Dementia Care

Sonia Kumar Excerpts

Tuesday 3rd June 2025 Commons Chamber

[Sonia Kumar (Dudley) (Lab)]

A constituent has written to me to tell me the story of her mother, who was diagnosed with dementia in 2020. Her father was 86 and the primary carer. They spent over £7,000 on five weeks of respite. Does the hon. Member agree that we need to expand respite centres, day centres and home care to ensure that families are not left by themselves?

[Caroline Voaden]

I could not agree more. If we had little chunks of regular respite care, people would not end up having to pay for several weeks, just to recover from the care that they are providing.

There are some brilliant projects working to support families afflicted by dementia, and several of them have been mentioned already. One of the most inspiring examples that I have seen is the Filo Project, a community interest company that offers dementia support in Devon, Cornwall, Somerset and east Lancashire, and which has recently expanded to Bournemouth. The Filo Project takes its name from the pastry, referring to the many layers that make up a personality—the layers that are cruelly and silently stripped away by dementia. The project provides high-quality, community-based day care for people with early to moderate dementia, and what makes it so powerful is its simple approach: small, weekly group support in the home of a host, where people with dementia spend the day receiving the attention, care and companionship they need. That not only helps them, but provides their families with regular and crucial respite and support. I commend founders Libby Price and Dr Liz Dennis, who I believe is in the Gallery today. It is a model that works, and it has made a tangible difference to many families.

There is a critical need for more community-based initiatives such as the Filo Project, and one of my direct asks of the Minister today is that VAT be removed from such services. Although dementia patients can access goods and services exempt from VAT, they have to pay it on the care provided by the Filo Project and others like it. Families supported by the project have paid more than £700,000 in VAT for care since the group was set up 10 years ago, and the extra cost restricts who can afford to take part, so I urge the Minister to remove this burden. While the Government are facing mounting pressures from all sides to find additional funding, it is worth noting that investing in community-based projects is a fraction of the cost of the NHS, yet the impact is transformational, benefiting families across the country and ultimately saving money.