Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, when he plans to update the NHS website with information about Sudden Unexplained Death in Childhood; and if he will make this updating a priority.

NHS England are in the process of reviewing content drafted by patient groups and confirming processes for updating the NHS.UK website to include relevant information on Sudden Unexplained Death in Childhood (SUDC), with a view to have updates published in the coming months. This includes exploring the most helpful options for updating information relating to febrile seizures.

NHS England intend to update the ‘When A Child Dies’ leaflet over the next year in collaboration with affected families, parents and carers, as well as National Child Mortality Database colleagues and SUDC charities, including SUDC UK and relevant professional groups.