(1 week, 4 days ago)
Commons Chamber
Martin Wrigley (Newton Abbot) (LD)
I will focus on two things: the changes in data privacy and access to support a centralised single patient record, and the abolition of Healthwatch.
Healthwatch is not the same as the other regulators and it should not be amalgamated. Regulators can be amalgamated only if they have a single purpose and a single viewpoint. Healthwatch today is not a regulator but a patient advocate and there are no others in the system. Without Healthwatch, the remainder of the checks and balances come from the medical profession and the health establishment—and we have seen cases where that goes wrong. Healthwatch guards against that. It is a vital body to speak up for the patient, rather than the NHS itself.
James Naish (Rushcliffe) (Lab)
I have had a look at the parliamentary record; Healthwatch has been mentioned over 100 times in the past five years. One key area of focus is its reporting and the insights it provides to Members of Parliament. Does the hon. Gentleman agree with me that whatever replaces Healthwatch must retain that research focus?
Martin Wrigley
I absolutely agree with the hon. Member. We heard earlier how Kevin Dixon of Devon gives us excellent reports of what is happening with Healthwatch.
The modern NHS must run on data, but critically, on data that carries the consent of patients. A single patient record is undeniably critical to see the data of patients all in one place, but it must be built from a patient’s point of view, not from a centralised data-analysis point of view, and with privacy by design from day one. We obviously need GPs to see hospital data and vice versa, and ambulances to see everything that they need to help, but we do not need the new regulation to do that.
The single patient record already exists in a federated model; in Greater Manchester, Merseyside, Shropshire and more, trusts already run interoperable access for care services, GPs and hospitals. The Government admit that but claim it is partial and fragmented. They also claim that the data will remain in the systems where it currently exists. However, with the Bill, the Government are asking to remove all protection of patient data—look at proposed new sections 250E(1) and (3) to the National Health Service Act 2006 as set out in clause 47(2) of the Bill. We are asked to trust somewhere below primary legislation that it will all be okay—we should trust the regulation. It is a big-tech approach to deliver an overreaching centralised system, rather than a distributed interoperable solution.
NHS England has ignored and discounted UK sovereign systems that can and do provide what is required along with patient trust. Systems built over years with focus on patient treatment and defined use cases could be rolled out today with no change required in law and privacy by design built in from day one. Greater Manchester and others have the single patient record capability and the hard-won foundation of trust.
I will be tabling amendments to remove the relaxation of data privacy from the Bill. The measures are unnecessary if NHS England does not follow the Palantir advice and instead follows what has been proven to work in Greater Manchester, Merseyside, Shropshire and many other places. Perhaps it is an example of something that has worked in Manchester that might work everywhere.
(1 month, 2 weeks ago)
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James Naish
My hon. Friend is absolutely right. The consultation is being run for a reason. I encourage anyone watching the debate or emailing their MPs about it to go further and engage with the consultation, because I am sure that the Minister is looking forward to review those responses.
Martin Wrigley (Newton Abbot) (LD)
I thank the hon. Member for securing this valuable debate. I have a good number of park home sites in my constituency. Not only do they suffer the 10% commission, poor maintenance levels and high service charges, but they have atrocious service on the utilities that they have to buy through the park home owner. Some years ago, one site collectively was charged £100,000 for a water leak, which was £1,000 a home. I got that refunded from South West Water. The same site recently had blocked drains over a weekend, so people could not flush their toilets, and their Calor gas system was deemed unfit for use, so they had no heating. Is that an acceptable way to run a site? Does the hon. Member agree that residents need better enforcement and support, and not just from the site owner?