Oral Answers to Questions

Richard Arkless Excerpts

Tuesday 11th October 2016 Commons Chamber

[David Mowat]

It is fair challenge that this work is high priority, and we need to go as fast as possible, but we are working with research teams. The work will be trial-based and needs to be as definitive as possible. In the meantime, early diagnosis is the key way to make progress. Public Health England continues to work with GPs and the public on it.

[Richard Arkless (Dumfries and Galloway) (SNP)]

My mother recently died of motor neurone disease. In some areas of my constituency, there are 13 sufferers per 10,000 people, whereas the UK average is two per 100,000. Will the Minister please agree to meet me and representatives of the Motor Neurone Disease Association to discuss how the UK Government could lend their weight to combating this awful and debilitating disease?

[David Mowat]

Yes, I would be happy to meet the hon. Gentleman to discuss that subject.

Specialist Neuromuscular Care and Treatments

Richard Arkless Excerpts

Tuesday 15th December 2015 Westminster Hall

[Richard Arkless (Dumfries and Galloway) (SNP)]

I thank the right hon. Member for Chesham and Amersham (Mrs Gillan) for securing a debate on a subject that clearly touches many people for various reasons. It is also of course a pleasure to serve under your chairmanship, Mr Brady. Those Members who know my background as a lawyer and a businessman may be forgiven for asking, “Why are you here to speak about neuromuscular diseases?” I am not a member of the SNP health team, which is lucky to have the profound experience of my hon. Friends the Members for Central Ayrshire (Dr Whitford) and for East Kilbride, Strathaven and Lesmahagow (Dr Cameron), but I am developing something perhaps even more important and certainly more profound: I am living with motor neurone disease within my family.

If I can declare an interest of sorts, Mr Brady, my mother has motor neurone disease and, if Members will allow me, I will restrict my comments to that experience. I do not mean to sideline the 59 other important neuromuscular diseases; I want to ensure that what I say comes from a real place, not just a bunch of briefing notes. That notwithstanding, I want to add my voice to the calls to the Minister to persuade him to get Translarna approved as quickly as is humanly possible. I know that he looks sympathetically on that cause, and we have heard many vivid stories today about how it would affect people quickly.

Like everybody, I would lay claim to my mother—and indeed my wife—being the best that there is. She is the most selfless, dedicated mother in the world. She has literally lived her life for me, my brother, Nicholas, and my baby sister, Poppy—a baby who is now in her twenties. We have been her life. She has lived her life exclusively for us. My brother and sister and I will always be grateful for that. My mother was diagnosed 20 months ago. She kept it a secret with my dad for 16 of those months—thank goodness that she has my dad, with whom she has an unbreakable bond—so I have only been living with it for a few months. It is difficult and, as may become obvious during this speech, extremely raw.

During those 16 months, we witnessed the deterioration of my mother’s speech and joints. She explained the speech by way of fictional dentures that she had apparently had implanted. She explained the hands with reference to a historical arthritis problem in our family. Both were plausible and not really questioned up until the point that she decided to tell us. She did not tell me, my brother or sister or our extended family until after I was lucky enough to be in this place and make my maiden speech. She was determined that I should pursue my dream, and of course her dream, of making Scotland a better nation. I suspect that what she really wants now is a second referendum before it is too late, but I suppose that you get the point.

I will return to my mother later, but I want to pick up on some points made by other Members in this enlightening and touching debate. The right hon. Member for Chesham and Amersham is right to say that there are 60 different types of neurological disease, and I hope that she will forgive me for indulging myself with only one of them today. She talked about the Hill family, particularly Archie. I have this vivid image in my mind of Archie running up to 10 Downing Street and giving the Prime Minister what for—if only all of us could get that opportunity.

The speech of the hon. Member for York Central (Rachael Maskell) was touching indeed. She brings a wealth of practical experience, to which the Minister ought to listen carefully. I was particularly captured by her assertion that equipment needs to be made available when needed. It needs to be the right equipment in the right place at the right time, because time moves too quickly with such diseases. I hope that the Minister will pay careful heed to the hon. Lady’s practical experience, which has substantially benefited the debate.

