé attitude in how they respond. I ask again: how can we make those firms act with the urgency that we really need? All right-thinking people expect that, but we must make what is expected from manufacturers crystal clear.

As we know, Whirlpool acquired the Indesit Company, including its brands Hotpoint, Indesit, Swan, Proline and Creda, in 2014. In August 2015, Whirlpool informed Peterborough trading standards, as its primary authority partner, that up to 5.3 million dryers in the UK were affected by a fault discovered in more than 120 models. The magnitude of that number! The 5.3 million dryers in more than 120 models is nearly everything it has. Why has it not been coerced, persuaded or made to act more quickly? Those driers were also at risk of catching fire and required urgent modification to address the problem.

In August 2015, the company admitted what had to be done and notified trading standards, but the number of driers and models is very large. By 2016, about 750 fires had been reportedly linked to Hotpoint, Indesit, Proline, Swan and Creda tumble driers. Of course, since then there have been even more. A fire in a tower block in Shepherd’s Bush—I am sure the hon. Member for Hammersmith or other hon. Members will talk about it—left 50 people unable to return to their homes. The London Fire Brigade found that it had been caused by an Indesit tumble drier. We could see the horror that it caused on TV: it did not affect just one person, but all the other residents of the tower block. There are other examples—the fire brigade gave us one. Does Indesit not realise the danger? We do as elected representatives, and the people who own the driers and those whose homes have been damaged certainly do as well.

Which? found that those affected have been forced to wait far too long for a repair or replacement, and that customer service staff have given incorrect and potentially dangerous advice.

Madeleine Moon Portrait Mrs Moon
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Does the hon. Gentleman share my concern that some of the machines have been sold on? When houses go up for sale, electrical goods go with them, and perhaps the second owners do not appreciate that the machine they inherit with their new home is dangerous, so they will not be looking to see whether it should be repaired.

Jim Shannon Portrait Jim Shannon
- Hansard - - - Excerpts

I thank the hon. Lady for that very wise intervention. I had not given much thought to that. Sometimes the machines are sold on, but where is the follow-on? How does the company find out about those people? The people who have got them know about the problem from the adverts on TV, the stories in the papers and so on, but in many cases they do not know that they have something dangerous sitting in their home. The hon. Lady is right. We are trying to be positive in our questions to the Minister, but perhaps she will give some thought to that issue.

The hon. Member for Hammersmith spoke about home fires, and the hon. Member for South Leicestershire (Alberto Costa) spoke about some personal examples. There is a record of damage, and the company admits that there is a problem, so surely it should be held to account and should award compensation to people who have had massive fires in their flats and properties. Let us be honest: it is only for the grace of God that people have not been injured or died as a result of this issue.

Whirlpool has not acted in the best interests of consumers. It resisted a recall of the affected models and failed to repair and replace affected machines in a timely way. The affected consumers were told not to use their tumble driers. When someone is told not to use their tumble drier, they expect the company to come and repair it or replace it with something that works correctly.

Police Widows’ Pensions

Debate between Madeleine Moon and Jim Shannon
Wednesday 15th March 2017

(7 years, 1 month ago)

Westminster Hall
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Madeleine Moon Portrait Mrs Moon
- Hansard - -

I can say only that the Welsh think alike no matter their political party, because that is another thing that I intend to cover in my speech.

When we ask individuals to put their lives on the line, we should expect that exactly the same care and responsibility will be shown towards all their families, should they make the ultimate sacrifice. Why, then, should a widow or widower lose the financial support from their late husband or wife when they decide to remarry or cohabit?

I should like the Minister to explain where the money is going. If the widow or widower is ineligible to receive it, who has it? What of their children? No father or mother wants their children to be impoverished; nor do they want the money that they set aside to protect their children in the event of their death, and to prepare for their future, to go somewhere else. So what are the Government doing with the money? Why are the widows, widowers and children penalised? Campaigners rightly argue that no Government should seek to profit from the withdrawal of a small and immaterial number of police widows’ pensions, and the condemning, in the process, of 22,000 widows to a life of loneliness and isolation. That is what is happening at the moment.

We are not asking for extra money. The Treasury is not being asked to find new money. The families just want what they are entitled to. I shall set out the figures. The police officers pay 11% of their wages into the pensions. Generally speaking, the widows or widowers receive 50% of the pension. In 2012 there were 22,000 widows in receipt of a police pension. Between 2008 and 2012 in England and Wales, there were a mere 131 cessations because of remarriage or cohabitation. That is a large number of people who are being forced to face a life of isolation and loneliness to maintain their financial security.

On the figures, approximately 0.5% of police widows are being unfairly denied financial support that would have been available to them from the pensions. It is hard to put an exact figure on how much individuals are losing, because that is personal and depends on the husband’s or wife’s age at death. My constituent estimates that she has lost about £135,000—a not inconsiderable sum. The numbers are small: to grant all police widows a pension for life, regardless of their status, would, according to the response to a freedom of information request, cost £50 million. As I have said, that is not new money; it is money already in the system.

I want to tell the Minister about a couple, aged 75 and 80, whom I will not name as they want to remain anonymous. One is the widow of a police officer. They are forced to live 100 miles apart because the loss of the widow’s income should they cohabit would be impossible to bear. That means that they are not there to support each other every day through the inevitable illness that old age brings. They want to spend their twilight years together without financial penalty. Why are they denied that right?

