Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether there is a timetable for devolved nations to agree an implementation plan to support the new rare disease framework.
All four United Kingdom nations have signed up to the development of a new UK Rare Diseases Framework, set for publication at the end of 2020. The Rare Diseases Framework will be followed by nation-specific action plans that will detail the steps each government will take to meet the shared priorities of the Framework. The devolved administrations have agreed to publish nation specific action plans within two years of the Framework publication.