Dementia Support: Hampshire

Stephen Kinnock Excerpts

Wednesday 21st January 2026 Westminster Hall

[The Minister for Care (Stephen Kinnock)]

I really appreciate serving under your chairship, Ms Lewell—I think it is one of the first times I have done so.

I thank the hon. Member for Eastleigh (Liz Jarvis) for securing this debate; I know that dementia support in Hampshire is a cause that is close to her heart. It is also very close to my heart—sadly, I lost my mother to Alzheimer’s in December 2023—and I know exactly what the hon. Lady means when she talks about what a tough time it is for everybody concerned. I also thank her for her huge efforts to raise awareness of the condition, and for her active participation in the all-party parliamentary group on dementia. Although the hon. Lady has brought to the table the subject of dementia support in Hampshire, I hope she will appreciate that I will cast the net somewhat wider in my response, because it is important to see services in Hampshire in the broader context.

Almost 1 million people across the UK are living with dementia. Every one of those people, as well as their friends, families and carers, have their own unique and important story of living with dementia. Even those united by geography will have vastly different experiences. Our goal is to make sure that those experiences differ because we are all fundamentally different people with different thoughts, feelings and backgrounds, and not because of unequal access to diagnoses, health services or support. As I am sure everyone present will agree, it is vital that every person with dementia receives high-quality, compassionate care from diagnosis through to the end of life.

The first step in delivering great care and support for those living with dementia is ensuring that they are able to get a diagnosis. The Alzheimer’s Society’s recent survey on lived experience told us that 96% of people affected by dementia reported a benefit to getting a diagnosis. It is, therefore, our duty to ensure that as many people as possible can access that benefit.

We know that a diagnosis is the gateway to better care, support and potential treatments, and the least we can do is help those living with dementia, and their friends, families and carers, to step through that gateway. That is why we are committed to increasing diagnosis rates to the national ambition of two-thirds of those with dementia receiving a diagnosis. During the pandemic, we sadly dropped to lows of 61%. At the end of November 2025, the overall estimated dementia diagnosis rate for patients aged 65 and over was 66.5%, while the estimated dementia diagnosis rate for Hampshire was 64%. That is, of course, an overall increase from March 2020, due to sustained recovery efforts.

But even when they are armed with a diagnosis, many people have found that there is varying and unequal access to support. We know that our health system has struggled to support those with complex needs, including those living with dementia. People have braved incredibly difficult circumstances and faced hard, emotionally overwhelming conversations to get their diagnoses, and we cannot abandon them afterwards. That is why, under the 10-year plan, we will make sure that those living with dementia will benefit from improved care planning and better services. By 2027, 95% of those with complex needs will have an agreed care plan.

We have also committed to delivering the first ever modern service framework for frailty and dementia. This will help to deliver rapid and significant improvements in the quality of care and in productivity, and will be informed by phase 1 of the independent commission on adult social care led by Baroness Louise Casey, which is expected this year. The framework will seek to reduce unwarranted variation and to narrow inequality for those living with dementia. It will set national standards for dementia care and redirect NHS priorities to provide the best possible care and support.

We are committed to a well-supported adult social care workforce who are recognised as the professionals they are. The Department is supporting the professionalisation of the adult social care workforce through our recently expanded care workforce pathway, which provides a framework for progression and development opportunities so that people can build their skills and careers in care.

We launched a public consultation on the design of the fair pay agreement process—a major step towards implementing it in 2028. The consultation looked at how the process should operate, including who will be part of the negotiations and how the agreement will be implemented. The consultation closed on 16 January 2026. The regulations to establish the negotiating body and to bring together employer and employee representatives are expected to be laid this year. We expect negotiations on pay, terms and conditions and other matters such as training and career progression to be held in 2027. Once the body has reached an agreement on how the funding should be spent, the fair pay agreement will be implemented in 2028. The Government are backing that with a £500 million investment.