Announcing the changes in 2015, the then Home Secretary, now the Prime Minister, told the House:

“We will reform the scheme to ensure that the widows, widowers and civil partners of police officers who have died on duty do not have to choose between solitude and financial security.—[Official Report, 12 October 2015; Vol. 600, c. 18.]

However, that is happening. The average age of a police widow is 74. The petty injustice that I am describing could cost the taxpayer more: as the group gets older without the income from their deceased spouses’ pensions they are more likely to have recourse to the state. Does the Minister think that a sensible use of public money?

This injustice forces widows and widowers to choose between love and money. Many feel that the financial cost is too great, particularly when their children are affected. If they choose personal happiness, they face financial insecurity through no fault of their own. They will also be asking their new partner to take on full financial responsibility for their children, who will lose the money that their father or mother had put aside for them. I cannot understand that.

Just over two years ago, the hon. Member for Gloucester (Richard Graham) raised this issue, and he and I debated it in this Chamber. We are no further forward now; the situation has been made more baffling. I am particularly pleased to see hon. Members here from Northern Ireland and Scotland.

Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
- Hansard - - - Excerpts

That was set up, Mr Chope; you probably realised that. I congratulate the hon. Lady on bringing the debate. It is not only the Welsh who think alike; it is the people of Northern Ireland as well.

The Royal Ulster Constabulary faced a very different kind of day-to-day work from that of colleagues on the mainland. The grief of loss is the same for families no matter where they live, and the pension rules must therefore also be the same. Does the hon. Lady agree with the widows in my constituency who feel aggrieved and demand and expect this injustice to be rectified—their pension rights to be secured? I look forward to the Minister’s response; I hope it is a good one.

Madeleine Moon Portrait Mrs Moon
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Everyone expects to be treated the same. People might face different stresses and strains within the police force, but the risk, ultimately, is that every day someone will be determined to take the life of a police officer. If an officer is lost to their family, and if they have made appropriate plans to protect their family, it is right that the state honours that commitment. We pay great tribute to families when they take on these roles and responsibilities, and we should maintain that commitment.

Changes have been made in Scotland and Northern Ireland, and I commend those Administrations. In Scotland, the Government announced the same amendment to the pensions paid to the survivors of police officers and firefighters killed in the line of duty. I think those pensions have been reinstated and backdated to 1 October 2015.

Ministry of Defence Future Accommodation Model

Debate between Madeleine Moon and Jim Shannon
Wednesday 19th October 2016

(7 years, 6 months ago)

Westminster Hall
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Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
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Will the hon. Lady give way?

Madeleine Moon Portrait Mrs Madeleine Moon (in the Chair)
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Order. The hon. Gentleman has not been present to hear the whole speech.

Jim Shannon Portrait Jim Shannon
- Hansard - - - Excerpts

I was chairing another meeting. I have come straight from it, Madam Chair.

Madeleine Moon Portrait Mrs Madeleine Moon (in the Chair)
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It is generally accepted that interventions should be from Members who are present for the whole speech. Is the hon. Lady happy to give way?

Madeleine Moon Portrait Mrs Madeleine Moon (in the Chair)
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It is up to the hon. Lady.

Jim Shannon Portrait Jim Shannon
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Just very quickly.

Armed Forces (Service Complaints and Financial Assistance) Bill [Lords]

Debate between Madeleine Moon and Jim Shannon
Monday 9th March 2015

(9 years, 1 month ago)

Commons Chamber
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Madeleine Moon Portrait Mrs Madeleine Moon (Bridgend) (Lab)
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I shall speak briefly to the amendments tabled by the Defence Committee and to amendment 23, which I tabled.

The armed forces, as I frequently tell my constituents, are a closed institution with their own language, dress code and standards. Most personnel live a closed life that is mostly unobserved by society, but which represents the highest values of our society. The armed forces also have their own internal disciplinary system and legal system—AGAI 67. Abuses of the system can remain hidden and have done, as seen in the double jeopardy cases I have discussed in the House and in the Public Bill Committee. Those cases were revealed only because of whistleblowers.

One of the most important things we must accept about the armed forces is that innate to them is a huge desire for justice. Armed forces personnel have a huge recognition of the importance of justice and the importance of people being dealt with fairly. However, papers frequently come through my office that demonstrate that the service complaints system to date has not necessarily been working fairly.

I welcome the changes that the Minister of State, Ministry of Defence, the hon. Member for Broxtowe (Anna Soubry), accepted in Committee. I also welcomed her intervention on Second Reading when she revealed that the issue of double jeopardy would be addressed. I hope we shall have regular updates on the efforts to access the 587 ex-employees, 194 of whom had their service terminated and five of whom had their rank reduced.

Armed forces personnel have limited access to employment tribunals. It is therefore critical that the internal system operates well and gives a sense of confidence to armed forces personnel. We know that the delays are growing. As the number of armed forces personnel decreases, the pressure on personnel increases. The number of people who investigate and adjudicate in the matter of service complaints is also decreasing. As I have said, the creation of the service complaints ombudsman and the changes that were introduced in Committee are the last chance for the armed forces to maintain the current closed system.

Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
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In Committee, the delays for serving soldiers and those employed by the Ministry of Defence in getting their complaints heard concerned me greatly. There are also people who have lost their jobs or who have been suspended—one of my constituents has been suspended for four years on full pay. Will the proposed changes restore much-needed confidence in the process?

