Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what progress NHS England has made on sharing data about patients who (a) received a blood transfusion before 1996 and (b) have tested positive for (i) HIV and (ii) Hepatitis C with the Independent Contaminated Blood Authority.
NHS England is supporting the Infected Blood Compensation Authority (IBCA) with their engagement with National Health Service organisations for the purposes of sharing data on patients who received a blood transfusion before 1996 and who have tested positive for HIV or hepatitis C, to support compensation claims.
This support includes highlighting the requirement to provide information promptly to the IBCA to support claims, conducting workshops to understand how the IBCA can most effectively gather information from NHS organisations, and drafting guidance for patients, clinicians, and information governance professionals so that NHS organisations feel confident about sharing information to support claims.