Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether the Government has plans to commission an external evaluation of the 100,000 genomes project.

The project is regularly reviewed by Infrastructure and Projects Authority which provides independent assurance to the most complex and strategically significant projects across Government.

A number of pilot sites were in operation prior to the start of the 100,000 Genomes Project. Following the evaluation of these pilot projects, processes were put in place for how the 100,000 Genomes Project is delivered at scale across the country.

Learning from the 100,000 Genomes Project has been key to the development of a new National Genomic Medicine Service and National Genomic Test Directory by the National Health Service in England both of which will become operational in autumn 2018.

A study ‘Understanding Experiences of Recruiting for and Participating in Genomics Research’ is being undertaken at the Departmental–funded Policy Innovation Research Unit. The study will include people's experience of taking part in the 100,000 Genomes Project and is due to report in 2018.