Madeleine Moon Portrait Mrs Moon
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In many respects that is the critical issue, and I hope the Defence Committee will take an active role in monitoring and adjudicating on whether we need to come back to the Bill and decide whether further changes are necessary. Papers that I received this morning tell me that 74% of the Army’s open service complaints exceed the 24-week deadline—six months—and only 51% of new service complaints in the RAF were resolved in 24 weeks during 2014. In January 2015, the Army had 724 service complaints outstanding from 2013 and previous years. The Navy had 144, and the RAF 165. Those figures are deeply worrying—we are about to introduce a new, complex system with opportunities for the ombudsman to be much more proactive in intervening in service complaints, yet we already have a huge backlog of complaints. I would like the Minister to address whether those outstanding complaints will be subject to the new rules introduced by the Bill, and whether they will be assessed under rules of maladministration. That will be one of the critical deciders as to whether there is confidence for those who have been held in the system and experienced horrendous delays.

Parliament sets the standards that it expects our armed forces to operate to, and it must have confidence that the internal military system works. As I said, Parliament has the opportunity in 2015 to review further the operation of the service complaints system, and to remove control of the system from the chain of command unless we see the changes that we want and our armed forces deserve. Internal papers that come our way suggest that, increasingly, reserves will be used to help to deal with complaints. Will the Minister say how often reserves will be used to sit on panels and change the way that complaints are dealt with?

There are positives to using reserves, because they come with a wider perspective of life outside the armed forces and know how some of the bullying and harassment, and some of the horrendous cases that have come to public attention, would be dealt with in a wider employment setting. That could be a constructive move forward, but it is important at least to be clear about what is happening, whether reserves are being used in that way, and what skills they are bringing to the complaints system and its operation.

There are a number of complaints within the current system such as poor quality entry of complaints into the joint personnel administration system, which is where complaints are held. Indeed, in December 2014 the service complaints wing identified more than 70 service complaints that had not been notified through the unit as a service complaint, and had not been entered on to the system. We therefore do not even know whether we are still getting accurate figures for service complaints. On delay, as I have said, the numbers are growing. It is important that people feel confidence in the system, and that the system is seen as robust and working.

Hazaras (Afghanistan and Pakistan)

Debate between Madeleine Moon and Jim Shannon
Monday 1st September 2014

(9 years, 8 months ago)

Commons Chamber
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Madeleine Moon Portrait Mrs Madeleine Moon (Bridgend) (Lab)
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As we have heard, the Hazaras are Persian-speaking people who live mainly in central Afghanistan. They are overwhelmingly Shi’a Muslims and make up the third largest ethnic group in Afghanistan, forming about 9% of the population. Their distinctive facial features in comparison with the Pashtuns, who make up 42% of the Afghan population, makes them easy to identify, marginalise and persecute. During the Taliban rule, the Hazaras suffered a repeated and systematic campaign of violence. Wholesale persecution of the people dates back to fatwas issued against them in the 1890s. Despite the genocidal campaigns, the Hazaras are still the third largest ethnic group in the country. Approximately 4.8 million live in Afghanistan, 1 million in Iran, and 550,000 in Pakistan. Despite their numbers, however, the Karzai Government had no Hazara Ministers, only 5% of Government officials are Hazara, and none of the 10 candidates in April’s presidential election was Hazara.

One of the main achievements in Afghanistan has been to bring a measure of democracy and representative government to the people of that country, but many obstacles still exist. All of us know all too well that there is more to democracy than voting and more to democratic government than representing the views of the majority. A true democracy is one where not only are the views and wishes of the majority represented but the needs of the minority are given protection and respect.

Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
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There seems to be an attitude permeating through the Pakistani Government that picks on small ethnic groups and religious groups, and does so purposely because they are small. Does the hon. Lady think that we should take the action suggested by other Members and try to redirect DFID money to those who need it most rather than to the Government who are taking it out on people in minorities?

Madeleine Moon Portrait Mrs Moon
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The hon. Gentleman, as always, is trying to steal my best lines. I ask him to wait until my conclusion.

If Afghanistan is going to survive, the rights of groups such as the Hazara need not only to be tolerated but fully accepted and incorporated into the workings of the state. This is no small task or easy feat even in the best of circumstances, but many of the ingredients are there. Article 2 of the constitution guarantees freedom of worship and article 22 clearly states the equal rights of all Afghan citizens before the law. The most difficult tasks that Afghanistan has to meet are freedom of worship and equal rights. At the end of the day, this will be the only way of ensuring the well-being of minorities and the stability of the whole country.

The British Government have committed to provide ongoing financial support for Afghanistan and Pakistan. This House must make it very clear today that we will be watching to see how all minority groups are protected and engaged with, and that when considering our financial support we will be looking for freedom of worship and equal rights for all minorities.

Attempted Suicides (Police Responsibilities)

Debate between Madeleine Moon and Jim Shannon
Tuesday 15th July 2014

(9 years, 9 months ago)

Commons Chamber
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Madeleine Moon Portrait Mrs Madeleine Moon (Bridgend) (Lab)
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Let me take this opportunity to welcome the Minister for Policing, Criminal Justice and Victims to his new role and congratulate him on his promotion. If ever there was a Minister who will understand the issues I want to raise, it will be this Minister, who in his previous role as a firefighter will have come across the very issues that I hope he is eager to support me in addressing.

