Asked by: Pippa Heylings (Liberal Democrat - South Cambridgeshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, when he plans to launch the study to sequence the genomes of 150,000 adults.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
The 10-Year Health Plan for England committed to launching a large-scale study, led by Genomics England, to sequence 150,000 adult genomes and assess how genomics can support routine preventive care. Work is now underway to design the study, develop scientific and clinical methodologies, and establish governance in line with major programme standards. Genomics England has commissioned a structured literature review and launched the Genomics, Healthcare and You engagement programme to understand diverse public and professional perspectives on pre-emptive, preventative population healthcare, while building trust and transparency. This engagement will run through 2025/26, with interim findings shaping study design and recruitment strategies which will be developed in 2026/27. Subject to ethics approval, the recruitment and sequencing of participants is expected to begin from 2027.
Asked by: Pippa Heylings (Liberal Democrat - South Cambridgeshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent assessment he has made of progress against the commitment in the NHS 10 Year Plan for Health to launch a new large-scale study to sequence the genomes of 150,000 adults and assess how genomics can be used in routine preventive care.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
The 10-Year Health Plan for England committed to launching a large-scale study, led by Genomics England, to sequence 150,000 adult genomes and assess how genomics can support routine preventive care. Work is now underway to design the study, develop scientific and clinical methodologies, and establish governance in line with major programme standards. Genomics England has commissioned a structured literature review and launched the Genomics, Healthcare and You engagement programme to understand the diverse public and professional perspectives on pre-emptive, preventative population healthcare, while building trust and transparency. This engagement will run through 2025/26, with interim findings shaping study design and recruitment strategies which will be developed in 2026/27. Subject to ethics approval, the recruitment and sequencing of participants is expected to begin from 2027.
Asked by: Pippa Heylings (Liberal Democrat - South Cambridgeshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase the early identification of palliative care needs.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
Early identification of someone who has palliative and end of life care needs is vital. There are tools to aid clinicians in identifying those approaching the end of life, for example the Supportive and Palliative Care Indicators Tool and the EARLY toolkit. Further information on the Supportive and Palliative Care Indicators Tool and the EARLY toolkit is available, respectively, at the following two links:
https://www.spict.org.uk/the-spict/
The Government is developing a Palliative Care and End of Life Care Modern Service Framework for England. I refer the Hon. Member to the Written Ministerial Statement HCWS1087, which I gave to the House on 24 November 2025.
Asked by: Pippa Heylings (Liberal Democrat - South Cambridgeshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department are taking to ensure that England has a palliative care workforce able to cope with increases in demand for end of life care.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The Government is committed to publishing a 10 Year Workforce Plan to set out action to create a workforce ready to deliver the transformed service set out in the 10-Year Health Plan. The 10 Year Workforce Plan will ensure the National Health Service has the right people in the right places, with the right skills to care for patients, when they need it, including in palliative care and end of life care.
The Government is developing a Palliative Care and End of Life Care Modern Service Framework for England. I refer the Hon. Member to the Written Ministerial Statement HCWS1087, which I gave to the House on 24 November 2025.
Asked by: Pippa Heylings (Liberal Democrat - South Cambridgeshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department are taking to reduce emergency hospital admissions involving people who are in the last 12 months of life.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
Our 10-Year Health Plan sets out that community-based advice and support will help more people die in their home, while community teams will work closely with care homes and paramedics to share care plans to avoid people being taken to accident and emergency unless absolutely necessary. Those teams can include hospice outreach staff and palliative care professionals. Additionally, rapid response teams will help symptom management, including pain.
The Government is developing a Palliative Care and End of Life Care Modern Service Framework for England. I refer the Hon. Member to the Written Ministerial Statement HCWS1087, which I gave to the House on 24 November 2025.
