Congenital Myasthenic Syndrome
(asked on 21st July 2014) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, what discussions he has had with the British Medical Association on the prescribing of salbutamol to treat congenital myasthenia.
This question was answered on 4th September 2014
Ministers have had no such discussions.
Salbutamol is not licenced for the treatment of congenital myasthenia. Doctors can prescribe a medicine outside the terms of its licence if this best meets the clinical need of an individual patient and on condition that they retain full clinical responsibility for that patient.