Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent steps he has taken to ensure the availability of treatment for cystic fibrosis.
Specialised services for the support and treatment of patients with cystic fibrosis (CF) are commissioned by NHS England. CF services are delivered in about 20 Paediatric Cystic Fibrosis Centres and about 20 Adult Cystic Fibrosis Centres. There are separate service specifications for adults and children. These specifications are important in clearly defining what NHS England expects to be in place for providers to offer evidence-based, safe and effective care and they support equity of access to a nationally consistent, high quality service.
The specifications can be found via the following links:
www.england.nhs.uk/wp-content/uploads/2018/08/Cystic-fibrosis-adult.pdf
www.england.nhs.uk/wp-content/uploads/2018/07/a01Sb-spec-cystic-fibrosis-child.pdf