Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what the average waiting times were for patients requiring an organ transplant in each of the last five years, broken down by (a) religion and (b) ethnic group.

Information on waiting times is not held by year for religious or ethnic groups. Waiting times also vary between organ types.

NHS Blood and Transplant (NHSBT) is responsible for organ donation and managing the organ transplant waiting list across the United Kingdom. Information available on annual activity and the current waiting list is captured in the NHSBT Annual Activity Report, which is available at the following link:

https://www.odt.nhs.uk/statistics-and-reports/annual-activity-report/

Improving National Health Service Organ Donor Register registration rates overall and particularly for ethnic minority groups is a priority for the Government and NHSBT, to save and improve more lives.

NHSBT conducts marketing and communication activity throughout the year to increase organ donation particularly for underrepresented groups which includes but is not limited to: publication of the Annual Report of Ethnic Differences in Transplantation with supporting media coverage including on the BBC Asian Network; raising awareness during South Asian Heritage Month with charities and organisations; continued activity during Organ Donation Week 2024 with partners including Dalgety Tea and an exclusive screening of the living donation film ‘The Final Gift’ at Brixton’s Ritzy cinema.

NHSBT is committed to reducing health inequalities in treatment and health outcomes that see some people wait longer for life saving treatments, or in some cases miss out on them all together. Some of the priority areas to tackle health inequalities include reducing the waiting time for minority groups waiting for organs and increasing access to automated exchange transfusion by people with sickle cell disorder.

NHSBT’s Community Grants Programme is part of NHSBT’s work to build support for organ donation amongst Black, Asian, mixed heritage and minority ethnic communities, working through faith groups to increase understanding and drive behavioural change on organ donation. In the latest funding round, we awarded 51 organisations funding to begin their work in September 2024. This included £150,000 to support deceased organ donation and £150,000 to support living kidney donation.

Projects range from local community charities, experienced blood/organ charities to universities and places of worship. For example, the South Asian Heritage Trust aims to raise awareness about organ donation and tackling health inequalities by empowering South Asian communities to make informed choices and increase the number of registered organ donors. NHSBT also works closely with patient groups and charities including the Sickle Cell Society, the National Black, Asian, Mixed Race, and Minority Ethnic Transplant Alliance (NBTA), the African Caribbean Leukaemia Trust, the NHS Race Health Observatory and many more.

NHSBT works closely with the NBTA to deliver culturally and religiously sensitive messaging about low donation rates amongst their communities.