Sudden Unexpected Death in Childhood

Robbie Moore Excerpts

Tuesday 24th March 2026 Westminster Hall

[Robbie Moore (Keighley and Ilkley) (Con)]

It is a pleasure to serve under your chairmanship, Sir John. I thank the hon. Member for Rossendale and Darwen (Andy MacNae) for securing this really important debate.

There are a few meetings that Members of Parliament never forget. Over three years ago, in January 2023, I met my constituents Cheryl and Darren Midgley for the first time. On Christmas day 2022, Cheryl and Darren put their loving, happy and healthy 16-month-old son Jack to bed. The family had enjoyed the best Christmas, but when Darren, the father, went into Jack’s room the following morning, he quickly realised he had gone. He said that, that day, their “world fell apart”.

Christmas in the Midgley household is never just a day. Jack, with his brother Louis, saw Santa four times. They had had the best Christmas. On Boxing day, when Darren cracked open Jack’s door and went into the room, he said there was perfect silence. He walked over to his son’s cot, but as soon as Darren put his hand on his back, it was cool. From what Darren saw at that point, he knew that his baby son Jack had gone.

Jack was taken to Martin House children’s hospice in Wetherby, where he was cared for in one of its special cooled bedrooms. Darren described the hospice’s services as an anchor for the family. The fact that Jack could stay in one of the cooled bedrooms meant the world. Darren said:

“It was a huge comfort to us to know Jack was being looked after in a bedroom, in his Christmas pyjamas, and the staff would be there to talk to him and put his night light on.”

The family spent five days at Martin House until the post-mortem could take place, but the results were inconclusive.

Since meeting Cheryl and Darren three years ago, I have kept in touch with them, and I have been truly blown away by their resilience and mental fortitude, as well as that of their eldest son Louis. They have worked tirelessly to raise awareness to help others, despite their own grief, including by completing a 127-mile bike ride along the Leeds to Liverpool canal path, raising over £6,000 for the Airedale Hospital & Community Charity, where Cheryl works as a nurse.

I went to see them just this last weekend to catch up with them and check in, and I reiterated to them that I will continue, as their Member of Parliament, to do all I can to raise this issue on their behalf. I was glad to see that they are working united as a family to keep this issue going. Over the last three years, they have worked together to raise over £220,000 in total for local good causes.

Sudden unexplained death in childhood is the fourth leading category of death in children aged one to four in England and Wales. Approximately 40 children are affected by SUDC in the UK each year: one to two seemingly healthy children pass away every fortnight, often going to sleep and never waking up again. As seen in cases such as Jack’s, SUDC does not just affect young children under one year old; more one to nine-year-olds die of sudden unexplained death than as a result of road traffic accidents, drowning or fires.

Published epidemiology data suggests a common profile for children affected by SUDC. Most commonly, they are one to two years old and male. Most worryingly, they die unwitnessed and alone as they sleep. The children’s development is often normal, and their vaccinations are normally up to date.

The death of a child is always a tragedy. Sudden unexplained death in childhood is one of the most under-recognised medical tragedies, and simply not enough support is provided for many of the affected families. Cheryl and Darren received a year of support from the NHS following Jack’s death. They have both sought counselling, and the trauma still lives with them today.

I commend the work done by charities such as SUDC UK and Martin House children’s hospice in providing support for those impacted by sudden unexplained death in childhood. However, we cannot just rely on the good work of charities and volunteers. Despite their efforts, the delays in small charity-funded research into preventing these deaths remains completely unacceptable. One hundred and twenty seemingly healthy children have died without explanation since the last SUDC debate three years ago, which I took part in.

Although we are a long way from prevention, it is vital to develop a well-defined and co-ordinated national plan to gain better insight into the causes of SUDC and to raise awareness. There have been 13,000 publications on SIDS—unexplained deaths under 12 months—versus 100 publications on SUDC. There needs to be a co-ordinated and planned movement because, as I am sure the Minister is aware, a small amount of research will not move the dial. There also needs to be better and longer-term support, available free of charge, for families such as Cheryl, Darren and Louis, to help them to come to terms with the deep sense of loss, anguish and grief that comes with the death of a child.

Less Survivable Cancers

Robbie Moore Excerpts

Tuesday 6th January 2026 Westminster Hall

[Robbie Moore (Keighley and Ilkley) (Con)]

It is a pleasure to serve under your chairmanship, Mr Efford. I thank the hon. Member for Wokingham (Clive Jones) for securing this important debate. It is clear that we have all been affected in one way or another by a person we love, or are fond of, being diagnosed with cancer and passing away.

