Ehlers-Danlos Syndrome: Research

(asked on 10th October 2025) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support research into treatments for (a) Ehlers Danlos Syndrome and (b) related conditions.


Answered by
Zubir Ahmed Portrait
Zubir Ahmed
Parliamentary Under-Secretary (Department of Health and Social Care)
This question was answered on 20th October 2025

The Department funds research on health and social care through the National Institute for Health and Care Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health and care including Ehlers Danlos Syndrome and related conditions.

These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality. Topics for new research can be proposed to the NIHR via the following link:

https://www.nihr.ac.uk/get-involved/suggest-a-research-topic

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