Let me set the background for the Minister. For the past few months, in my role as chair of the all-party group on suicide and self-harm prevention, I have been leading an inquiry into how suicide prevention strategies have changed since the passing of the Health and Social Care Act 2012, two years ago. Unfortunately, one of the many aspects of that Bill was the change to suicide prevention strategies in England. At the time, the all-party group recommended that local suicide prevention strategies be placed at the heart of the national suicide prevention plan. When led by committed local champions and given sufficient resources, local suicide prevention plans are seen as by far the most effective way of preventing suicide.

The new national suicide strategy, however, included no statutory requirement for local suicide prevention plans. The Samaritans reported that the lack of a statutory requirement created a “major barrier” to the survival of local prevention plans. The report from the all-party group is due this autumn, but from our conversations with the directors of Public Health England, health care professionals, experts in suicide prevention from the devolved Administrations and representatives from the police, it has already become clear that the lack of clarity about responsibility for suicide intervention, post-intervention and prevention is creating problems that must be resolved.

Three weeks ago I attended one day of the five-day course by the hostage negotiation trainers at the Hendon police college. The course is intensive and difficult, and I was impressed by the calibre of the officers attending from around the country. There is thankfully not a great call for hostage negotiations, but officers are frequently called out to deal with people contemplating suicide who need to be talked down from a roof, a bridge or the top of a car park. The frustration of those officers is great when, having spent hours talking someone down and taking them to A and E, they are told that there is no help because the person does not have an identifiable mental illness, but is depressed or anxious, or has a personality disorder or a learning disability.

Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
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In Northern Ireland last year we had 303 suicides and numerous attempted suicides. Does the hon. Lady feel, as I do, that community and beat police officers should receive more help from the staff of suicide prevention charities? That valuable support and expertise could help police officers at a critical time when they are trying to save lives.

Suicide Prevention

Debate between Madeleine Moon and Jim Shannon
Wednesday 6th February 2013

(11 years, 2 months ago)

Commons Chamber
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Madeleine Moon Portrait Mrs Moon
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I apologise to the House. I have lost a contact lens, and I have to wear spectacles. I cannot read my papers when I am wearing them, and I cannot see all hon. Members in the Chamber when I take them off. If I am not wearing them, hon. Members must alert me if they wish to intervene.

The hon. Gentleman is absolutely right. Families tear themselves apart over the question of why. They try to analyse behaviour, particularly in the weeks leading up to the death, to seek an understanding of it. Only if there is a suicide autopsy can one begin to look at the reasons behind a death. That is a complicated procedure that cannot be carried out for every death, but it can give some understanding of the wider reasons behind such deaths. I totally agree that the distress for families as to why the suicide has happened is horrific.

That is why the research to which we have access is important. Haw, Hawton, Gunnell and Platt found that the economic recession had a clear impact on suicide. However, the increase in the suicide rate may be offset by adequate welfare benefits; their finding was very clear on that. Other measures likely to reduce the impact of recession included targeted intervention for the unemployed and membership of social organisations. They found that responsible media reporting was also important. Research at the university of Liverpool found that more than 1,000 people took their own lives during the 2008-10 economic recession in the United Kingdom.

There are ways in which we can begin to look at some of the problems that are staring us in the face and that may be causing some of the increase that is becoming apparent. Suicides began to rise in the UK in 2008, following 20 years of decline. Figures rose almost 8% among men and 9% among women in 2008, compared with 2007. The figures reflect the increased effect of the recession. I want to reiterate that research has found that there are risks associated with failure to provide adequate welfare benefits. There are currently high levels of distress and hopelessness caused by the changes in benefit that are about to come into force.

Jim Shannon Portrait Jim Shannon
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I am sure the hon. Lady is aware that the Prince’s Trust recently released figures which show that one in four of those who are in work are almost always or very often depressed. Among those who are unemployed the rate rises as high as 50%. Does she feel there should be a focus on young people, who are suffering more than most? Her colleague—I cannot remember his constituency—had an Adjournment debate in the Chamber on that very topic and he highlighted the issue as well.

Madeleine Moon Portrait Mrs Moon
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The figures show that the increased number of deaths are among an older group of men, largely those who have not experienced unemployment before, who find unemployment very difficult to deal with and who despair about being able to maintain their family lifestyle, pay their bills and see a future where they can again be economically successful. We must be careful that those who are unemployed and who need to survive on benefits for however short a period are not made to feel failures, a burden on the state or pariahs in our society.

I know that Ministers will probably argue that the Government are doing wonderful things in relation to benefits but the Office for National Statistic figures highlight a very worrying trend. I hope there will be discussions between the Department for Work and Pensions and the Department of Health to highlight the importance of Jobcentre Plus staff in particular being aware of claimants coming in who may well be suffering from depression and exhibiting signs of hopelessness and despair, and being able to take suitable preventive action.

Although the numbers are small compared with cancer, heart disease and dementia, suicide is a reflection of the overall health of a country and a community, and the ripple effects on the health of those impacted by it are very great. Other Members have spoken about the impact on families, but communities, schools and workplaces are also affected. There is an impact on people who have known the individual and people who identify themselves with that individual, which is where the risk is most dangerous.

