We think research on TSW is crucial in creating diagnostic criteria, also to inform prevalence and aid in prevention. There’s growing awareness about the potential side effects of topical steroids, but until there is more action to address this, we are concerned patients will continue to suffer.
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We urge funding allocation for the following:
1. Research to establish: susceptibility, diagnostic criteria, variations in expression, patient experiences/history of steroid use, and suggested maximum dosage.
2. Mental health support is crucial due to often severe psychological challenges faced alongside physical symptoms.
3. Education for GPs and dermatologists on TSW to support patients currently suffering and aid in preventing future cases.