Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, whether NHS England's workplan for 2016-17 will include developing a policy for the effective delivery of care for people with tuberous sclerosis complex.

Most services for patients with tuberous sclerosis complex (TSC) are commissioned locally by clinical commissioning groups. There will only be very specific items relating to TSC included in NHS England’s clinical commissioning priorities for 2016/17. NHS England is currently identifying its clinical commissioning priorities for all services or conditions that fall within its commissioning responsibility for 2016/17; work which we are advised will be completed in April 2016.