Hughes Report: Second Anniversary Debate
Full Debate: Read Full DebateRosena Allin-Khan
Main Page: Rosena Allin-Khan (Labour - Tooting)Department Debates - View all Rosena Allin-Khan's debates with the Department of Health and Social Care
(1 week ago)
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Several hon. Members rose—
Order. This is an incredibly important topic. I remind Members that they should bob if they wish to be called to speak. Because so many Members want to get in, I would be grateful if you can try to stick to approximately four minutes each, to allow everyone to get a say.
Lizzi Collinge
My hon. Friend is absolutely right. This scandal follows a pattern that we have seen far too many times before: early warnings ignored, information withheld or downplayed, measures to protect people not effectively enacted, and public bodies closing ranks rather than being open and honest when things go wrong. I have done a lot of work on maternity safety, and I have seen those patterns again and again; the parallels are really clear. Had concerns been properly addressed at the outset, so much harm could have been avoided, and so many more children would not have been born with lifelong, preventable conditions.
Their families have been waiting for far too long. There were initial recommendations for redress six years ago in the Cumberlege review, but the previous Government failed to act. Through the Hughes report, we have an even more comprehensive examination of what needs to be done to support those families, but they are no closer to getting even a formal response to that. That constant delay increases the cost, delays support and builds up ill-will with affected families, who have already spent their lives fighting for their kids.
I urge the Government to provide an interim payment for those families. We know that that is possible; Dr Hughes has outlined how to do it in this case, and we have seen it in the infected blood scandal. The main question for the Minister is this: when will we get a full response to the Hughes report? When will we actually see some action?
Like so many of my colleagues, I pay tribute to Emma and Janet from the Independent Fetal Anti-convulsant Trust, who are here today. Their children were affected by sodium valproate, and they have been tireless campaigners for compensation for affected families—I have known them for many years now. They have been invaluable in raising awareness about foetal valproate spectrum disorder. I also thank my hon. Friend the Member for Lancaster and Wyre (Cat Smith), who has worked with In-FACT for many years on this and has been a staunch advocate for their campaign.
Despite all their hard work, progress from the Government’s side seems to have stalled yet again, and families are left waiting. We know that things go wrong in medicine, and that all drugs have side effects, but when a harm that is caused was preventable, and when the state fails to act on warnings, the Government must step up. We should do what we should have done years ago, and give justice and support to the families who have already paid a heavy price for our failings.
I remind Members that it is discourteous not to attend for the opening speeches and then to make interventions. As a result, those Members who have been here from the start and will be here until the end will now have a shorter time limit imposed on them. Because of the number of Members who have indicated that they wish to speak, with the authority of the Chairman of Ways and Means, I am imposing a time limit on Back-Bench speeches of three and a half minutes.
Several hon. Members rose—
Order. I know that people are keen to hear from the Minister, so I will bring the speaking time down to three minutes. If there are any interventions, I will have to bring it down even further.
Anna Sabine (Frome and East Somerset) (LD)
It is a pleasure to serve under your chairship, Dr Allin-Khan. I thank my hon. Friend the Member for Chesham and Amersham (Sarah Green) for securing this important debate.
We have had the findings of the Hughes report for over two years now. It called on the Government to provide financial redress to patients and families affected by the use of sodium valproate and pelvic mesh. The previous Government refused to act and increasingly it feels as though the current Government are also burying their head in the sand rather than confronting the scale of this injustice.
My constituent Nick is one of those living with the consequences of that inaction. His son Oliver was born with foetal valproate syndrome after Nick’s wife took valproate during pregnancy to control her epilepsy. Tragically, Nick’s wife has since died, leaving Nick to raise Oliver alone. Nick told me that it is hard for him to adequately explain how difficult Oliver’s life has been and how much he worries about his son’s future.
Valproate has changed Oliver’s life forever, and all Nick wants is answers and meaningful action from the Government. Quite rightly, Nick continually chases me for answers on when the Government will make a decision on the Hughes report. On behalf of Nick and Oliver, I ask very directly: can the Minister say when we will finally get a response to the Hughes report? How much longer do the Government need to “carefully consider” recommendations that have already been scrutinised, evidenced and endorsed? Families such as Nick’s cannot wait indefinitely while the Government deliberate.
I take this opportunity to say that it is also vital that we recognise the devastating impact of Primodos, a hormonal pregnancy test used until the 1980s. Primodos was not considered by the Hughes report, but it was part of the Cumberlege review of hundreds of children born with foetal abnormalities. Many of those affected are now older; tragically, some of them are dying without ever receiving acknowledgment, accountability or compensation.
The pelvic mesh, valproate and Primodos scandals are some of the most significant health scandals of modern times. They have disproportionately affected women, yet time and again we see the same pattern: warnings being ignored; evidence being dismissed; and victims being left to fight for justice on their own. These scandals have gone on for far too long, with little action from successive Governments. Those affected by valproate and Primodos are not asking for the impossible; they simply want those responsible to acknowledge the mistakes made and to take responsibility for the harms caused.
If we are serious about restoring trust in our healthcare system and serious about supporting women, we must start by delivering justice to those who have been failed so profoundly.
We now come to the Front-Bench spokespeople. I call Caroline Voaden.