Phenylketonuria: Sapropterin

(asked on 14th July 2023) - View Source

Question to the Northern Ireland Office:

To ask the Secretary of State for Northern Ireland, if he will bring forward proposals to permit the use of Kuvan for people with Phenylketonuria in Northern Ireland aged 21 and above.


Answered by
Steve Baker Portrait
Steve Baker
This question was answered on 20th July 2023

The use of Kuvan for people with Phenylketonuria in Northern Ireland is a matter for the Northern Ireland Department of Health.

The Northern Ireland Executive Formation etc. Act 2022 and subsequent Northern Ireland Interim Arrangements Act 2023 make powers available to Northern Ireland Departments to take decisions to maintain the delivery of public services in the absence of Northern Ireland Ministers and a Northern Ireland Executive.

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