Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, with reference to the oral evidence to the Health Committee of Dame Fiona Caldicott, 21 January 2015 to Question 705, what assessment he has made of whether patients who opt out of the care.data scheme will be excluded from NHS services such as bowel screening and e-referrals.

The process for objecting (‘opting out’) will be communicated during the care.data pathfinder stage and will apply to the use of identifiable general practitioner data for purposes beyond direct care. The care.data Programme team is working closely with clinical commissioning group pathfinder practices to ensure that it is understood that the opt-out should not impact upon the sharing of information for direct care.

The care.data Programme team is working closely with the Health and Social Care Information Centre (HSCIC), NHS England and the Department in relation to ‘type 2 objections’. Appropriate communications will be agreed before starting communication activity in pathfinder areas.

For those people who have made an existing ‘type 2 objection’, the HSCIC is committed to ensuring no patient suffers any adverse impact on their direct care through an inappropriate implementation of an objection. This means that information flows to support services such as cancer screening, electronic prescriptions and e-referrals are currently flowing and will continue to do so.