Neurological Diseases: Mid Bedfordshire

(asked on 1st September 2025) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he plans to take to improve access to NHS Continuing Healthcare for people with (a) Progressive Supranuclear Palsy and (b) Corticobasal Degeneration in Mid-Bedforshire constituency.


Answered by
Stephen Kinnock Portrait
Stephen Kinnock
Minister of State (Department of Health and Social Care)
This question was answered on 12th September 2025

Our national statutory guidance, the National framework for NHS Continuing Healthcare and NHS-funded Nursing Care, outlines that access to NHS Continuing Healthcare (CHC) assessment, care provision, and support should be fair, consistent, and free from discrimination. This national statutory guidance is available at the following link:

https://www.gov.uk/government/publications/national-framework-for-nhs-continuing-healthcare-and-nhs-funded-nursing-care

Eligibility for CHC is not determined by diagnosis or condition. Individuals can be identified and referred for CHC assessments by a variety of health or social care practitioners who have been trained and are known to the individual. Individuals and families can also request a CHC assessment from a health and care practitioner.

Integrated care boards should make the CHC Public Information Leaflet available to members of the public, for example through local National Health Service websites, hard copies on hospital wards, through primary care outlets, local care homes, and local voluntary sector organisations. This Public Information Leaflet containing further information on CHC is available at the following link:

https://www.gov.uk/government/publications/nhs-continuing-healthcare-and-nhs-funded-nursing-care-public-information-leaflet/public-information-leaflet-nhs-continuing-healthcare-and-nhs-funded-nursing-care--2

NHS England has also commissioned an information and advice service for CHC, supplied by Beacon, which individuals and their families might find helpful, and which is available at the following link:

https://beaconchc.co.uk/how-we-can-help/free-information-and-advice-on-nhs-continuing-healthcare/

Reticulating Splines