NHS England has published universal principles for advanced care planning (ACP). These principles facilitate a consistent national approach to ACP in England. The principles focus on the importance of providing opportunities for a person and their family or carers to engage in meaningful discussions, led by the person concerned, which consider that person’s priorities and preferences, including the place of care, when they are nearing the end of life. The universal principles for ACP are available at the following link:
https://www.england.nhs.uk/publication/universal-principles-for-advance-care-planning/
Asked by: Pippa Heylings (Liberal Democrat - South Cambridgeshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if his Department will consider providing financial support for children living with Coeliac disease.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
We recognise the pressures families face in managing coeliac disease, particularly the additional costs of maintaining a strict gluten-free (GF) diet, which is the only effective treatment for this condition.
The national prescribing position in England remains that GF bread and mixes can be provided to coeliac patients on a National Health Service prescription, and a wide range of these items continue to be listed in Part XV of the Drug Tariff. This means that prescribers can issue NHS prescriptions, based on a shared decision between prescriber and patient, while also being mindful of local and national guidance. Children under 16 years old, and those aged between 16 to 18 years old in full-time education, are entitled to free NHS prescriptions, ensuring that where integrated care boards support GF prescribing, eligible children can access these products without charge.
Asked by: Pippa Heylings (Liberal Democrat - South Cambridgeshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether his Department has made an assessment of the adequacy of (a) NHS and (b) hospice funding allocations in (i) Greater Cambridge and (ii) other high-growth areas.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
NHS England is responsible for determining allocations of financial resources to integrated care boards (ICBs). This process is independent of the Government, and NHS England takes advice on the underlying formula from the independent Advisory Committee on Resource Allocation.
ICB allocations for 2025/26 were published on 30 January 2025, and allocations for 2026/27 to 2028/29 will be published in due course. Further information on allocations in 2025/26 is available at the following link:
https://www.england.nhs.uk/publication/allocation-of-resources-2025-26/
Palliative care services are included in the list of services an ICB must commission. To support ICBs in this duty, NHS England has published statutory guidance and service specifications. The statutory guidance states that ICBs must work to ensure that there is sufficient provision of palliative care and end of life care services to meet the needs of their local populations, which can include hospice services available within the ICB catchment.
The Department and NHS England are currently working at pace to develop plans on how best to improve the access, quality, and sustainability of all-age palliative care and end of life care, including that provided by hospices, in line with the 10-Year Health Plan.
We are supporting hospices in England with a £100 million capital funding boost for adult and children’s hospices to ensure they have the best physical environment for care. The Arthur Rank Hospice in Cambridge is receiving £941,496 from this funding.
Asked by: Pippa Heylings (Liberal Democrat - South Cambridgeshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve coordination between hospital trusts, Integrated Care Boards and hospices to support patient transitions from hospital to community-based end-of-life care.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
National Health Service bodies and local authorities have a duty to co-operate to provide appropriate discharge support according to local need to enable effective and timely discharge. This is of particular importance for individuals who may require palliative and end of life care services.
The Hospital discharge and community support guidance outlines that health and care providers should collaborate to prevent common issues that could disrupt the provision of care as part of the discharge process. Providers should also have regard to the fast-track pathway tool for NHS continuing healthcare to ensure individuals receive timely, appropriate, and compassionate support following discharge. The Hospital discharge and community support guidance is available at the following link:
The Department and NHS England are currently working to develop plans on how best to improve the access, quality, and sustainability of all-age palliative care and end of life care in line with the 10-Year Health Plan.
Asked by: Pippa Heylings (Liberal Democrat - South Cambridgeshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure sustainable long-term funding for hospices through Integrated Care Boards.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The Department and NHS England are currently working at pace to develop plans on how best to improve the access, quality, and sustainability of all-age palliative care and end of life care in line with the 10-Year Health Plan.
We are supporting hospices in England with a £100 million capital funding boost for adult and children’s hospices to ensure they have the best physical environment for care. We are also providing £80 million for children’s and young people’s hospices over the next three financial years, giving them stability to plan ahead and focus on what matters most, caring for their patients.