--- Later in debate ---
Madeleine Moon Portrait Mrs Moon
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I thank the hon. Gentleman for his intervention. I was not aware of that development in Northern Ireland, and I would like to spend some time examining it. The root trauma for many families who have experienced such a death is sometimes renewed, along with the publicity, up to a year later, which makes it very difficult for them to cope and which sets them back in the progress that they have made in grieving. Many have found it extremely difficult, so I will look at the information he provides, for which I thank him.

The all-party group has looked at the cross-Government strategy to prevent suicide in England. I will come back to that later, because it is a most important issue. We have also looked at suicide and bereavement. We talked to a number of families who have been bereaved by suicide and every one of them mentioned the importance of a Department of Health document called, “Help is at Hand”. Sadly, many Members do not know about this fantastic resource; it is not appropriately distributed and many families never get access to it. We have to find a way of getting that booklet out to people. The Welsh Assembly is looking to translate it and produce a Welsh language edition for Wales. We are also considering whether coroners and the police force would be appropriate groups to distribute that information.

We have also looked at the impact of police investigations. As Members will be aware, when a sudden death is reported, the police investigate initially under the murder manual. Families are therefore further traumatised by the feeling that they are under suspicion for the death. Once it is decided that it is a suicide, the police sometimes walk away and the family are left with no help or support and no sense of where they are supposed to go.

A suicide death is a lonely death because people stay away; they do not know what to say or how to approach the family. Often, the support that families desperately need is not there. That isolation and lack of information add to the risk of further suicides. It is important that people have ongoing support from within their community and from statutory services to see them through the grieving process.

We have also looked at the use of sport to reach out to young men. This point refers back to the question asked by the hon. Member for Beckenham (Bob Stewart) about the deaths of young men. It is important to give young men role models who have had difficulties in their life and who have contemplated suicide, despite success. Sports personalities have been particularly effective. We spoke with Ernie Benbow from State of Mind Rugby and Greg Burgess, the Choose Life co-ordinator for north Lancashire. They demonstrated how successful the use of sportsmen had been.

Madeleine Moon Portrait Mrs Moon
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I am sure that I can see a hand gesturing at me. I will give way.

Jim Shannon Portrait Jim Shannon
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The hon. Lady’s eyesight is better than she thinks. Does she agree that TV soaps can play a key role in highlighting the issue of suicide and prevent viewers from committing suicide?

Madeleine Moon Portrait Mrs Moon
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I thank the hon. Gentleman. There is a risk in how suicide scenes are written in soaps. There have been incidents in which a death by suicide in a soap opera has led to copycats and social contagion. The writing must be extremely careful. I know that many soap opera writers take their responsibility extremely seriously because they are aware of that risk.

There has been much talk about recipe websites. This week is internet safety week. It is extremely important that every Member of this House goes into schools in their area and talks to young people about staying safe on the internet. I went to Bryntirion junior school in my constituency last week and I asked a group of youngsters how many of them had ever received offensive material on the internet and how many of them had felt frightened, bullied or scared by what they saw. Every hand in the class went up. That is a world that we all escaped, but it is our duty to build awareness and protection in that world.

The work of the Samaritans is second to none. I want to highlight the work that it has done with British Transport police and Network Rail on the prevention of suicide on the railways. They have identified areas that have particular problems and trained their staff to be highly vigilant. They now provide support to people who enter their railway stations if they feel that there is a risk. That is a fantastic move forward.

I want to consider briefly the impact that the health and social care changes will have on the new suicide prevention plan for England. The all-party group carried out an inquiry into that. We issued a call for evidence that went out to all local authorities and directors of public health, via primary care trusts, local authorities and PCT clusters. That was followed by four evidence sessions in which we took evidence from representatives of the devolved nations, six areas of England and the voluntary sector.

The report concluded that the future of local suicide prevention plans in England depends on leadership and local champions, the identification of suicide prevention as a priority, availability of resources, and the long-term survival of suicide prevention groups already in place. The future of local suicide prevention plans in England is fragile and often relies on committed and dedicated individuals. That such plans are not a statutory requirement of the new national suicide prevention strategy is a major barrier to their survival, and that is particularly true when entering a time of restricted spending within local authorities. If something is not a statutory responsibility, often it will be bypassed or shelved.

There is no guarantee that health and wellbeing boards will address suicide prevention, or that existing plans will survive or be replaced. What will happen in areas where there is no suicide prevention plan and no history of taking an interest in the issue? In areas with no local champion, suicide prevention might be overlooked completely. We are talking about a suicide prevention postcode lottery, which is, in part, reflected in figures that show increases in suicide, differentiated across the United Kingdom.

There is no formal mechanism in the suicide prevention plan for England for suicide prevention groups to report directly to health and wellbeing boards. Without such a link, suicide prevention might not reach the agencies, and groups will be working in isolation, undermining their value and jeopardising their future. Engagement with the police, GPs and coroners is vital, yet in many areas such engagement is poor, patchy and inconsistent. Self-harm prevention and specialist bereavement services remain poor in many areas of the country.

Evidence from Northern Ireland demonstrates the importance of involving community organisations and the voluntary sector in suicide prevention. The existence of suicide prevention implementation groups in every locality was critical to Northern Ireland’s success and ensures that suicide prevention is not left to chance. The leadership at Government level highlighted by the hon. Member for South Antrim is also critical. Northern Ireland is making a difference.