I was particularly touched by the story of Jagger from the hon. Member for Romsey and Southampton North (Caroline Nokes). I hope that he enjoys his break in Tenerife and that the Minister will listen to calls for Translarna to be approved as soon as possible.

The debate has been consensual so far, and I want to take the politics out of what I am going to say. I want to touch on some things that Scotland is doing well on motor neurone disease, but I do not mean that to be a criticism of the UK Government. I hope that everybody’s ears are open. If we are doing things right, I sincerely hope that the UK can learn. If the UK is doing things right, my ears are open and Scotland can certainly learn. There is no politics in this whatsoever. As an aside, as new Member I have been frankly dismayed at how health services are politicised by both sides of the House. I have become increasingly amenable to the suggestion that perhaps the health service should not be run by politicians at all, but by people who have at heart the interests of the people whom we are here to serve.

Motor neurone disease is a neurological degenerative disease. In simple terms, the mind is fine and continues to operate with full function, but the body gradually gives up. The signals do not go from the mind to the body to make it work: that is how I think of it. Patients are affected differently. My brother-in-law died from it a couple of years ago, and his limbs were affected first. His legs started to give way for no apparent reason. However, my mother’s speech was the first thing to go—this was a lady who liked to talk, who seriously liked to talk! To have that stripped away from her must be incredibly difficult—and I know it is.

Scotland is doing many things well on motor neurone disease. Over the past year we have announced that we will double the number of motor neurone nurses. We are very much in the early stages, but the Scottish Government have provided funding to local authorities to ensure that things happen. At the moment local authorities are recruiting and assessing the need, and I hope that process will be speeded up as we go on.

That funding is a recognition of the difference that specialist nursing can make to motor neurone disease. My mother has to rely on a motor neurone nurse who comes from another region and who can only come on a part-time basis. A very proud woman, she was initially most reluctant to consider any form of help, but she has since come to realise what a benefit the nurse is. She has asked me to take up the cause of getting more motor neurone nurses throughout not only Scotland, but the rest of the UK—we are all human beings, despite our political views.

The change in Scotland has been praised in all quarters. Huge thanks are due to people such as Archie and Jagger. In Scotland a gentleman called Gordon Aikman, Christina McKelvie MSP, and all the staff at MND Scotland have done an incredible job of persuading the Government of the immediate need for those services. We have committed to giving a free voice box on the NHS and to paying families directly for support, not as a patronising gesture to pay people to look after their relatives, but to ensure that support is available if needed. We have also increased investment in palliative care.

I live in a town called Stranraer. The UK average is two people with motor neurone disease per 100,000; the Stranraer average is 13 per 10,000—an astronomical figure. I have asked the chief executive of our local health board to figure out exactly why—

[Mr Graham Brady (in the Chair)]

Order. I am sorry, the hon. Gentleman must resume his seat. I am loth to interrupt a very personal story, but we need to leave time for both the official Opposition spokesperson and the Minister to wind up. I have allowed more than eight minutes, and I am keen to allow the same to the official Opposition.

A&E Services

Richard Arkless Excerpts

Wednesday 24th June 2015 Commons Chamber

[Richard Arkless (Dumfries and Galloway) (SNP)]

It is indeed a huge honour, Madam Deputy Speaker, to be called by you today to make my maiden speech in this very important debate on A&E services in the NHS. As an introduction, I can report with a small measure of glee that the NHS in Dumfries and Galloway has treated 96.8% of all A&E out-patients within the Scottish Government’s target of four hours. The NHS remains safe in public hands north of the border.

As is customary, I wish to pay tribute to my predecessor, Mr Russell Brown, who was elected to this House in 1997 on a tidal wave of Blairite euphoria, ousting the seemingly immoveable Sir Hector Monro. My election to this House has absolutely nothing to do with Russell Brown as a person or as a constituency MP. He was merely a victim of the political reawakening that has occurred all over Scotland, and the resultant Scottish National party tsunami, and he was let down badly by his party. My message to Russell is simple: thank you, Russell, for your tireless dedication to the people of Dumfries and Galloway.

