Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what plans he has to help increase public (a) awareness and (b) understanding of sickle cell disorder and the impact on that disorder on (i) individuals and (ii) families.

Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as sickle cell disorder.

To improve awareness of sickle cell disorder, NHS England has carried out a range of activities including developing and launching a national Can You Tell its Sickle Cell campaign in 2022 including a hand-held patient card that could be used in a sickle cell crisis. It has also produced and published a series of four podcasts, featuring three sickle cell patients, placed partnered editorials in Black media to promote awareness of the condition and the potential impact on people’s daily lives, and piloted a successful free monthly e-learning sickle cell series for patients in London. This course will soon be available both nationally and globally.

NHS England has designed a prescription savings campaign to raise awareness of two available money-saving schemes among those living with conditions such as sickle cell, and in deprivation.