Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 16 September 2016 to Question 45638, on sickle cell disease screen positive babies, if he will publish the data for (a) England, (b) each Public Health England sub-region and (c) each antenatal screening provider for each year since 2009-10.

Data on the number of sickle cell disease (SCD) babies born in England from 2010/11 are available to view here at the following link:

https://www.gov.uk/government/publications/sickle-cell-and-thalassaemia-screening-data-trends-and-performance-analysis

Data prior to 2010/11 is available regionally in the National Health Service Sickle Cell and Thalassaemia Screening Programme archived reports at the following link:

https://webarchive.nationalarchives.gov.uk/20150528151022/http://sct.screening.nhs.uk/data-reports

From 2015/16 data is published by four regions and is reflected in the attached table.

Data on the number of SCD babies born in England is publicly available. However, data for 2017/18 is not yet available but is due to be published at the end of 2019. Data for each antenatal screening provider is not available.