Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what information his Department holds on the number of undiagnosed cardiovascular diseases and conditions in young people; and if he will make an assessment of the potential impact of undiagnosed cardiovascular diseases and conditions on young people.

Data on the number of undiagnosed cardiovascular diseases and conditions in young people is not held centrally as these conditions are undiagnosed. The National Health Service, however, offers screening to young persons, those aged under 35 years old, where a family member has suffered from a sudden cardiac death. The charity Cardiac Risk in the Young offers subsidised cardiac screening to all young people aged between 14 and 35 years old and may hold data on the number of young people requesting screening outside of the NHS.

NHS England published in 2017 a national service specification for Inherited Cardiac Conditions (ICC), which defines the standards of care expected from organisations funded by NHS England. This specification covers young adults with previously undiagnosed cardiac disease. The aim of the ICC services is to improve the diagnosis, treatment, and outcome of patients with ICCs.

NHS England is currently reviewing this service specification, working with a broad range of stakeholders as part of the review, including NHS clinical experts, the Association of Inherited Cardiac Conditions, Cardiomyopathy UK, Heart Valve Voice, and the British Heart Foundation. NHS England does not have a national audit programme for ICCs, and therefore no treatment data is held centrally.