In Wales, sadly, ministerial statements allocating responsibility for suicide planning were not published, and mandates were passed to local authorities but not implemented. That highlights the importance of national leadership, which comes up time and again in ensuring consistent implementation and showing what can result where no suicide prevention plan is in place. My local authority in Bridgend, however, is an exemplar of best practice and best planning. It learned a salutary lesson of the importance of such planning, which it now does excellently.

Evidence from Scotland highlighted the strength of a co-ordinated national approach to implementation—the Choose Life strategy—with the appointment of a co-ordinator in every local authority together with national funding and national leadership. The Minister of State, Department of Health, kindly gave an address at the launch of the report by the all-party group on suicide and self-harm prevention, and has agreed to respond to that on behalf of the Government.

Health and wellbeing boards need direction because otherwise we will end up with a hotchpotch of disorganised and unconnected policies, many of which have no evidence base. The National Institute for Health and Clinical Excellence is commissioning guidance for commissioners of self-harm services, and perhaps the Department of Health could look at doing the same for suicide prevention.

Workers in the field of suicide prevention are dedicated and committed, but isolated. Our inquiries showed the need to share best practice nationally, and in the near future we hope to hold a conference in the House of Commons to facilitate networking so best practice can be shared and so that we do not constantly expect people to reinvent the wheel. We will go back and look later at the effect of the suicide prevention plan for England and the impact of the reorganisation in England.

I mentioned briefly the importance of not linking suicide just to mental health services. The Appleby report of 1999 suggested that 75% of those who commit suicide are not known to services. That is important. We must not always look for a mental health link. If we do so, we will neglect to provide services that address a large number of people who take their own lives.

The debate is important. Suicide reflects on society as a whole. It can affect any hon. Member and any family. As the hon. Member for South Antrim has said, it can affect people whether they are rich, poor, successful, young or old. The sad tragedy that unites them all is that they are lives wasted, and lives we should set out to save.

Polycystic Kidneys

Debate between Madeleine Moon and Jim Shannon
Tuesday 6th November 2012

(11 years, 5 months ago)

Commons Chamber
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Madeleine Moon Portrait Mrs Moon
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The hon. Lady is absolutely correct. This is a little-known condition, and the horrific nature and impediments caused by the condition as it progresses are little known and little appreciated. Often, people can look quite normal but be suffering tremendously. I commend her work in trying to raise awareness.

For individuals with ADPKD, it is a truly disabling, painful and limiting condition. Kidneys become enlarged, leaving patients disfigured and appearing prematurely pregnant. The kidneys continue to function normally, but eating, sleeping and even breathing can be difficult because of the size of the kidney and the pain experienced. The liver can be affected, too, and many patients are often diagnosed with PKD and liver disease. Besides the effects on the kidneys and the liver, there is a range of other complications: heart disease, bowel problems, hernias, infections and a high risk of intracranial aneurysms.

The kidneys can weigh up to 17 lb—upwards of 10% of a person’s body weight—and in one case a patient was recorded as having kidneys weighing 48 lb. An affected liver can grow more quickly than the kidneys, effectively squashing them. PKD affects people of working age and is characterised by premature mortality. Tragically, end-stage kidney failure is common at an average age of 55—within working age, as the hon. Member for Chatham and Aylesford (Tracey Crouch) mentioned.

PKD affects an estimated 12.5 million people around the world and is the fourth most common cause of kidney failure. It is more common than sickle-cell anaemia, cystic fibrosis, autonomic dystrophy and Down’s syndrome combined. We simply do not know how many people are affected by PKD in the UK. On the one hand is the answer to my parliamentary question in July. The Department of Health said that a total of 1,100 hospital admissions in 2010-11 were identified as resulting from PKD, although I was informed that that might include repeat visits by the same individuals. On the other hand, PKD Charity’s own figures suggest that the number is far higher. On the basis of the number of people requiring a kidney transplant and dialysis as a result of PKD, it estimates that as many as 60,000 to 70,000 people could have the condition in the UK.

Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
- Hansard - - - Excerpts

I congratulate the hon. Lady on bringing this matter to the Floor of the House. My nephew, Peter Shannon, was born with posterior urethral valves, which meant a kidney transplant for him. Had he not had one, he would be dead. Does she agree that we need a bigger push to get people to sign on to the organ transplant donor list in the interest of those with kidney diseases, and those with PKD specifically, who are currently being kept alive by dialysis treatment? Transplants are important. If Members have not signed up, they should do so and encourage others in their constituency to do the same.

Madeleine Moon Portrait Mrs Moon
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I completely endorse the hon. Gentleman’s comments. It is imperative that kidneys be available for these transplant patients. It is the most generous commitment that anyone can make.

I am particularly grateful to Sandra Buckland and her husband for allowing me to quote directly from her remarks at the kidney group meeting. She bravely shared with us her experience of PKD, and I would like to share them with the House. Sandra’s powerful remarks underscore many of the points I want to make about what needs to be put in place to tackle this condition. Sandra was particularly brave in doing so, because she had also recently lost her sister, who died from PKD. She said:

“I suffer from polycystic kidney and liver disease. I am married with two sons, both with polycystic kidney disease and the youngest with polycystic kidney and liver disease. My elder son has an eight-year-old daughter with PKD and my younger son, a four-year-old son with both polycystic kidney and liver disease. My father died at age 39 with heart failure due to side effects of PKD.”

