Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, with reference to Alzheimer’s Research UK’s report entitled Tipping Point: The Future of Dementia, what steps his Department is taking to increase the proportion of people with a dementia diagnosis who are registered to be informed about dementia clinical trials.

Join Dementia Research (JDR), delivered by the Department via the National Institute for Health and Care Research (NIHR) and in partnership with Alzheimer’s Society, Alzheimer Scotland and Alzheimer’s Research UK, is our main tool for enabling people to register their interest in dementia research and be matched to trials. The goal is to improve participation and diversity in dementia research by making it possible for anyone who wants to be involved in dementia research to get the chance to do so.

To increase the proportion of people with a dementia diagnosis in dementia clinical trials and other research and to increase awareness of opportunities to take part, the NIHR is undertaking several actions, including but not limited to: direct text messaging from general practitioners to patients at selected sites across England; establishing links with NHS Memory Services and other care networks to integrate discussion of JDR into their processes; working with the NHS Admiral Nurses to develop training materials to support healthcare professionals when discussing research with patients; and working to establish a national network of local JDR champions who will build on relationships with local organisations, charities and local groups representing under-represented communities to engage people with JDR.