Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what support is available for mothers of children and infants with rare diseases.
The England Rare Diseases Action Plan 2022 sets out specific commitments for improving the lives of those living with rare diseases. The Action Plan aims to support both individuals living with rare conditions and their carers, including mothers of children and infants living with rare diseases, through faster diagnosis, raising awareness of rare diseases among healthcare professionals, improving coordination of care, and improving access to specialist care, treatments, and drugs.