Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether the federated data platform will include functionality to enable the creation of a consolidated national allergy register.

The current use cases for the Federated Data Platform (FDP) are:

- elective recovery, to address the backlog of people waiting for appointments or treatments;

- care coordination, to enable the effective coordination of care between local health and care organisations and services, reducing the number of long stays in hospital;

- vaccination and immunisation, to continue to support the vaccination and immunisation of vulnerable people while ensuring fair and equal access and uptake across different communities;

- population health management, to help integrated care systems proactively plan services that meet the needs of their population; and

- supply chain management, to help the National Health Service put resources where they are needed most, and buy smarter so that we get the best value for money.

The creation of a consolidated national allergy register, or identifiable national clinical data registries, is not in the current scope of the FDP, which will not be processing identifiable patient data at a national level. More products will be developed on the FDP throughout the lifecycle of this programme.

The FDP programme has developed a front door process and demand assessment framework which will be used for new requirements coming into the programme. The assessment framework assesses ideas and requests on the basis of their fit to the core FDP objectives and targeted business case outcomes, as well as assessing against the feasibility of successful delivery when considering things like cost, capacity, wider system dependencies, and other factors. In regard to a consolidated national allergy register, we would expect discussions to be held initially within the National Disease Registry Service.

Alongside the FDP, NHS England are investing in platform modernisation, including the Patient Outcomes and Registries Platform (ORP) which is a unified national registry platform integrated into NHS England’s system data infrastructure for improved data security, flow, linkage, and analysis, and faster pace of registry development.

The ORP’s directions cover all outcome registries, patient-reported outcome measures and patient-reported experience measures, and shared decision-making and data collections across a wide range of conditions, including all surgical and interventional procedures in the NHS and independent sector. A national allergy register or registry may be in the scope for the ORP’s coverage.