Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what discussions he has had with cystic fibrosis charities on the effectiveness of Orkambi.

The Parliamentary Under Secretary of State (Lord O’Shaughnessy) met with the Cystic Fibrosis Trust on 7 March 2017 following on from an adjournment debate in December 2016 on “Implications of the Accelerated Access Review for Cystic Fibrosis and other Conditions” to discuss Orkambi. However, it is for the National Institute for Health and Care Excellence as the independent body that provides guidance on the prevention and treatment of ill health and the promotion of good health and social care to make decisions on the clinical and cost effectiveness of treatments.