Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what plans the Government has to improve the quality of care for patients with (a) Huntington's disease and (b) other neurological conditions.

NHS England plans to improve the quality of care for Huntington’s disease and other neurological conditions through continued developments to Neuroscience services.

Genomic testing for patients with Huntington disease is included on the Test Directory under the R.68 and R383 clinical indication. Over the last 12 months the NHS Genomics Medicines Service has carried out over 900 tests for these clinical indications.

NHS England’s neuroscience transformation programme (NSTP) is developing a number of optimal pathways for neurology services which includes Huntington's disease. Following extensive stakeholder engagement, the NSTP is developing a new definition for ‘specialised’ neurology and a model for neurology services. The transformation programme will provide integrated care systems (ICS) with the tools, information and resources, they will need to drive the transformation in their neurology services, as they take on joint or delegated responsibility for commissioning specialised neurology services from April 2023 onwards.