While any debate covering cancer is serious, today’s debate is poignant for me. Just before Christmas, Keighley and the Worth valley lost two councillors to cancers. They were friends of mine, and I know their losses will be felt by not only their families and friends but the constituents and residents that they served, and the communities that they loved. Councillor Russell Brown served the Worth valley as a district councillor on Bradford council, and Chris Graham was a former Keighley town councillor who served the Long Lee and Parkwood wards.

While any death to cancer is tragic, it also sharpens our focus on the need to ensure that the very best treatments and research are available for as many people as possible. That of course includes rare and less survivable cancers, which, by their very nature, do not receive the same level of attention as more common types. That must change.

Let us start with the need to identify and screen cancers early. It is unacceptable that just 28% of less survivable cancers are diagnosed at stage 1 or 2, compared with 54% of all cancers. I am sure that a similar story is true for rarer cancers, which may not be considered until it is just too late. Here I must thank the work of the mobile cancer screening units that operate in Keighley and Ilkley as part of the Airedale hospital team, which are doing lifesaving work. I hope that, as we rebuild a new Airedale hospital over the coming years, they will have a new and improved hospital to be proud of, further boosting their work.

The UK should be proud of its world-leading cancer research, and I know that this is something on which Opposition and Government colleagues agree. Indeed, the agreement on the Rare Cancers Bill is a hugely positive step to ensuring that rare cancers get the attention they deserve. I thank the hon. Member for Edinburgh South West (Dr Arthur) for his work on raising this important issue. After all, rare cancers are one in five of diagnosed cancers, and that must change.

There will inevitably be cases where screening and improved treatment are not enough. At that stage, people across Keighley, Ilkley, Silsden and the Worth valley are indebted to Sue Ryder Manorlands hospice, which does excellent work in looking after those at the end of their lives. I am routinely impressed by their professionalism and compassion whenever I visit.

Finally, I would like to speak about employers’ national insurance. That issue was raised with me by Sue Ryder Manorlands hospice, which now has to pay the Treasury an additional amount, which they cannot therefore put into end-of-life care. I encourage the Minister to raise that specific case with the Chancellor, so that we can ensure that hospices get the attention they deserve and the funding they need.

Regulation and Inspection of Funeral Services

Robbie Moore Excerpts

Monday 27th October 2025 Commons Chamber

[Simon Hoare]

I am very sorry to hear what the hon. Gentleman has relayed; I know that the whole House will send prayers, thoughts and sympathies to his constituents. What a terrible thing to be dealing with in what are already tragically sad circumstances. He is right to urge the Minister to give a turbocharged and energised response.

As a society, our relationship with funerals is changing. We have become, as we know, a more secular society, so we are looking for other ways to deal with funeral services, rather than the traditional church service and so on. The covid pandemic certainly expedited the—I do not necessarily use this term in a disparaging sense—cheaper, faster and more streamlined approach to dealing with the deceased.

Funerals have become very expensive, when done well, because funeral directors have costs that need to be met, which is why we have seen this great rash of adverts. Anyone who watches any daytime commercial television will know that those over 55 are well insured—I qualify by a year. I am told there are plenty of machines for those who have difficulty getting out of a chair or a bed, and they can press a button and spring up and out like Zebedee. And there are 101 different funeral plan providers who will meet people’s needs very cheaply indeed.

There is little or no doubt that the lion’s share of operators are legit, above board, doing their best and doing it well, but the absence of regulation means that, if we so wished, the Minister and I could set up a funeral directors. We do not need a licence.

[Robbie Moore (Keighley and Ilkley) (Con)]

On that point, will my hon. Friend give way?

[Simon Hoare]

Let me just continue.

The Minister and I would not need a licence and we would not be inspected; all we would have to do is put up a sign saying “Funeral Directors” with the hours of operation on it. That cannot be right. It cannot be right that when a funeral director is running out of credit with their local crematorium they can transport a corpse from one end of the country to the other without any paperwork. If my hon. Friend the Member for Keighley and Ilkley (Robbie Moore) and others involved in livestock farming wanted to move one of their sheep from A to B, they know as well as I do about the vast amount of paperwork the Ministry requires to allow that to happen, and that is because we want traceability—that is what we need, and we need traceability in this sector as well.

[Robbie Moore]

My hon. Friend makes the point that many of our constituents across the country do not realise that anybody could set up and run a funeral director service. Sam Gallagher, one of the directors of Gallagher Family Funeral Directors in Keighley, wrote to me to advocate, quite rightly, that the Government should look at bringing in regulation or, at the very least, requiring that funeral directors must be a member of a trade association in order to operate. Currently we have neither, and I am sure that my hon. Friend, in summing up, will encourage the Minister to offer some warm words that we will be going in the direction of having that regulation put in place.

