Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what steps his Department is taking to make the drug Everolimus available for the treatment of patients with tuberous sclerosis; and when that drug will be available on the NHS.

The Clinical Priorities Advisory Group recommendation relating to the clinical policy statement for using Everolimus to treat Angiomyolipomas was discussed at the Specialised Commissioning Oversight Group meeting on 9 March. The outcome of this meeting will be shared as soon as it is available.

A full clinical policy for the use of Everolimus for subependymal giant cell astrocytoma is currently out for public consultation. This policy proposition will be considered for investment in the annual prioritisation round in June 2016.