She left the group with the following question:

“Why, when I lost my own father at 17 to this dreadful disease, are lives still being lost and progress appears to be at a standstill? If more successful research could be performed, halting the genes that allow PKD to continue, it would remove the stress, heartache and trauma for many families.”

Sandra Buckland clearly demonstrates the cost of PKD to an individual and her family. It is a long-term, devastating diagnosis. At a national level the costs to the NHS are unknown, although an estimate is possible. The PKD charity believes the annual cost is £330 million. As I said in my opening remarks, PKD is currently incurable and can be managed only with dialysis and transplants, combined with monitoring, all of which are expensive. It was only in 1994 and 1996 that the two ADPKD genes were discovered. The ARPKD gene was characterised only in 2002.

Funding for research is limited. In the US, $360 million has been invested in research over the past 15 years —$45 million in 2009 alone. The House will be shocked to learn that the total investment in research in the UK and the European Union is zero. The PKD charity recently funded a small biobank of PKD kidney cells at the UCL-Royal Free, and together with the US PKD foundation, it has funded one small laboratory study in Sheffield. This funding is all reliant on donations. It is telling that in the past 12 years there has been no improvement in the life expectancy or average age of renal replacement therapy of 55 years for someone diagnosed with ADPKD.

It cannot be acceptable for PKD to remain a neglected condition in terms of research and the development of treatments. Transplants and dialysis are costly. Developing treatments would not only improve the quality of life for patients, but reduce the cost to the NHS. The PKD charity has recently begun work with the UK renal registry to develop an analysis of PKD patients on renal replacement therapy. Would the Minister consider supporting the extension of this work to include pre-dialysis patients by asking the Renal Association to develop quality standards relating to ADPKD? Would she also support changes to governance requirements that would enable the UK renal registry to collect the data, and provide the necessary funding of £500,000 for the analysis and publication of these data?

I appreciate that £500,000 may appear a large sum, but compared with the long-term savings, it is a small investment for a huge return. Funding the registry would overcome a major barrier to understanding ADPKD, support care planning and counselling, and provide cohorts for clinical studies. The information is not available at present, so there is no foundation in place on which to build a meaningful research programme.

New drug treatments are being developed, but getting access to them is not without its challenges. One PKD patient with polycystic liver disease contacted me to describe how she self-funded her involvement in a drugs trial in Italy over three years, travelling back and forth to Italy monthly for three years at her own cost. During the trial, her symptoms improved considerably. The trial has finished and her condition is rapidly deteriorating. Her local PCT refused to fund ongoing treatment. Her long-term survival is being determined by finances.

Last December the Prime Minister announced a package of support for the life science sector, which included an early access scheme for seriously ill patients with limited treatment options to receive promising new drugs in clinical trials. This accurately describes PKD patients. Will the Minister take steps to ensure, as a matter of priority, that PKD patients are included in access to drugs in clinical trials?

Last weekend a drugs trial in the Netherlands reported positive results in altering the progression of ADPKD. The drug will now be presented to the European Medicines Agency for licensing—

Credit Unions (Modernisation)

Debate between Madeleine Moon and Jim Shannon
Tuesday 10th July 2012

(11 years, 9 months ago)

Commons Chamber
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Madeleine Moon Portrait Mrs Moon
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My hon. Friend is completely right. We must take on board the fact that those are families who want to work and who get into debt in order to continue working, because they know that continuing to work will give their children a better start in life. They need support, and credit unions can give them a better level of support.

Greater competition for the high street banks and the more widely available source of affordable credit are both things that credit unions can offer. Therefore, what should be done to nurture credit unions and ensure that they can fill the gap while achieving long-term sustainability? The main recommendations of the feasibility report can best be summarised as the need to increase efficiency, to increase revenue and to increase skills. I understand that the Government plan to take forward the report’s recommendations and that the additional earmarked investment of £38 million will be conditional on the credit union industry meeting a number of agreed milestones for collaboration, modernisation and expansion. I hope that the Minister will elaborate on how that will work in practice.

I shall look at the changes in turn. Increasing efficiency, from the point of view of greater automation, reorganisation and collaboration, makes sense. Close working among credit unions and the ability to provide a greater variety of services to a larger customer base is clearly important, but I want to sound a note of caution. Part of the appeal of credit unions is their ethos of independence. In the section, “The Way Forward”, the report recommends that the Government select the best performing credit unions, which make commitments to fulfil certain requirements. The Department for Work and Pensions has suggested that, for that to work, credit unions would need to form consortiums of 15, with a joint minimum membership of 120,000.

Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
- Hansard - - - Excerpts

I thank the hon. Lady for bringing this matter to the House. In my constituency credit unions play a vital role in local communities and deliver to the people who really cannot afford banks. Does she agree that the Government changes should take into full consideration the importance of small credit unions and what they deliver to local communities?

