Disabled Children: Accessible and Inclusive Education

Debate between Rachael Maskell and Lisa Cameron

Wednesday 9th December 2020 Westminster Hall

[Dr Cameron]

I absolutely agree with the hon. Gentleman. That is an excellent point and it was well made. Children with disabilities have often lost out on educational provision because the format has moved almost wholeheartedly on to Zoom and the internet. I have been contacted by many families who have children with autism, who do not particularly like that format and will not engage with it, and by families who have children with sensory impairments, who cannot receive the adaptations in time to use the format at all. That has led to children with disabilities being disproportionately affected by the pandemic.

[Rachael Maskell (York Central) (Lab/Co-op)]

I am grateful to the hon. Lady for securing the debate. I want to raise the issue of access to education for disabled children. They cannot access education if they cannot get there, and, despite personal transport budgets, the school transport system is limited. I have a case where only 50% of a constituent’s costs are covered. Is it not right that we ensure that local authorities have sufficient provision to enable all children to access education?

[Dr Cameron]

Absolutely. The hon. Lady makes an extremely important point, which is echoed by my experience in my constituency. I have been contacted by a number of families. Local authority provision means that a young child with autism, who does not like close physical contact, has had to travel for hours in a taxi with individuals to whom he is not accustomed. That has caused behavioural issues and really impacted on his education. It is incumbent on us as legislators to make sure that those who are most vulnerable have access through local authorities to the provision that they need to meet their educational and care needs, and that takes account of their sensory, development or learning difficulties. I thank the hon. Lady for making that point.

Provision of inclusive education was greeted with absolute optimism by those who had long campaigned for it. Unfortunately, however, many aims have been left unfulfilled. There are gaps in support and a need for additional funding, as I have highlighted. Another issue that must be addressed is specialist professionals providing support for children with disabilities. As with so many underlying issues in our society, covid-19 has shone an additional light on the many challenges and barriers that children with special educational needs face in their everyday lives. It has exacerbated them, as I have explained.

Before the pandemic, the Disabled Children’s Partnership identified a £1.5 billion funding gap in health, social care and education, which would need to be filled to adequately support disabled children and their families. Sense has also noted that the gradual erosion of specialist support available to disabled children has significantly hampered the ability of the school system to provide accessible and inclusive education. There is an ever-decreasing number of teachers for the deaf, the visually impaired and those with multi-sensory impairment. Will the Minister comment on that provision and funding, and outline a plan to meet the needs of children and families? The lack of provision not only hampers participation; it also means that education, health and care needs assessments often lack input from an education specialist, such as an educational psychologist—I declare an interest and refer to the Register of Members’ Financial Interests. Appropriate adjustments in the classroom can also be missed.

Since the start of the pandemic, many parents of children with special needs have done their absolute best to educate them from home. We should celebrate the introduction of tools to help them, such as Freeview’s accessible TV guide, which has helped facilitate remote learning through making programmes such as “Newsround”, “Bitesize Daily” and “Horrible Histories” accessible in a range of formats during the pandemic. However, a lack of specialist equipment and broader resources for parents has meant that many now fear that their children’s education has suffered disproportionately. Parents have struggled to cope.

Despite schools returning full time, the Disabled Children’s Partnership has found that 24% of children with disabilities have not yet returned to school full time. Many are being taught on part-time timetables due to health and safety concerns, making their needs all the more immediate. The return to school has been particularly challenging for pupils with tracheostomies and those with aerosol-generating procedures, as delayed Government advice, finally published on 13 November, left many families feeling in limbo for months. Furthermore, the Coronavirus Act 2020 suspended a number of key provisions in the Children and Families Act 2014, which has meant that 31% of children with disabilities are still waiting for key therapies to be restarted. Some 51% of those waiting for an assessment for an education, health and care plan have been waiting more than six months, which is entirely unacceptable for families who are struggling to provide the care that is so necessary for their children.

With that in mind, I implore the Minister on behalf of children with disabilities and the all-party parliamentary group for disability to do everything in her power to ensure that children with disabilities are able to return to specialist and mainstream education as soon as is safely possible. I also ask that she ensure that provisions in the Children and Families Act 2014, which are key to ensuring disability inclusion in the classroom, are resumed without delay.