[Simon Hoare]

I agree with my hon. Friend. It is a great strength to be a member of the trade association, because it gives an imprimatur of quality to the families choosing a funeral director, just as customers would choose a CORGI-registered boiler fitter or FENSA for windows. As the trade associations themselves have made clear, however, they can only exhort. They can help people by advising on what best practice looks and feels like, what a good customer experience is and so forth, but people can still trade as a funeral director without being a member of the trade association, and if the trade association kicks them out, they can still trade as a funeral director, because being a funeral director is not concomitant on being a member of the trade association. So there is all this opt-in, opt-out, and of course the best will always join the professional bodies that give them the imprimatur of quality, whereas it is the dodgy geezers—the people trying to do it on the fly—who will not, and they will always be part of the bottom end of the market.

NHS Pensions: Frontline Patient Care

Robbie Moore Excerpts

Thursday 17th July 2025 Commons Chamber

[Karin Smyth]

We are working very closely to ensure that resident doctors do not go on strike. We are very clear that we cannot negotiate on pay this year, but we will work with everybody to improve conditions. Some of those conditions are shocking, and we want to work constructively with them to avoid disruptive strike action.

[Robbie Moore (Keighley and Ilkley) (Con)]

The Daily Telegraph reported in April that a quarter of doctors have reduced their overtime to avoid potential five-figure tax bills, and NHS capacity has been reduced by about 10% as a result. This has been raised many times when I have been out and about door-knocking across Keighley and Ilkley. What steps will the Government take to rectify this absurd situation, which is preventing doctors from working more to reduce waiting lists?

Oral Answers to Questions

Robbie Moore Excerpts

Tuesday 11th February 2025 Commons Chamber

[Stephen Kinnock]

Integrated care boards are responsible for providing mental health services to meet the needs of their local populations. As part of our plan for change, we will reduce delays and provide faster treatment. We are working with NHS England to transform mental health services, shift care from hospitals to local communities, and increase access to support for people across the country, including in rural areas.

[Robbie Moore (Keighley and Ilkley) (Con)]

Insomnia affects many patients, including my constituents, who are being advised by their GPs to try cognitive behavioural therapy as an alternative to medication. However, digital CBT programmes are not available on the NHS, leaving many without access to drug-free treatment. Will the Minister outline what steps the Government are taking to ensure that patients have access to digital therapies, so that more people can get access to evidence-based, drug-free support?

[Wes Streeting]

The hon. Gentleman hit the nail on the head when he mentioned the importance of evidence-based treatment. As part of the Government’s shift from hospital to the community, from analogue to digital and from sickness to prevention, the NHS absolutely should be in this space, and we are considering those issues as we develop our 10-year plan for health.

New Hospital Programme Review

Robbie Moore Excerpts

Monday 20th January 2025 Commons Chamber

[Wes Streeting]

I am grateful to my hon. Friend for highlighting the extent to which Leeds general infirmary was let down over 14 years of Conservative Government, with initial under-investment followed by total inactivity, apart from a big pile of dirt outside the hospital, which I went to see with the then shadow Chancellor. The Chancellor and I are both committed to the project: we know how important it is. We have had to phase the programme so we can say it is genuinely affordable, deliverable and credible on this timetable. I reassure my hon. Friend that pre-construction work will take place over 2030 to 2032, with construction due to start in 2033 to 2035. We would be delighted to receive representations from MPs from his city and across the region about the support we provide to the trust in the meantime.

[Robbie Moore (Keighley and Ilkley) (Con)]

Airedale hospital has some of the worst RAAC of all the hospitals on the new hospital programme. All the surveys have said that given the risk profile associated with RAAC, parts of the hospital will have no life expectancy beyond 2030, which is why the completion date of 2030 was so important. With funds having been allocated to the project for it to be delivered, it is disappointing to hear today that the start date will be between 2025 and 2030. When is it likely that the new, rebuilt Airedale hospital will open? Will the Health Secretary provide the trust with confidence that additional funds will be available to help with the mitigation that needs to take place before the new hospital can open, to keep the existing hospital operational?

[Wes Streeting]

If the hon. Gentleman is disappointed with this Government, he will be absolutely furious when he finds out who was in power before. In fact, he is a dead ringer for the guy I used to see on the Conservative Benches cheering on and voting for every calamitous decision the Conservative Government took, including crashing the economy and supporting the now Leader of the Opposition when she rejected appeals to fund RAAC hospitals. We are prioritising those hospitals and going as fast as we can. The rebuilding will happen under a Labour Government, but it did not happen under the Tories, did it?

Hospice Funding

Robbie Moore Excerpts

Thursday 19th December 2024 Commons Chamber

[Karin Smyth]

I am happy to support my hon. Friend, who makes an excellent point, in his work with local providers. He congratulates me, but the work has been done mainly by the Minister for Care, my hon. Friend the Member for Aberafan Maesteg (Stephen Kinnock), and by the Secretary of State, who have personally taken on this issue. They are visiting hospices today, so they could not be here even though they wanted to. We are committed to supporting people throughout their life, from diagnosis to end of life.

