Endometriosis Services

Wera Hobhouse Excerpts

Tuesday 24th March 2026 Westminster Hall

[Wera Hobhouse (Bath) (LD)]

It is a pleasure to serve with you in the Chair, Mr Dowd.

I congratulate the hon. Member for Ipswich (Jack Abbott) on bringing this important debate to this Chamber, and I thank all the women who have campaigned on this issue, especially those in the Public Gallery today, for their tireless work to make us all aware of this crippling condition.

In the UK, endometriosis now takes an average of almost 10 years to diagnose, leaving many women in terrible pain after repeated GP visits and long waits for referral. One of my staff members has endometriosis and with her permission I will share part of her story, because it reflects what too many women across the country still endure; indeed, we have heard many such stories in Westminster Hall today. Having a debate on the issue in this Chamber is not only about raising awareness but about taking away stigma, allowing women to really talk about what they experience, and not make them feel that they are making it all up.

For years, my staff member experienced pain so severe that she would sometimes lie on the bathroom floor shaking, nauseated and unsure whether or not she needed urgent medical help, yet she was too embarrassed to explain what was happening because it was connected to her period. She was told more than once by GPs that her symptoms could be caused by anxiety, or that perhaps she had a low pain tolerance. She began to doubt herself. Too often, pain linked to menstruation is minimised, normalised or treated as something that women should simply tolerate.

It was nearly a decade before my staff member received a diagnosis of endometriosis. She described repeated appointments, invasive tests and endless battles just to be referred for scans. It was only when a young female GP finally listened and believed her that things changed. When she finally received her diagnosis, she cried, not because she was frightened but because she was finally being believed. Even then, the diagnosis came with no explanation of what it meant for her future. There was no discussion of fertility and no real guidance on managing a chronic condition that had already shaped years of her life. As we have already heard today, her experience is not unusual, and I know there are many other similar stories out there.

Endometriosis UK’s latest report found that 39% of respondents had to visit their GP 10 or more times before their GP even suspected that they had endometriosis. Almost 50% of those attending hospitals with endometriosis were sent home without treatment. How shocking is it that nearly half of women who go to hospital because of endometriosis leave with no help whatsoever?

Endometriosis is a progressive condition. Delays in diagnosis and treatment can mean worsening pain, damage to organs such as the bowel or bladder, and for some women severe consequences for their fertility. Every year of delay allows the condition to progress, making treatment more complex and outcomes worse. Some women in their 20s are left facing hysterectomies; some require bowel surgery or even a stoma, because the condition has advanced unchecked. Also, diagnosis is significantly less likely for women of colour, for women born outside the UK and for women whose main language is not English.

However, delayed diagnosis is only one part of the problem. Access to treatment is also constrained by the wider crisis in gynaecology services. Over 500,000 women are now on gynaecology waiting lists, which have grown faster than the waiting lists for any other condition. Again, we should ask ourselves the question, why might that be?

While women sit on waiting lists, they continue trying to work through pain that is often invisible to others. My staff member described the awkwardness of explaining why she was unwell, because women’s health still faces so much stigma. That taboo has real consequences. Research suggests that 80% of women who take time off work because of period health issues do not tell their employers the real reason. Women are managing serious pain in silence because they fear embarrassment, disbelief or being seen as less capable than other employees.

An Office for National Statistics study published last year found that women diagnosed with endometriosis experienced lower earnings and reduced employment over time. Amelia, one of my Bath constituents, described to me living with symptoms since the age of 12. She described her struggles to manage a full-time job with the condition. Amelia asked one simple question: “If this was your daughter, what would you do?”

As the Government review the women’s health strategy, I hope Ministers will ensure that endometriosis is taken seriously. GP training must improve, and referral pathways must be faster to diagnose women quickly and then treat them without delay. Inequality of care must also be addressed. I urge the Government to commit to the Endometriosis UK target of reducing the average diagnosis time to one year or less by 2030 and moving diagnosis and treatment into the community. Let us not wait any longer. Let today be the day for change.

[Jess Brown-Fuller (Chichester) (LD)]

It is a pleasure to serve under your chairmanship, Mr Dowd, and a pleasure to see the Minister in her place. She has been a doughty campaigner not only for children’s health but for women’s health over many years. I am pleased to see her in her place. I thank the hon. Member for Ipswich (Jack Abbott) for securing this important debate. We share a common goal because I have been applying for a Westminster Hall debate on endometriosis since I arrived in this place. I am delighted to see it finally happen.

Endometriosis was a word that I grew up with in my house, because my mum suffered with it and ended up having a full hysterectomy in her mid-30s. As a woman in her mid-30s, I am watching the cycle repeat, but with my friends. I have seen two of my closest friends being gaslit and for over a decade being told, “Maybe it’s IBS; maybe you are a bit of a hypochondriac; have you considered gluten intolerance? Could it be stress? How is your lifestyle?” Only now, after both of them, I am sad to say, suffered ectopic pregnancies, are they being taken seriously and endometriosis is being explored for both of them, which will explain the pain they have both been in for a decade—for one of them, two decades.

Of the constituents who have got in touch with me since I was elected, there was one mother who got in touch who had suffered from endometriosis. It took nine years to get her diagnosis and she said, “My daughter is now starting her periods and I am seeing the same thing repeat itself. She is showing the same symptoms that I had as a teenage girl. We go to doctors and I try to advocate and fight for her, but we are told, ‘Maybe she just has a low pain threshold. Have you considered putting her on birth control to ease the symptoms of her periods?’” That is heartbreaking for that mother. She is not fighting for herself any more; she is fighting for the next generation of young women, who need to get support as early as possible so that their diagnosis can be made and their treatment options explored as early as possible.

[Wera Hobhouse]

Does my hon. Friend agree that for a lot of these conditions it is vital to have more research? For example, there could be a genetic link that is not explained yet, and it would make it so much easier for daughters of women who had endometriosis to get much faster treatment and diagnosis. Research is a vital part of the picture.

[Jess Brown-Fuller]

I could not agree more with my hon. Friend about research into gynaecological conditions. If we invested as much into women’s health as we have done over many decades into men’s health, maybe we would not have so many different types of Viagra and we might have a response to women’s health.

Clinicians, importantly, do not have to have specialist training in gynaecological conditions when they go through their training. It is not mandatory, so it is vital to ensure that such training is available and mandated for all clinicians, especially those in general practice, because the most important thing we can do as MPs is break down the barriers that our constituents face daily. Fixing the way we perceive endometriosis as a country is one of the things that we can do, so that we can look back on our time here and think about how we made a difference for women up and down the country.

I know the Minister shares my ambition to do better for all women, so I ask her: what are the Government doing to break down the barriers to earlier diagnosis for women suffering with gynaecological issues, especially endometriosis? Does she believe that there are benefits to having dedicated gynaecological wards in hospitals? In my local hospital, St Richard’s in Chichester, there is no specialist gynaecological ward; patients are put in different wards depending on which procedure they have had, which means that they are potentially not receiving the specialist aftercare they could be. Finally, does the Minister believe that all medical professionals should have mandated gynaecological training so that they can give support as early as possible to those who so desperately need it?