Speech in Westminster Hall - Wed 09 Mar 2016
Clinical Negligence Claims
"Will the right hon. and learned Gentleman give way?..."Pat McFadden - View Speech
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Speech in Westminster Hall - Wed 09 Mar 2016
Clinical Negligence Claims
"The right hon. and learned Member for Harborough (Sir Edward Garnier) said that law firms currently reject 90% of cases brought to them because the burden of proof is high. I therefore do not think that we should portray this as a field of many frivolous claims. With that degree …..."Pat McFadden - View Speech
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Speech in Westminster Hall - Tue 24 Mar 2015
Vaccine Damage Payments Act
"I will not detain the House for long. I want briefly to raise the case of my constituent Stacey Jones, who suffered life-altering changes to her health following the administration of the HPV vaccine six or seven years ago. For Stacey it has meant seizures and mood swings—severe continuing problems …..."Pat McFadden - View Speech
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Speech in Westminster Hall - Thu 15 Jan 2015
NHS Specialised Services
"I apologise that I could not be here for most of this debate, but among the conditions that my hon. Friend is mentioning, I urge him and the Minister not to forget sickle-cell anaemia. Sufferers feel that there is a damaging variability in the quality of treatment available throughout the …..."Pat McFadden - View Speech
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Speech in Westminster Hall - Wed 10 Dec 2014
Sickle Cell Anaemia
"It is a pleasure to debate this matter under your chairmanship, Mr Owen. Sickle cell anaemia affects an estimated 12,000 to 15,000 people in the UK and around 400 people in the west midlands, where my constituency lies. The associated condition, thalassaemia, affects around 1,000 people, although hundreds of thousands …..."Pat McFadden - View Speech
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Speech in Westminster Hall - Wed 10 Dec 2014
Sickle Cell Anaemia
"That is a very good point. Shortened life span is one effect of the condition, and there is certainly more to do on the research and treatment fronts.
Organisations such as those I mentioned are doing a tremendous job in explaining what the condition means for sufferers, calling for more …..."Pat McFadden - View Speech
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Speech in Westminster Hall - Wed 10 Dec 2014
Sickle Cell Anaemia
"I thank the Minister for outlining the nature of the specialist care teams that are in place. He is right, but the critical point made by the report from the peer review exercise was that although that approach worked well in some places, it did not work as well in …..."Pat McFadden - View Speech
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Written Question
Monday 8th December 2014
Asked by:
Pat McFadden (Labour - Wolverhampton South East)
Question
to the Department of Health and Social Care:
To ask the Secretary of State for Health, what research his Department has published on sickle cell anaemia in the last four years.
Answered by George Freeman
The NIHR Journals Library comprises a suite of open access journals providing a permanent archive of research funded by the Department’s National Institute for Health Research (NIHR) through five NIHR programmes (Efficacy and Mechanism Evaluation; Health Services and Delivery Research; Health Technology Assessment; Programme Grants for Applied Research; Public Health Research). The NIHR Journals Library is available at:
http://www.journalslibrary.nihr.ac.uk/
The following reports relating to sickle cell anaemia have been published in the NIHR Journals Library in the last four years:
- The clinical effectiveness and cost-effectiveness of primary stroke prevention in children with sickle cell disease: a systematic review and economic evaluation (2012)
- Antenatal screening for haemoglobinopathies in primary care: a cohort study and cluster randomised trial to inform a simulation model. The Screening for Haemoglobinopathies in First Trimester (SHIFT) trial (2010)
Across all NIHR funding streams, and across all topic areas including sickle cell anaemia, the Department and the NIHR require that NIHR funded researchers seek to publish their research outputs in a peer-reviewed journal that is compliant with the NIHR policy on open access.
Written Question
Monday 8th December 2014
Asked by:
Pat McFadden (Labour - Wolverhampton South East)
Question
to the Department of Health and Social Care:
To ask the Secretary of State for Health, when he last met the Sickle Cell Society; and if he will make a statement.
Answered by Jane Ellison
Genetic Alliance UK, of which the Sickle Cell Society is a member, are represented on the Department’s UK Rare Disease Forum, which meets regularly to discuss issues of United Kingdom rare diseases policy and to monitor the implementation of the UK Strategy for Rare Diseases.
There have been no recent direct discussions between my Rt. hon. Friend the Secretary of State for Health and the Sickle Cell Society.
Written Question
Monday 8th December 2014
Asked by:
Pat McFadden (Labour - Wolverhampton South East)
Question
to the Department of Health and Social Care:
To ask the Secretary of State for Health, how much the NHS spends on sickle cell anaemia; and what proportion this is of the total NHS budget.
Answered by Jane Ellison
There are an estimated 250,000 people with the sickle cell trait in the United Kingdom. The Department has made no estimation of the annual cost of treating sickle cell anaemia in the National Health Service nor does it hold information on the total NHS spend on sickle cell anaemia.
The Department does hold estimated costs for admitted patient care episodes as reported by Healthcare Resource Groups. In 2013-14 the total estimated figure for sickle anaemia was £23.8 million; in 2012-13 it was £21.9 million. This figure does not include other costs such as primary and social care.