There is increasing anxiety among many qualified health professionals and therapists who work in schools—and who are absolutely key to disability inclusion in the classroom—that they might be redeployed to hospitals and health services in the coming months. That could be incredibly detrimental to the learning of children with special educational needs. I therefore ask the Minister to ensure that medical support for children with disabilities is maintained out of this pandemic, and that continuity of care for children with special educational needs in the classroom is protected.

I have been contacted by the OHMI Trust, which undertakes truly innovative work adapting musical instruments for children with special educational needs, to highlight the importance of music as a key element in inclusive education. To this day, this is often denied to children with special educational needs due to lack of awareness among music teachers or tuition providers, or a lack of specialist equipment that has been tailored to a child’s particular disability or needs. Music can provide an opportunity for socialisation and creativity, and has also been linked to improved academic achievement. I would welcome a comment from the Minister about ensuring that music is not omitted from any efforts to include children with disabilities going forward, and to work collegiately with the OHMI Trust to develop specialist instruments for children across the United Kingdom who have special educational needs.

Before I finish, I will touch on further education for those with special educational needs, and particularly the case of Mr Gary Copland from my constituency. A student at the University of Glasgow, Gary is in his mid-20s, has been registered blind since birth and has autism. He is currently studying for a bachelor of law. Gary was forced to go part time due to poor levels of support, and is now in his fifth year. In his first year, he was given only one course text adapted for his disability, five days before the end of term. In his second year, he had only four textbooks, leaving him to write all essays and take exams from memory. He has had no working IT for over 43 weeks, leaving him unable to graduate with everyone else in his year. The whole family is suffering from trauma as a result of these issues, and Gary has lost 30 kg and is now medicated for depression. I ask the Minister to speak with universities to look at these issues, Gary’s in particular—perhaps the Equality and Human Rights Commission could review this particular case.

Finally, I would welcome a statement or response from the Minister on the Government’s funding plans for disability-inclusive education. In 2019, a review of special educational needs criteria and practice was promised, but this publication has been delayed. It would be remiss of me, therefore, not press the Government for a date or timeline for publication. Despite the current circumstances, it is an absolute priority. It would also be helpful to have an update on autism assessments and the progress the Government are making, because many families tell me that they cannot receive the support required for children who have autistic spectrum disorder in school, or at home, because they are still struggling to get assessments.

[Rachael Maskell]

I am grateful to the hon. Member for mentioning autism, because currently it is very much viewed through a medical model, so people are unable to access the support they need until they have a diagnosis. Does she agree that we need to look at this through a much more social model, in order to ensure early intervention support for parents, as well as for young people?

[Dr Cameron]

Absolutely, that is crucial. Getting earlier assessment, intervention, and support, even if a diagnosis is taking a long time, is crucial to help and support children and families to cope. That really must be addressed, and all too often children and families who are awaiting diagnosis have no support in the interim, which is really a failure of the system for those who are most vulnerable.

Lastly, speaking from my background as a psychologist, I believe that disability has to be at the heart of Government’s response to the mental health concomitants of the pandemic among young people. Children with disabilities are far more likely to have been isolated during the last eight months, to have seen disruption to their care and treatment, and because of the difficulties of adapting to home learning they are at increased risk of seeing their academic progress fall apart and fall behind that of their peers. We must do everything we can to support, include and cherish every single child with special educational needs across the United Kingdom. That is the aim of the all-party parliamentary group on disability, because we know that these children have so much potential and so much to offer their families, the community and society at large.

Down Syndrome Awareness Month

Debate between Rachael Maskell and Lisa Cameron

Thursday 22nd October 2020 Commons Chamber

[Rachael Maskell (York Central) (Lab/Co-op)]

I am grateful to the hon. Member for securing this debate, having worked with people with Down’s syndrome for many years. I put on the record my huge gratitude to the Once Seen theatre company in York, where people with Down’s syndrome act. Their acting is so powerful and so moving, because it is about life experience. Does she agree that we need to put on a platform so much of the talent that people with Down’s syndrome have?

[Dr Cameron]

Absolutely. I am thankful for that intervention, which exemplifies our debate and the change in the narrative that all of us across this House wish to see. We should be promoting the excellent work of those individuals and groups with Down’s syndrome who are achieving so much in society.

