Neuromuscular Disorders

(asked on 11th May 2021) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what plans his Department has to increase awareness of the rare neuro degenerative conditions Corticobasal Degeneration (CBD) and Progressive Supranuclear Palsy (PSP) and to support increased research into improved treatments and a cure.


Answered by
Edward Argar Portrait
Edward Argar
Minister of State (Ministry of Justice)
This question was answered on 17th May 2021

On 9 January 2021, the Government published the UK Rare Diseases Framework, outlining four key priorities to improve the lives of those living with rare diseases such as Corticobasal Degeneration and Progressive Supranuclear Palsy. This includes a priority around increasing awareness amongst healthcare professionals. Pioneering research is included as one of the five underpinning themes in the Framework. The Framework will be followed by specific action plans, detailing how each part of the United Kingdom will meet the shared priorities. The Government has spent £344 million on dementia and neurodegeneration research in the past five years and is currently working to further increase this research at all stages of the translation pathway including medical interventions.

Reticulating Splines