Madeleine Moon Portrait Mrs Moon
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I thank the hon. Gentleman for his intervention. That is exactly where I was going in my speech. The average size of a credit union is around 8,000 members, but many fall below that, including Bridgend Lifesavers. Its membership is growing, but it is still about 3,000, so it would be excluded from the modernisation plans. In fact, it would be impossible to meet the target of 120,000 members given that we do not have that total membership across Wales. Wales is a vibrant and active country for credit unions, and I have no problem being ambitious about what they can achieve, but I would like an assurance from the Minister that smaller credit unions that provide valuable services to their communities, such as Bridgend Lifesavers, will not get lost in a stampede aimed at economies of scale. Perhaps we could hear about the measures to be introduced to protect smaller, but still valuable, credit unions. I recognise the need to increase revenue through the expansion of membership and by increasing the products available and the interest rate that credit unions are able to charge.

Demand for credit unions is certainly not a problem, as the feasibility report’s research found. Of 4,500 consumers on a low income who were contacted, 60% expressed a desire for local trusted services, such as those provided by credit unions. The crunch came when they were asked about their awareness of local credit unions, with only 13% of those surveyed being aware of the services that unions provided. That might in part be explained by the previous links required for membership, so the legislative reform order that came into force in January will, I hope, tackle that issue, and I thank the Government for taking the measure forward.

The feasibility report emphasises the need to raise consumer awareness and to develop a strong credit union brand. A national marketing campaign is needed not only to reach those on lower incomes, but to broaden the appeal of credit unions generally. In the United States and in Canada, 40% of people are members of credit unions. The credit union is not just a low-income organisation; it is active across the income spectrum.

Sunday Trading (London Olympic Games and Paralympic Games) Bill [Lords]

Debate between Madeleine Moon and Jim Shannon
Monday 30th April 2012

(12 years ago)

Commons Chamber
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Jim Shannon Portrait Jim Shannon
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I am reminded of a comment I made last week: if it smells like a horse and looks like a horse, we do not want it to become a donkey.

Madeleine Moon Portrait Mrs Moon
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We have heard the reassurance from the Government that there is no stalking horse and that no precedent is set by the measure. I spoke to a young student at the weekend who is working in a local supermarket to earn the money to pay for his university tuition fees. I asked him about the Bill, and his response was: “We were promised no rise in tuition fees. How much do you trust these offers and promises?” What does the hon. Gentleman suggest I say to that young man?

Jim Shannon Portrait Jim Shannon
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Obviously, it is not for me to say—perhaps the Minister can comment on that—but we all know what we feel in our hearts, which is clearly the issue.

Last year, two listening exercises were held on whether to repeal the current restrictions on Sunday trading. The results showed that the current settlement was proportionate and that there was no real appetite to change the law. In fact, a lot of people are opposed to any change or relaxation. The hon. Member for Blaydon (Mr Anderson) commented on this earlier, but an USDAW survey of 10,000 shop workers, which is a significant number, clearly illustrates their opinion. Seventy-seven per cent. oppose longer opening on Sundays during the Olympics; only 12% support it, but we are pushing ahead with legislative change. Forty-eight per cent. of staff are already under pressure to work on Sundays when they do not want to do it to start with, and 71% of shop workers believe that longer Sunday opening will lead to more pressure on them to work on Sundays against their will, which is the very issue described by my right hon. Friend the Member for Belfast North (Mr Dodds), which many hon. Members feel is important.

Those figures could not be clearer. What is the point of asking people and then ignoring their response? There is no point. The democratic process means that we should listen to the opinions of our constituents and represent the majority of them in the House. It would be remiss of all hon. Members not to aim to do so. The question is: if we do not allow the extra hours of trading, will retailers’ Sunday opening hours harm our reputation and ability to host the games? The answer is no, and there is no evidence to say otherwise.

Visitors will still be able to eat in a plethora of first-class restaurants and enjoy the ambiance of typical English pubs, and purchase any necessaries in the many garages that are now almost like small supermarkets. Why do we need the big stores for that? Visitors can still go to a Sunday market or enjoy an evening at the cinema or concerts. Will their view of the UK be tainted by the fact that some stores open for only a few hours one day a week? Again, the answer is no. None of that would detract from people enjoying what we have to offer or stop people returning and enjoying the long and rich British history of which we are all proud to be part.

We can be assured that people will enjoy their visit not because our supermarkets are open seven days a week, but because they are greeted with a smile in the streets, or because they see beautiful towns and thrive on our legendary hospitality in this country. The length of time that shops are open is irrelevant, and we should not change Sunday trading laws.

Any Olympian will say that the body needs rest from training. If they push too hard, they will see no benefit, but will suffer breakdown and injury. Our business people work hard and deserve their few hours off at the weekend. To take that away will only cause harm and injury to our families and individuals across the country, and I cannot support that.

The Prime Minister has said that we need to emphasise our Christianity and go back to being that Christian country that we were once famed as being. I wish that was true and I wish the evidence meant I could say, “Yes, that is exactly right,” but tonight there is a one-line Whip for Opposition Members and a three-line Whip for Government Members. Is it true, as the Prime Minister has said, that we must emphasise our Christianity? The proof of the pudding is in the eating, and we will see what happens when it comes to the vote later on. That being the case, enabling people to enjoy their family life, their attendance at church and the inspiration of their preachers, and their day of rest, is a firm foundation, and to take it away is to erode that foundation, which I wish to see retained. I believe many Members on both sides of the Chamber wish it to be retained.

I oppose the relaxation of Sunday trading legislation and urge hon. Members to consider more than profit and loss, and more than the ledger book, when casting their votes tonight.