Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential merits of extending the eligibility for free prescriptions to people with Shwachman-Diamond Syndrome.

There are no plans to review the list of medical conditions that entitle someone to apply for a medical exemption certificate.

There are extensive arrangements in place in England to ensure that prescriptions are affordable for everyone. Approximately 89% of prescription items are dispensed free of charge in the community in England, and there is a wide range of exemptions from prescription charges already in place for which those with Schwachmann Diamond Syndrome may be eligible. Eligibility depends on the patient’s age, whether they are in qualifying full-time education, whether they are pregnant or have recently given birth, or whether they are in receipt of certain benefits or a war pension.

People on low incomes can apply for help with their health costs through the NHS Low Income Scheme, which provides help based on a comparison between a person’s income and requirements.

People who need to pay and need many prescription items could save money with a prescription prepayment certificate (PPC). PPCs allow people to claim as many prescriptions as needed for a set cost. An annual PPC costs £114.50 and will save money if they need 12 or more items in 12 months. To help spread the cost, people can pay for an annual PPC by ten monthly direct debits, which works out as just over £2 per week. A three-month PPC for £32.05 is also available.