The 10-year health plan sets out how we will work towards a neighbourhood health service, with more care delivered locally to create healthier communities, spot problems sooner and integrate health into the social fabric of places. This is crucial for those living with dementia. Adult social care is part of our vision for a neighbourhood health service that shifts care from hospitals to communities, with more personalised, proactive and joined-up health and care services that help people to stay independent for as long as possible. Social care professionals will be a vital part of neighbourhood teams, working alongside the NHS to help people to stay independent for longer and playing an enhanced role in rehabilitation and recovery. Over time, the neighbourhood health service and the national care service will work hand in hand to help people to stay well and live independently.

I know it is disappointing that the National Institute for Health and Care Excellence has been unable to recommend the two new disease-modifying treatments for Alzheimer’s—lecanemab and donanemab—in the final draft guidance, but it is right that such decisions are evidence based and taken independently. NICE is a world-renowned health technology assessment body, and I remain confident in its methods and processes for ensuring that any new medicines recommended for use on the NHS provide the most health benefit at a cost-effective price to the taxpayer.

As announced in the life sciences sector plan, we are taking a number of measures to reduce friction and to optimise access to and uptake of new medicines. The measures will boost the speed of decisions and cut administrative burdens for the system and for industry. NICE and NHS England are doing the work to plan for the adoption of any new licensed and NICE-recommended treatments.

Research is crucial to support people living with dementia and their carers. The Government are investing in dementia research across all areas, from causes, diagnosis and prevention to treatment, care and support. The National Institute for Health and Care Research, which is funded by the Department of Health and Social Care, funds and supports impactful research. For example, NIHR infrastructure investment has supported the groundbreaking DROP-AD trial, which has shown that Alzheimer’s disease biomarkers can be detected using finger-prick blood samples. That is a really exciting development that brings us closer to accurate and timely diagnoses of dementia.

Research cannot take place without the incredible people who volunteer to be part of it. Through the NIHR, my Department works closely with charity partners in the delivery of joint dementia research. People with and without a diagnosis of dementia can use an online platform to sign up to take part in vital dementia research. I encourage everybody and anybody who might be watching this debate to register with the service, to help to shape the future for people living with dementia. We will continue to invest in dementia research in Hampshire and across the UK.

We recognise the vital role of unpaid carers and are fully committing to ensuring that they have the support they need. I chair a cross-Government ministerial group with the Department for Business and Trade, the Department for Education and the Department for Work and Pensions, all at the ministerial level. Through the measures in the 10-year health plan, we are equipping and supporting carers by making them more visible, empowering their voices in care planning, joining up services and streamlining their caring tasks by introducing a new “My Carer” section in the NHS app.

To support unpaid carers, on 7 April 2025 the Government increased the carer’s allowance weekly earnings limit from £151 to £196 a week—the equivalent of 16 hours at the national living wage. This was the largest cash increase since the carer’s allowance was introduced in 1976. As a result, more than 60,000 additional people will be able to receive carer’s allowance between 2025-26 and 2029-30.

We are reviewing the implementation of carer’s leave and considering the benefits of introducing paid leave for carers. On 19 November 2025, we published the terms of reference for the review of employment rights for unpaid carers, and in 2026 we will run a public consultation on employment support for unpaid carers. To help local authorities to fulfil their duties, including to unpaid carers, we are making around £4.6 billion of additional funding available for adult social care in 2028-29, compared with 2025-26.

I again thank the hon. Member for Eastleigh for bring forward such an important topic for discussion. Whether on research, the workforce or unpaid carers, we recognise that there is a tremendous amount to do. We have two work streams, one of which is the Casey commission, which will look at how we fundamentally rewire how we do care in our country, and the other is what the Government are doing immediately. We are not sitting on our hands and waiting for the Casey review; we are taking forward the measures that I have, I hope, outlined with sufficient clarity.

I absolutely recognise that there is a huge way to go. We have a mountain to climb on this. We are not going to fix our national health service unless we fix our care service; it is a deeply integrated ecosystem and we have to get both sides of it right. The 10-year plan and our plans for a neighbourhood health service are all about moving from fragmentation to integration, and that is the way we have to go if we are to get our health and care systems back on their feet and fit for the future.

It has been a real pleasure to respond to the hon. Member for Eastleigh. I hope I have reassured her that dementia is a priority for this Government, and that we are going to do all that we can to ensure that those living with dementia, and their loved ones and carers, are supported and cared for.

Question put and agreed to.