Up About Down is a campaign run by the Windsor Essex Down Syndrome Association, a fantastic charity that has being raising awareness about Down’s syndrome through positive and accurate information since it was founded in 1990. It is all about changing the narrative surrounding Down’s syndrome; it is about looking beyond medical prognoses and seeing the individual stories and successes of individuals with Down’s syndrome who live happy and fulfilled lives and who are crucial contributors to local communities, economies and industries. It is absolutely in that spirit that I bring this debate before the House.

In 2019, an article was published that caught my eye, entitled “10 brilliant breakthroughs by people with Down Syndrome”. It highlighted Zack Gottsagen, a theatre major graduate of the Dreyfoos School of the Arts who starred in

“a modern Mark Twain style adventure story, The Peanut Butter Falcon, which tells the story of Zak…a young man with Down syndrome, who runs away from a residential nursing home to follow his dream of attending the professional wrestling school of his idol”.

The article also highlighted Heba Atef, who

“became the first-ever Egyptian flight attendant with Down syndrome to embark on a special flight from Cairo to Khartoum…the ‘Journey of Humanity’ took place under the sponsorship of the UN International Committee and was specifically tailored for people with special needs.”

The article notes that the Swindon Advertiser reports that

“a scaffolder living with Down’s syndrome was named Britain’s number one apprentice. His boss, the owner of Coles Scaffolding company Martyn Coles, said Todd had great determination. ‘He comes in every day and proves people wrong. Winning the award just shows he can do it.’”

Emmett Kyoshi, a teenage artist living with Down’s syndrome in Chicago, hosted his third art exhibition in 2019,

“showing the world that the extra chromosome he was born with is anything but a disability.”

Then there are Madeline Stuart—the world’s first catwalk model with Down’s syndrome—and Francesca Rausi, who have been credited for proving society’s perception of beauty wrong. They had the opportunity of walking at New York Fashion Week and meeting some of Hollywood’s biggest stars; again, they changed the narrative.

Closer to home, Positive about Down Syndrome told me about Tom, who lives in London and has two part-time jobs as a barman and catering assistant and is also an award-winning weightlifter; Bethany who works for West Mercia police; and Hayley from Essex, who loves singing and acting and is part of a drama group performing at the London Palladium. These few accounts represent the stories of so many: those students with Down’s syndrome who are in college or university; those who have jobs and hobbies; those who are moving home, winning awards, falling in love, getting married and achieving great things.

For each of these stories, there are also children who have dreams and aspirations. I heard about Rebecca, who wants to perform on stage; Ben, who wants to be a postman; Jessica, who wants to be a pop star; Jack, who wants to play football for Nottingham Forest or Manchester United; Hollie, who wants to be a vet; James, who wants to be a police officer; and Samantha, who wants to be a make-up artist. I am sure that I speak for every parent when I say that we support and absolutely share in the dreams of our children every single day.

A sense of fulfilment and purpose that people with Down’s syndrome have from their work is a common thread connecting many of the accounts that I have mentioned. With that in mind, I draw particular attention to the work of the Down’s Syndrome Association and the importance of its WorkFit scheme. The WorkFit scheme was set up to train and assess employers who want to include those with Down’s syndrome in their workforce. All employers registered with WorkFit receive training, which includes their duties under the Equality Act 2010, and practical advice on how to make reasonable adjustments. The Down’s Syndrome Association is in constant dialogue with companies and organisations that have employees placed with them through WorkFit, to answer any queries they may have, and to work through any challenging situations. The programme was set up in December 2011, and to date it has placed 416 individuals with Down’s syndrome in a range of full-time, part-time and volunteer roles, as well as in adapted internships.

In recent weeks the Government announced the kickstart scheme, and I want to ask the Minister whether young people with learning disabilities, or disabilities, could perhaps be further supported through that scheme, or through an internship or apprenticeship. The excellent Speaker’s internship scheme for people with disabilities was developed in 2016, and perhaps there is more that hon. Members could do to support the training, inclusion, skilling and work of those who have Down’s syndrome.

I am delighted to chair the new all-party group for inclusive entrepreneurship, which was established to remove barriers and raise the profile of entrepreneurs with protected characteristics, particularly disabilities. We must also change the narrative more broadly from disability to ability, and from being solely about employees to people having the potential to become employers. Will the Minister consult colleagues in government, and find out whether there are particular supports and schemes for which those with disabilities can perhaps be given funding or additional support for adaptations, so that they can start their own businesses with their skills, talents and abilities?