[Robbie Moore (Keighley and Ilkley) (Con)]

I have been contacted by vast numbers of families and relatives of those who have been wonderfully cared for by Sue Ryder Manorlands hospice in Oxenhope in the Worth valley. They are all concerned about the impact that the rise in employer national insurance will have on them. Those at Manorlands are deeply concerned that it will cost them hundreds of thousands of pounds. In answering the urgent question, the Minister has announced additional funding, but can she confirm whether it will cover the cost of those rises to Sue Ryder Manorlands hospice in my constituency? Did the Government carry out an impact assessment of the negative impacts that the Budget would have on those in the charitable and hospice sectors?

[Karin Smyth]

The hon. Gentleman asks the same question again. Through the Budget, this Government have allocated more money to the health service than the previous Government—a record announcement—and we have announced money again this morning. To govern is to choose. The last Government neither governed well nor chose to support the health sector from diagnosis to end of life; this Government have, and will continue to do so.

National Insurance Contributions: Healthcare

Robbie Moore Excerpts

Thursday 14th November 2024 Commons Chamber

[Karin Smyth]

I understand the concerns of the providers that have come to the hon. Gentleman, and he is right to raise them in this place. As he knows, health and social care is devolved to the Welsh Government, and there has been much benefit already from the Barnett consequentials of the Budget. We will continue to talk to the devolved regions—in, may I say, a much more co-operative way than the previous Government did—to ensure that we have a good system across the entire United Kingdom.

[Robbie Moore (Keighley and Ilkley) (Con)]

In a tweet to the Health Secretary, Caroline Rayment, who is the clinical lead for the Wharfedale and Silsden community partnership, said,

“you came to our practice in June and told us you wanted to support the family Dr. Costs for the NMW and NI will come to approx £50k—we are a small practice of 7000 patients—how is this helping us?”

Can the Minister answer Caroline’s question?

[Karin Smyth]

I am not abreast of all the Health Secretary’s tweets and the responses to them, but Caroline makes a point that has been made by many people in the Chamber today, as well as a number of providers. As I said in my opening statement, we understand the precarious situation that those providers have been put in because of the failures of the past 14 years and the £22 billion black hole that the Government have inherited. As my hon. Friend the Member for Shipley (Anna Dixon) said, general practice has been put in a precarious situation over the past 14 years, with thousands of practices going bust and giving back their contracts. That is a situation that we promised the British public we would change, and we will do so.

Patient Choice

Robbie Moore Excerpts

Thursday 25th May 2023 Commons Chamber

[Robbie Moore (Keighley) (Con)]

I commend my right hon. Friend for the statement, which will undoubtedly help waiting lists in my Keighley and Ilkley constituency. Can he confirm that this expansion will be available first to those who have been waiting longest?

[Steve Barclay]

I can confirm that, from October, we will roll this out to those who have been waiting more than 40 weeks, and we will look to bring down that threshold over time. We will focus first on the longest waits.

New Hospitals

Robbie Moore Excerpts

Thursday 25th May 2023 Commons Chamber

[Steve Barclay]

Today’s announcement is transformative for healthcare in Norfolk, for the reasons my hon. Friend has set out: a new hospital at the James Paget and a new hospital in King’s Lynn. Of course, there will be further work from Government on the diagnostic centres and surgical hubs, about which there will be further discussion. In terms of the quality of the modular design, we are bringing the country’s leading experts together, as well as engaging with the market to finalise those designs so that we can have the best inputs as we standardise the design, and then roll that out as the template for schemes at King’s Lynn and James Paget. The quality of the scheme should be of a very high order.

[Robbie Moore (Keighley) (Con)]

After three and a half years of tireless campaigning—of constant lobbying of the Government, raising the high structural risk profile of Airedale hospital due to its aerated concrete construction—I am delighted to hear today’s announcement from the Dispatch Box that we will be getting a new Airedale hospital that is going to be fit for the future. I put on record my thanks to the Airedale NHS Foundation Trust for its hard work and to my neighbouring Members in this place, as well as to the Prime Minister, the Chancellor and the Health Secretary for listening to our concerns and taking them on board. Can my right hon. Friend come and visit the great team at Airedale hospital, and will he give reassurance to me that our new Airedale hospital will be built and open by 2030?

[Steve Barclay]

My hon. Friend has campaigned assiduously over the past three years to make a compelling case for Airedale. I very much look forward to having the opportunity to visit in due course, and the commitment in today’s statement is to ensure that that hospital is built to the 2030 timescale.