Question to the Department for Work and Pensions:

To ask the Secretary of State for Work and Pensions, what training personal independence providers receive on the effect of Charcot-Marie-Tooth disease on a claimant's ability to work.

Personal Independence Payment (PIP) is a non-means-tested benefit available to disabled people regardless of their employment status. The PIP assessment focuses on a claimant’s ability to carry out a range of activities which are fundamental to living an independent life. It is designed to help working aged people with the extra costs associated with their disability. It does not assess a claimant's ability to work.

PIP assessment providers (APs) are required to ensure that all health professionals (HPs) carrying out assessments undergo comprehensive training in the functional assessment to become experts in disability analysis, focusing on the effects of health conditions and impairments on the individual claimant's daily life.

Whilst HPs do not receive specific training relating to Charcot-Marie-Tooth disease, they have access to a range of resources as well as experienced clinicians who can support them in assessing individuals with conditions that they may not be familiar with. HPs also keep their knowledge up to date through continuous professional development and APs engage with medical experts, charities, and relevant stakeholders to strengthen their training programmes.

The Health and Disability White Paper committed to developing the skills of HPs. In addition, we have started a small-scale proof-of-concept test matching certain claimants' primary health condition to an existing HP with relevant clinical experience. As part of this, we are exploring opportunities for HPs to undertake additional training.