A study by Mencap found that 62% of adults with learning disabilities in the UK want to work, although only 6% have a paid job. We need to address that, and we must all play our role in our constituencies, and by working across the House and across parties, to ensure an inclusive employment programme for everyone across the UK. In this time of covid a recession could occur, and many jobs are already at risk. We would not wish one of the outcomes of covid to be a further tragic impact on those with disabilities.

Government mantras of “building back better” and “levelling up” can and should include people with disabilities and Down’s syndrome, making every aspect of society richly diverse and productive. I will conclude with a quote from a young lady, Kate Powell, which was provided to me by the Down’s Syndrome Association:

“Being a person with Down’s Syndrome makes me proud. I am a person to make a difference to a lot of people. That’s me. We may find things difficult, everyone does. We should tell people about Down’s Syndrome—the more people the better. Being a person with Down’s Syndrome I can do anything in life. We may need help to do the things we want to do in life. It is good to see people with Down’s Syndrome achieving their dreams. That’s my dream.”

That, Madam Deputy Speaker, should represent all our dreams.

Domestic Ivory Market

Debate between Rachael Maskell and Lisa Cameron

Monday 6th February 2017 Westminster Hall

[Rachael Maskell (York Central) (Lab/Co-op)]

It is a pleasure to serve under your chairmanship again in a debate about the domestic ivory trade, Mrs Main. I thank Ellen Cobb for creating the petition, and the 107,000 people who have signed it so far. We know that they speak for the 85% of the population who want this Government to introduce a total ban on the ivory trade, but 8% of people believe that such a ban is already in place, which takes us even further into why the Government need to move on this issue.

We have seen progress in China since we last debated this issue, and I very much concur with the many Members who have talked about us now being followers rather than leaders in this movement. We must pick up the pace, because the pace around this issue is definitely picking up out there in our communities. The world is watching on in horror as these majestic, sensitive—we have heard about the way that they live in families—and beautiful animals are butchered, yet we are no further forward with the Government.

What progress has been made in the 50 days since we last debated this issue? If we take the figure of one elephant being killed every 15 minutes, nearly nine elephants have been slaughtered since this debate began, and 4,811 elephants have lost their lives since I last spoke about this issue. But this is not just about elephants; we must remember the rangers who guard those elephants, and some 17 fellow human beings have lost their lives. We are talking about the most heinous crimes, which are destroying these beautiful animals. There is much frustration across the country, as there has been in the Chamber today and as there is, I understand, in the Cabinet. People are baffled that the Government are not moving further, faster. We want the pace to pick up as a result of today’s debate—I have picked that up from every single contribution—and I trust that the Government will respond.

We all have a responsibility. We have heard how important it is for our generation to ensure that we do everything that we can on our watch to introduce a ban and ensure that it picks up pace. Non-governmental organisations have done amazing work; they have campaigned and raised awareness. It is through that awareness that we become more responsible for our actions here. I want to put on the record my thanks to them.

[Dr Cameron]

Will the hon. Lady join me in congratulating Stop Ivory, which I meant to mention in my speech? It has really put this issue on the agenda and at the core of what it does, and ensured that public support is targeted and the campaign moves from strength to strength.

[Rachael Maskell]

Absolutely, Stop Ivory has done a wonderful job, as have the International Fund for Animal Welfare, the WWF, Tusk and Save the Elephants. There are so many organisations out there—I would not want to draw out one in particular—all working together, I hasten to say, because they have one objective. I think we can see that right across the House we share an objective with them to move forward on the ban.

As we have heard, what we are talking about is getting on top of criminal activity. Surely the Government’s first focus should be to get on top of what is happening, which is happening in conjunction with other criminal gangs, drug rackets and sales of arms. We know that there is an interconnection, and it is so important that we get on top of that criminal activity. A full ban is one way of bringing an end to those gangsters’ deplorable activity. From the statistics we have heard so many times in this place, we know that 200 to 300 tonnes of ivory are being stolen from elephants. That is bringing in £10 billion to £20 billion of blood money. Therefore, shamefully, we are complicit with that agenda if we are not doing absolutely everything in our power to stop the trade.

