Parkinson’s Disease

Tim Farron Excerpts

Monday 17th November 2025 Westminster Hall

[Paul Davies]

I will refer to that later, but I absolutely agree. The fluctuating nature of the illness means that we have to provide that.

[Tim Farron (Westmorland and Lonsdale) (LD)]

Will the hon. Gentleman give way?

[Paul Davies]

Oh, go on, before I start again—I will only lose my place otherwise.

[Tim Farron]

The hon. Gentleman is being incredibly generous, and I thank him for his excellent introduction. Given that the condition is often degenerative and that, tragically, people do not get better from it, it is not outrageous that a number of integrated care boards—including mine, Lancashire and South Cumbria—are reassessing people with Parkinson’s for continuing healthcare, and that many of them are losing that care? Does the hon. Gentleman agree that that is wrong, and that people with such conditions should be able to guarantee that they will get the support and healthcare they have had for many years?

[Paul Davies]

I agree. I will refer later to ICBs, which clearly have to ensure the full, necessary support, particularly for this community. I understand the pressures they are under—we all do—but taking away support from people is a much bigger issue than people not getting support in the first place. I am sure that all of us across the House would like to work on that issue.

This plan is rooted in lived experience and offers a practical road map for change, including renewed investment—I say that to give some context; otherwise we will lose track of where we are. In April, during World Parkinson’s Day, I attended the Big Sing for Parkinson’s. That uplifting event was quite amazing and inspiring; it was full of energy, music and community spirit. It was organised by the same “Movers and Shakers” group I referred to earlier, and brought together people living with Parkinson’s, and very importantly their families, in both London and Huddersfield.

I had the pleasure of speaking to Mark Mardell, the former BBC political journalist and the lead petitioner—he is sitting at the back of the Public Gallery, and I thank him very much for the petition and for the work he is doing. [Hon. Members: “Hear, hear.”] He shared his personal journey with me and emphasised the urgent need for reform. Like the charter, the Big Sing is a celebration of resilience and a call for action.

Since July 2024, the Government have taken the following steps. The autumn Budget last year included a £600 million increase in social care funding and an £86 million boost to the disabled facilities grant. In April 2025, the Government reaffirmed their commitment to improving outcomes for neurological conditions, through initiatives such as the RightCare toolkit, the Getting It Right First Time programme and the neurology transformation programme. Spending review 2025 also pledged £29 billion in additional NHS funding by 2029, including £10 billion for technology and GP training. This is just the start in addressing the needs of those living with Parkinson’s.

An estimated 253 people with Parkinson’s live in my constituency of Colne Valley. That is as per the previous constituency boundaries, but there will be revised figures in line with the new constituency boundaries, although they are hopefully not revised upwards. West Yorkshire NHS ICB plans and delivers care for people with Parkinson’s in the ICB area. In 2023-24, the spend on admissions to hospital in that area increased by 4.9%, and the cost of each admission was just over £6,000.

However, we face extremely serious challenges. The UK ranks near the bottom in Europe for the number of neurologists per capita. Neurology services meet the 18-week referral target only about half the time. Only 44% of patients in England have access to an occupational therapist, only 62% have access to a physiotherapist and just 40% have access to a speech and language therapist. Those professionals are essential; they are not optional. The Government are addressing that issue through the broader NHS workforce strategy, which includes expanding the number of training places and reforming medical education pathways to address shortages in specialist areas such as neurology.

However, the Parky charter also highlights the importance of timely medication. For people with Parkinson’s, receiving medication within 30 minutes of the prescribed time is not a convenience; it is an absolute necessity. Yet more than half of hospitalised patients report delays. The NHS’s medicines safety improvement programme, which runs from 2024 to 2027, is a step forward, but implementation must be consistent across all trusts.