The Labour party has left the people of Dumfries and Galloway and of Scotland; it is not the other way round. My message to those on the Labour Benches is simple: can they please get their act together? We had an opportunity to defeat this Tory Government last week to create a referendum fairness board, and they blew it. They would rather sit on their hands or vote with the Tories than support an SNP proposal. They should ditch the tribal opposition and work with us so that we can put this wafer-thin majority to its full test.

This SNP group is determined to dismantle the myths that surround our brand of nationalism. Perhaps I am in the best position to dispel those particular myths, because I am not from a traditional SNP nationalist household. Independence is not an argument that I used to subscribe to; I actually voted no to devolution in 1997, and I only joined the SNP four days after the independence referendum. My conversion has been protracted, evidence-based and not led by blind patriotism. As a dual qualified lawyer and businessman, I was invited to speak at a town hall debate, a mere 15 months ago, during the referendum, alongside my hon. Friend the Member for Ochil and South Perthshire (Ms Ahmed-Sheikh). I kept getting invited back—almost 50 times in fact. Here I am, 15 months later, in this world famous Chamber representing the people of my home region. What a privilege it is. A special mention goes to my wonderful wife, Anne, whose dedication to our two young children allows me to take up the privilege in this House.

Dumfries and Galloway, or the Scottish Riviera as I prefer to call it, is a constituency of serene beauty, abundant wildlife, vast forestry, rolling hills and a coastline that stretches almost 200 miles. It runs from my home town of Stranraer in the west to Wigtown, Newton Stewart and Whithorn in the Machars, to Gatehouse of Fleet, Kirkcudbright, Castle Douglas in the Stewartry, all the way across to Dalbeattie and Dumfries in the east. There is something for everyone. It is a place that I love dearly, and we are indeed a resilient bunch. It is, and should be even more, a tourist mecca. There are so many festivals and community initiatives—simply too many to mention in total. Members should visit the book town of Wigtown, the artists’ town of Kirkcudbright, and the Wickerman festival. They should watch out for the UK’s finest oyster festival in Stranraer, coming soon. We are a region of entrepreneurs, innovators and inventors. We invented the pedal bicycle and discovered electro-magnetism, and we gave Christianity to Scotland in the fifth century through St Ninian of Whithorn.

In my view, Dumfries and Galloway is dynamic and growing, with more small businesses employing fewer than 10 people per head of population than any other constituency in Scotland—a remarkable statistic, given the rural economic disadvantages that we suffer. Small businesses are our largest employers, the lifeblood of our community and the lifeblood of our economy, but they need serious help to fulfil their potential. Throughout my constituency, 3G networks are very rare and 4G virtually non-existent; fibre-optic cables do not reach the outlying areas. That is simply not good enough. Would it not be fantastic if 5G was rolled out with 100% geographical coverage in the rural areas of the UK that need the help the most—places like Dumfries and Galloway? That is the real way we can rebalance our economy and it is something I pledge to fight extremely hard for in the coming years.

No maiden speech by an MP for Dumfries and Galloway would be complete without reference to our national treasure, Robert Burns. Although he was born in Ayrshire, we in Dumfries and Galloway claim Scotland’s national bard as our very own. Burns wrote of the River Nith, which runs through the heart of Dumfries,

“The banks of the Nith are as sweet poetic ground as any I ever saw”.

It is hard to disagree. Dumfries was inspirational to Burns, who was at his most productive when living there, composing classics such as “Auld Lang Syne” and the masterpiece “Tam o’ Shanter”. However, poverty and hunger were ever present in Robert Burns’ life. We have food banks in Dumfries and Galloway, frequented not only by the poor and the disadvantaged, but by victims of draconian benefits sanctions and, more important, the working poor—people who work full time but still find themselves living in poverty. In 2015 in my constituency, children are going to school hungry. Austerity policies are literally starving our children not just of a happy childhood, but of a successful future. Burns’ gratitude for good nourishment was clear when he wrote:

“Some hae meat and canna eat,

And some wad eat that want it,

But we hae meat and we can eat,

Sae let the Lord be thankit.”

[Madam Deputy Speaker (Mrs Eleanor Laing)]

I call Andrea Jenkyns. The time limit is now four minutes.