I want to come on to the consultation, which we have not seen yet, and the date of 1947. We were promised it at the last debate, but another two months have passed and we still do not have it. I know that DEFRA has so much on its agenda at the moment, not least dealing with the EU, but elephants cannot wait for those distractions. We need to put our foot on the accelerator. Let us move on today. Let us resolve in this place to move on and fast-track our approach in taking this forward.

We have seen how fast China has moved. A vaster, much more complex country than ours is talking about putting a stop to the process in just three months and putting a full ban in place in 12 months, so there is no reason why we have to spend months in consultation or thinking about consultations and what questions to ask. Let us just be honest and straight, and let us just move on. I therefore ask the Minister: why the delay on such an important issue? Can we not just get on with bringing in the ban? She will not find opposition across the House or across the country—in fact, people will get behind her. I therefore urge her to move on with that.

I want to look at the date of 1947. I believe I said in the previous debate that it is a rather arbitrary date, so why are we so rigid on that? Why do we not move forward? We have heard about the US and its 100-year rolling programme, which is perhaps one approach that could be taken, but why do we not move to a total ban? We have heard questions such as, “How can you tell what year it was bought?” Carbon dating is one way of doing that, but again I ask the Minister a question she did not manage to answer the previous time I challenged her on this point: can we tell the difference between ivory from 1946 and 1947 or from 1947 and 1948? Where the margins are so fine, why do we complicate things by drawing false demarcations rather than moving forward to a total ban? As we have heard, the human eye cannot necessarily spot the difference, as pieces of ivory are made to look more antique. We also know that paperwork can be forged. It is therefore important that we do not draw arbitrary lines and then try to justify it around the edges. We must have the courage of our convictions to say, “This is wrong,” and to move on from that.

Leaving the EU: the Rural Economy

Debate between Rachael Maskell and Lisa Cameron

Tuesday 17th January 2017 Commons Chamber

[Rachael Maskell (York Central) (Lab/Co-op)]

If I may, as this is my first opportunity to do so, I would like to pay my personal respects to Katie Rough. Katie lived in my constituency and died tragically in York just over a week ago. The whole city has been shocked and saddened by the loss of such a precious little life. Yesterday would have been Katie’s eighth birthday, and I joined with her community in Westfield to celebrate her life alongside her parents and friends. I am sure the whole House would want Alison and Paul Rough to know that they are very much in our thoughts and prayers. May Katie rest in peace.

We live in challenging times, in which it is often difficult to see over the horizon, and yet we have a duty to steer a steady path to achieve the best outcome for our nation. The country voted to leave the European Union on 23 June, so we now have a responsibility to take the whole country forward together—the 100%— to provide economic and national security for all, and to cut deals with the EU and others to ensure that our export focus remains robust.

Seven months have passed since the vote, and negotiations are due to begin in just a couple of months’ time, so where is the plan from the Department for Environment, Food and Rural Affairs? I have heard plenty of platitudes from the Conservative party. I have listened to dogmatic ideology about cutting red tape. There have been utterances about aspiration and the “fantastic opportunity” before us, but all is meaningless without even a shred of a DEFRA plan being shared. Those words no longer wash with farmers. Farmers do not work with esoteric concepts; they live in a real, tough, cut-throat and challenging world where straight talking is what matters. So where is that DEFRA plan we have been promised? Of course we should have had it before the referendum, and we continue to hear talk of the two seriously delayed 25-year plans, but farmers need a plan now, so that they can shape their agribusinesses and give them the best possible chance to succeed. The year 2020 is just around the corner and provides little security for so many.

The whole food and farming sector needs security now, security through transition and security for the long term. It is challenging enough for the farming community at the best of times. That is why so many voted to leave the EU, in the hope that surely things could not be worse, but being kept in the dark, not knowing what the Government plan to do, is even more worrying. Farmers at the Oxford farming conference showed their vote of confidence in the Secretary of State; only the Minister of State, Department for Environment, Food and Rural Affairs, the hon. Member for Camborne and Redruth (George Eustice), eventually came to her rescue by putting a sole arm in the air to show support for his boss.

Farmers need clarity. The success of the food and farming industry, which we must celebrate, has been down to the sheer grit and determination of farmers in making a success of their businesses, but let us not get away from the fact that it is tough out there: incomes are falling and debts are rising. Incomes were down by a shocking 29% last year, and a fifth of farmers are struggling just to pay their bills. The average debt for a farming business is now £188,500, and too many have gone out of business altogether, including more than 1,000 dairy farmers in the last three years. Not all farmers are thriving, or even surviving.

Not every problem can be blamed on the EU. For sure, there are some regulations that farmers would happily see the back of. With 1,200 regulations to analyse, of course we would want to see some go, but rather than picking out one or two by name, the Secretary of State should first set out the strategy, and then test each regulation against the criteria, not take a piecemeal approach with no systematic logic applied. Ever since I was appointed to my brief, I have been asking how the Government will police regulations and prosecute those who breach them outside the EU framework. Answers are needed, as this will be a matter for the UK alone.

All this has little relevance, however, if the big question is not answered: what will replace the common agricultural policy? What succeeds CAP is not subject to any negotiation with the EU, so what has been agreed with the Treasury? With subsidies accounting for over half the income and investment resources of farmers, they need to know what will take its place. What will the criteria be, how will they access funding and how can they start shaping their businesses now, in line with the new criteria, so that by 2020 they can be on the firmest financial footing possible? What has the Treasury agreed? What has the Secretary of State determined?

If Labour were in power today, we would be launching our rural investment bank, and building sustainability for businesses and the environment, and resilience across farming. We would be giving farmers the stability and security they need to plan their future, along with the business support they need and the infrastructure and technological investment to drive productivity.

[Dr Lisa Cameron (East Kilbride, Strathaven and Lesmahagow) (SNP)]

Does the hon. Lady agree that there are grave concerns about early pest and disease intelligence from Europe, which might become much less accessible, alongside investment in research and development, which might fall without access to EU funding?

[Rachael Maskell]

The hon. Lady is absolutely right. It is our co-operation across Europe that has built the resilience of farming, and the huge knowledge base that we all take advantage of, so of course the relationships we maintain with the science and research base across the EU will be absolutely vital to the success of farming in the future.

Of course, our fishermen and women are searching for answers, too. I have always believed that honesty is the best policy to abide by. It is time the Government clearly set out for those working across the fishing industry what they can expect to change after we leave the EU. The building of a sustainable fishing industry in an international context is vital if the industry is to survive, but as has always been the case, it is the responsibility of the UK Government to make sure that small fishing fleets have access to stock.

Accessing global markets is vital for the future of the UK food and drink and farming sectors, but again I have to ask the Secretary of State what the strategy is. It surely cannot be her role to conduct the global auction on every food product, promoting her favourite brands, such as Snowdonia cheese or Walkers shortbread. What is the approach to help every farmer to access tariff-free global markets? She cannot skip over the EU as if it no longer exists. Some 72% of our food and non-alcoholic drink exports go to the EU, and farmers want the security of knowing that they will have tariff-free access to this market. That is why Labour has been explicitly clear: “We want you to have access to the single market and tariff-free trade.” We must warn the Prime Minister, who, from what she has said today, is steering towards a hard Brexit, not to create more barriers or impossible competition for the agricultural and food sectors.

The other pressing issue is labour. Free movement has enabled 98% of the UK farmers’ seasonal workers to come from the EU—80,000 people coming to pick our fruit and veg each year. On this point, we must be clear. This is absolutely not about taking anybody’s job from anyone else. These are jobs that failed to be recruited for locally. This is not an issue on which farmers can afford to wait and see what happens, because they need to know what they will reap before they sow. Seasonal labour is already in short supply as a result of last June’s vote, and the fall in the pound has made other countries more attractive to seasonal workers. The xenophobia is keeping some away—and xenophobia has no place anywhere in our country. We owe it to those who come here to make it clear not only that they are welcome, but that we recognise the valuable role they play in our food and farming sector and in the wider economy.

For those in the EU who have made the decision to work in the UK, the Government should grant them the right to stay now. Indecision and delay is resulting in many leaving and keeping others away. I know that the meat sector has highlighted the serious risk that the dithering over these rights is causing to its sustainability—and the meat sector is not alone. Today, the Prime Minister had the opportunity to provide businesses and workers from the EU with the stability they need, but when she was asked specifically on the point, she yet again ducked the question.